Breast Cancer Now Forum

Ok Well here we go. I came out of the meeting with the surgeon with the biggest smile on my face. IT HAS NOT SPREAD to my Liver, yay. Also the tumour is 4cm not 6cm as stated in the letter to me, AND I will be having a lumpectomy, not a mascectomy,  though I will be losing my nipple, and I can come home the same day. Obviously very very happy,  relieved, and a weight lifted from my shoulders. I have already had a Clip put  in my right breast to mark the tumour, seeing oncologist next Tues, and ECG next week. I will start with Chemo begining with Herceptin then going onto another mix. Then op then rads and poss tabs. Feel ready to start a race. Looking forward to next week except for the Monday as that is  Mums funeral. Oddly when I went up to hers and dads picture this morning I said quite strongly 'don't worry I will be OK'. Going to write a heartfelt thank you letter to PALS, it was good to have them on my side. Hugs to all Cazzy ... View more

Evening, Looking forward to the appointment tomorrow, a little anxious too. Feel a lot more positive today as I was able to access a pennybrohn course for living with cancer. Two day course yesterday and next wednesday. Because I went there and took part in the course I felt that I was more in control. At least I can be proactive in my care. I was worried as to how I would cope but my sister in law came as my supporter and she was able to eplain about my Mum. Fingers crossed for tomorrow will let you know.X ... View more

O wow, Hugs cazzy ... View more

I had a phone call from the breast cancer nurse yesterday saying I have  an appointment on Friday at noon. Not sure who with, but one of the surgeons I think.   As they do not have their MDT meeting until today I am not counting on it happening. But going to PALS certainly has helped, I will have to continue shouting until I get the treatment sorted.  Mums funeral is on Monday, family and friends are very supportive,one of my brothers has taken on most of the details as we felt I needed to concentrate on me. Cazzy    ... View more

Oh yes, waiting 61 days since this journey started and still no game plan and definately no start date for any treatment. I eventually went to PALS and got them involved. I now have another appointment of Fri at noon. No guarantee that they will not cancel that one too. Head up and start shouting if you're not happy. x ... View more

Hi, I had both first the CT then the MRI, both are doable. The nurses made sure I understood everything. Still waiting for the results and as always waiting is the worst.  cazzy ... View more

Mum died tonight, very peaeful. Night all x ... View more

Mum rallying, but in HDU isolation ward. Cazzy X ... View more

Hi, Went to PALS, as I was in hospital with Mum. They suggested that I go in person to the breast clinic and insist that I'm given an appointment for Fri 11th, if not able to go back to them. Went saw the receptionist who said already fully booked cannot get on the Comp, but that I was on the pending list for a cancelled appointment next Fri, but still would not know until Weds/Thurs. Far too tired and upset to be coherent so will get back to PALS. Cazzy ... View more

  went for a routine mammogram on 7.3.18, called for a biopsy on 19.3.18, reults of biopsy 29.3.18 ct scan 11.4.18 mri 7.5.18 possibly a meeting on 18.5.18 to tell me the course of action to be taken so not even begun treatment yet. Any help.  ... View more

The bleeped words began with an S and ended with a T.   S--T ... View more

**bleep**ty **bleep**ty **bleep** **bleep** Day. Started well went to work . recieved phone call from sister in law saying Your Mums OK but. It turns out that Mum had a fire in her kitchen. When we got there Mum very breathless, Fire smoke only, and very scarily confused. So we took her to the local hospital at 10.30. Several  hours later and many tests later she was admitted on to an emergency ward. Suffering from a severe infection and dehydration. So far so good Mum in safe hands, 6.30 whilst still in hospital and overlooking the BCcentre I recieved a phone call from my BCN. Wait for it........they have cancelled my appointment on Fri.AAAARRRRGGGGHHHH, because the MRI report had not been written. So though the Dr who requested it and can interpret it was at the MDTM as it was not written it would not be discussed. AAAAARRRRGGGGHHHH. They will discuss it next Weds however they are fully booked on the Fri AAAAARRRRGGGGHHH so could not offer me an appointment . I did get upset and angry, thoiugh talking as quiet as possible in the loo of my Mums hospital  room.  So yes they will see me on Fri but cannot give me a time AAAARRRRGGGGHHHH. So now once again in Limbo feeling pretty **bleep** stressed unhappy crying and going to eat a large bar of chocolate. A little note, the Fri meeting is to let me know what is going to happen, not when it is going to happen. An operation I will be added to a list, Chemo another appoint with an oncologist who will then sort out the mix and then I will start treatment . So no nearer than I was on the 29.3.18when I got the results of the Biopsy . Screaming very loudly Cazzy ... View more

Had a phone call yesterday 4pm ish, saying that my plan appointment, arranged 3 weeks ago, had to be cancelled. as there was a student training day. Another aaaarrrggghh,. However not too bad as the appointment was moved to 1.50, so later the same day. On a more positive note I went to a local breast cancer support group. Lovely ladies.  Looking forward to Fri to finally, hopefully, getting a game plan. Hugs Cazzy X ... View more

Had the MRI Yay. Asked the nurse how soon the results will be ready ? she quite happily said 2-3 weeks. AAAAAHHHHHH. I said that the MDT meeting was on weds and my appointment to hear the plan on Fri. She said not to worry the Dr who requested the MRI would be able to see it on her computor on the weds, so hopefully a plan will be agreed on. Lovely day today. hugs cazzy  ... View more

MRI this afternoon, this has taken an age to come around. Fingers crossed they can keep on top of it and discuss on Weds and finally on Fri give me a game plan. Waiting 7 weeks for action. Hugs all, enjoy the bank holiday. X  ... View more

Hi Floss62, Ok day, very busy yesterday as the person I job share with went off sick, so I covered all afternoon til 6pm then dog walk then early to bed. So time well filled. I went through chemo 12 years ago and used the cold cap and I did not lose any hair above the neck. I did buy myself a wig which I still have. Last used by headmaster playing a pantomine dame for the kids. I know I will be having a different chemo this time I will opt for the cold cap again. I have already bought headwear. I went on Amazon and looked for Hijab headwear, a tip from someone else on this page. Have a look cheap cheerful and puts me in control, my choices. I will also get another wig, short style, not sure about the colour yet, loads out there. Cry cry dont keep it in you'll get a headache. Best out, you can't be brave all the time else it will come out in another way. With me I was brave, then my son didn't cook me garlic bread just his own, oh that was it cried and cried over something really stupid. Crying too helps to get rid of problems in your head all washed away, with me anyway,. Lovely weekend ahead, bought myself an old fashioned deck chair. If I am going to have to rest, haha, over the summer I will be comfortable, so treated myself, i'm worth it Wishing you well hugs Cazzy.  ... View more

Hi Floss, My tumour is 6cm and in my lymph nodes, not sure yet if it has got any further. I too am HER positive. Not been given a game plan yet, having an MRI Mon. But I believe I will be having the same as you, in the same order. I have accessed a Living with Cancer course which will cover diet, lifestyle, exercise, maybe there is a course need you you can get to. Mine is being run by pennybrohn.org.uk it is free and you can take someone to support you. Stay in touch it appears our journies will be following the same time and course. Hugs Cazzy ... View more

Waiting is the worst, once you have a plan you can work forward. Twelve years ago I had a Lupectomy followed by Chemo. Both were doable. You have to be kind to yourself and make time to rest. Stay on this site, you will find lots of help and support. Hugs Cazzy ... View more

Hi, Just had a phone call from my BCN who thanked me for letting them know the time and date of my MRI as they can chase up the written report from the Liver specialist. Because as that Mon is a bank holiday the specialist will not see the MRI until the Tues, at the earliest, then the report has to be typed up and sent.to the multi disciplinary team, who meet on Weds . My appointment is 9.20 on the Fri. The nurse was kinda warning me that they will try their best and be proactive they may have to delay my appointment. So that makes it 7 weeks so far and still waiting for a plan. I can feel my head going down, it is getting more and more difficult to be positive.  Upset, Cazzy ... View more

Morning, I too find during the day ok to manage. I also am lucky enough to drop off almost immediately when I go to bed. I do go to bed early, about 9pm and I read a little before sleeping. I find then that I wake up in the early hours about 4.30 ish, and my first thought is I have cancer. I have stopped getting angry with myself for not being able to sleep and accept that for a while my sleeping habits are altered. I dont feel tired during the day, I do take multi vits and manuka honey. I have found using the serenity prayer also helps, as I examine what I can do in this situation and what is out of my hands. Once I have that sorted I am less anxious. Hope your days go well, hugs Cazzy  ... View more