Breast Cancer Now Forum

Jasmine, thanks for updating us on your mum. Its very sad news to hear that the bastard cancer has spread to her brain. You must all be so sad, please send you mum my love and I have a HUGE hug for you too. No doubt this will be very difficult and little I can say will help that. I hope you have a strong support network around you both xxxxxxxxxxxx ... View more

Cherry that's amazing  ... View more

Dont feel you have to stop wallowing Claire, I will happily just climb in and wallow with you! Most days I can find time to be positive, but really this is wearing right? Did you watch the BBC dracula series? I feel like one of Draculas victims that's slowly having the life sucked out of me! Of course the plan is actually to achieve the opposite but  I'm just so weak. I look terrible! My eyes are sunken and red, my nose is swollen bloody and crusty, I'm really pale.  I think my teeth are even yellower! I dont say this for sympathy, obviously... more in solidarity.    Anyway, achievable goals. I have it in my head that when this is finished I'm going to climb to the top of the highest peaks of the UK. I've no idea if its achievable 😆 😆 , especially as I also have a hip problem that I'm getting scans for, but I'm going to have a lot of fun trying. And dreaming about them. Once I've done them I'm going to do an overseas challenge and raise  shed load of money for breast cancer... I'm a fundraising consultant by trade (amoung other things) so figured it was the least I could do.    But you did say achievable (and right now I struggle to climb the stairs, so mountains seem ridonkulous!)... so I'm starting small after being so weakened by chemo... I'm going to build up to walking 10k steps every day straight after chemo.   What have you thought about goal wise?    And in other news... I may have lost my fingerprints (identity?!! 😆 😆 ), but my hair is starting to grow back!!!   And most importantly ClaireL, dont forget that you too are amazing 😊 🥰 😊 🥰! ... View more

Hey Leaw,   Interesting to hear your heart is racing on tax 8 days post. I'm also 8 days post and get the same was worried it's my heart, even though it's been checked loads.    Weirdest side effect to date... my fingerprints have gone 😳 😳 😳 . I noticed that (after 2xdocetaxol) my fingerprint has stopped working on my phone, and I posted on the younger womens breast cancer forum (any of you on there?  ) and is seems its a thing!!!! Weird.   Getting really fed up with this now. Come ON spring, when the sun starts to warm us all and we will be moving into nicer territory!!   Xxx ... View more

Oh Kath what a gorgeous pic!! Sorry, yet not surprised to hear your op has left you feeling sad. We are going through so much. General anesthetics drugs can also cause sadness I think? Not that you need any more excuses.   My son to be 11 year old with probably want to do anything that's linked to gaming 🙄 !! And spending my dwindling funds!!! Bless him, like most kids he is generally planning his birthday all year round 😆 ... View more

Whilst it's been the hardest thing I've ever done, and it feels like it's gone on FOREVER it weirdly feels like it wasnt tgst long too. Does that sound very weird? 😂 😂   I also have more treatment to come... surgery in feb, shed loads of radio, then h/p til oct and hormone treatment until forever. But chemo has been so crappy I want to do something to mark this bit ending before I start the next bit.    3rd birthday eh?! Sounds fun ( and exhausting !). I was reminded by my son that his 11th birthday will be about the time I finish active treatment this week. Will have to put some energy aside for that!!!   How are you feeling about chemo ending Clare?   ... View more

Happy new year! How are you all?   I'm one week after my second round of docetaxel/h/p. They halved the dose so ive faired better and nowhere near a hospital so far!!! I have the date for my final chemo... 15th jan. Been thinking how to mark it, and I think lunch on the third week when I'm officially out of side effects.   Xx     ... View more

Yeah go on Kath, send us photos 😊 😊 😊 ... View more

How do we share numbers for a what's app group on here then shi? X ... View more

I am still in hospital, with no sign of being allowed home until next week. Diarrhoea isnt responding to any drugs, and is continuing to be pretty bad... 11 times so far today and counting! I had an infection on top of everything too, although that seems to getting better.   I had oral thrush and ulcered nostrils and lips. This is all easing a little, but my hands are on fire! Itchy red dry rash and peeling.    My onc indicated they would reduce tax dose, but consultant today suggested I shouldn't have it again as it clearly doesnt agree with me.   Hows everyone doing?  Good luck for Monday Kath. ❤❤       ... View more

Are you on docextol too Claire? Sorry, you have probably said 🙈 . My next one is 27th dec, so at least I should be reasonably ok for xmas day.    Interesting what u say about plasters... I normally have very UNsensitive skin but seem to have reacted to  plaster they used last week at chemo. It's really red and itchy. Is that a chemo thing do you know? ... View more

Morning.   Not gone so well for me this cycle. The diarhea started sat, 2 days after docextol. Severe to say the least, over 20 times on sunday!!! By Tuesday I was admitted to hospital for fluids. Still have it, still here. I contracted an infection too so now having iv antibios. Goodness know when I will get out.    I missed my little girls nativity, which made me sad. But otherwise at least I'm in the right place. My neutrophils are playing ball thank goodness. Staff are lovely. Food is atrocious... and I have oral thrush so cant eat much anyway.    My onc said we will reduce the dose next time.   Sorry to hear your tummy is affected too Emzlew. Once I'm outta here we can meet up to talk dirty about Dox, bloody stuff!! Although I think I would still have it over fec!   😊 😊     ... View more

Crikey, I wish my monthlies would DO one! 🤣 🤣   I'm much better on D/h/p than on FEC so far... long may it last.   EMzlew, you might just get them back in before the mayhem of xmas holidays 😉   Mortimer is only 1.5 hours from me... if driving is good for you, and you fancy company/coffee then I'm happy to try and meet outside swindon in a couple of weeks. Obvs happy to.meet anyone, but I think 45mins driving is prob my limit.    😊 😊   ... View more

Hi Darla,    I had my first herceptin this week. I was told you have it over a longer timeframe for first dose in case you react. Then after then know you are ok with it they whapp it to you over a quicker time.    I have it alongside doxetaxol, and I'm as I've already also had 3 x fec chemo its hard to tell which side effect is from what !!! But I've also been very cold.    Much love xxxx ... View more

Thanks Jasmine that's helpful. Interesting about the hairloss, I was expecting it to start growing back on tax, but maybe not. I still have eyebrows, so maybe I will start saying goodbye 🤣   Love to you and your mum xx   ... View more

Morning.   Emzlew I am Indeed half way through indeed, and I think its definitely affected my mood. My periods have been affected and I think I'm also very hormonal. That has passed this week and I have also had my h/p/ doxetaxol. So actually I'm more than half way now. I didnt realise until I walked out of chemo yesterday how frightened I had been about changing drugs.    I am so much better on T so far, although it's not even 24hrs. I'm driving, managed to sort my own drugs and sort broke, and ho on the school run. No nausea! I'm ready for things to hit at the weekend, but feeling like myself has given me a massive boost emotionally!!!    So Emzlew, keep on trucking lovelyone. Once this round is done, your kids get better and your cold shifts you will get back to yourself.    Where are you based?   Wish we weren't all so spread out.   Clare doery to hear about your aches, I'm prepping my head for these but its good to hear you have managed on painkillers.   And a final thought... everyone keeps wanting me about the runs on taco... and I'm nodding publically like it sounds terrible but actually nothing sounds nicer right now!! 🤣 🤣 🤣 🤣 🤣 🤣   ... View more

Hey Emzlew,   Sorry to hear you are struggling... I'm at exactly same point. Start T and h/p tomorrow. My kids have given me a cold, and I feel like crap. I cant stop crying, not in a depressed way.. just in a really sad way. I'm really scared of doxetaxol. I feel very strongly, in a toddler tantrum footstamping kind of way, that I dont want to go in tomorrow!!    I was under the understanding that I'm getting T tomorrow, and like jasmine's mum, i have to stay in for 6 hours to be monitored. Then back thursday for another 6 hours.    I think it feels particularly hard because it's been going on so long, and has so long to go. Although i realised the i can now say, chemo finishes next month.. and that feels good.   Once we have got through this next round, I reckon we are on the home run.......    😘 😘 😘 ... View more

Oh CureDars that sounds rotten! Fingers crossed your infection passes soon. No fun to be in hospital? Shame you arnt in Gloucestershire or I would pop in and bore you with my own chemo woes 😆   Something to distract you... I was told in chemo that each bag is over 10k!!!!! We are so totally worth it!!! 😉 😘 🥰 ... View more

Morning Kath,   Will be thinking of you weds. Dont we now live in a funny old world where everything seems to spin without us whilst we poison, burn, chop and wait?!! The fact they can just take the loblule out is very hopeful. Really hope you are coping.    Much love xxxx ... View more