Hi guys sorry for your woes and tribulations today & I have some to add to the mix. 8 hours at the cancer clinic:waited 1 & a half hours for blood test as people who book it don't know the nurses won't do it as they are training!!!! I checked 3 times they wanted me in at 8.30 & they kept saying yes. Good to go then allergic reaction number 1 Nowhere near as bad as last week I could see it coming. We went for it again and had another reaction. Seems that the end of Paclitaxel no idea what's next. They wanted me to wait till Wed week and I said no! I need to know now. Will be waiting for their call tomorrow and will ring if not. That's the thing Christine. It's totally awful that we have to be on the buzzer with our treatment but I think we need to. However if I'm feeling rough it will have to wait. I ring Macmillan for expert advice, then Breast cancer care & then my breast cancer nurse so I can ask the right questions. You seem really on the ball but it is so hard as they are the experts but they do need a kick up the bum sometimes. A doctor said to me don't do anything unless you are happy with it, seek advice & tell them it's not clear. When I was in hospital last week I said I was concerned about stopping the blood thinning injections. Even though I didn't want to do them& I had pushed to stop them. Turns out pharmacist got wrong advice from junior doc who was not aware I was on chemo....and I met the pharmacist at an oncology meeting duh! (She was lovely and she did call me back 2 times to tell me I could stop which I can't lol) So still injecting ha8ve had to set up a reminder system to remember. Anyhoo in a weird place after all those steroids I had today to counteract the allergic reaction. Want to get you all a hug and will speak more tomorrow. Xxx
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