Breast Cancer Now Forum

Hi Redfos,   You are very welcome here xxxx I'm dashing to onc appt but wanted to say hi   ❤❤❤ ... View more

Oh Kath, you must be very scared. Much love ❤❤❤❤❤❤❤❤❤❤❤ ... View more

Hi Cheryl. I felt fuzzy headed day 3, and I got worse to the point I couldn't really lift my phone. No way I could have driven. But I just gave into it and it was ok. Xxxx ... View more

Hi Leanne and Grassy!!    I'm er+, her2+ and on FEC-T every 3 weeks.  Dose 2 on weds.   Lou xx ... View more

That's amazing AJ72, what a fundraising result!! Glad your buzzing about your baldness. Have you felt rain on it yet? Very curious sensation!!   I found shaving it off very liberating. My daughter had two lovrly little girls over to play yesterday. When I took my hat off in the car they stared hard and one, in the earnest way kids do, said " people will see you, you could get a wig". The other thought hard and said "you look better with hair". Bless them. I think I probably do look better with hair!! But I'm good without it, and I'm good not looking my best. Because I'm alive! And I'm enough just as I am.   That said, I was rather inspired seeing Tilda Swinton looking bald and beautiful in Marvel's Endgame. I thought I might embrace the look and dress up as a wizard for 6 months. The kids didnt think it was such a good idea!! 🙄 🤣   I had no pain with injections but was warned of very bad bone pain. Call the helpline though, just in case, and to get pain relief.   And I dont think we can share photos on here, which is a shame but I guess it's a bit public. We would have to move onto whatsapp/facebook for that.        ... View more

Hi Emma,    Another martial arts fan eh? Nothing like punching something really hard for stress relief eh?! I managed 15 mins today 💪 💪 🤣   Mine started falling out on weds, so I got the kids (8&10) to shave it with clippers. It was actually quite fun. They shaved me a silly style first. I wasnt sure how I would feel but actually I'm ok with it. Except I just walked out in the rain and the feeling was very odd! 🤣 🤣   This weekend is my 'good' one before it all starts again next weds. So I've devoted it to making sure my family have a really good time. Playdates and sleepovers for the kids, and I've shipped the parents in laws in so my husband can go to a really exciting martial arts event. Seeing them all happy will make me very happy. And I think I will do some cooking cos that makes me happy too.    What's everyone else up to...?  ... View more

Evening!   @jasmine I had the injections. They prick slightly but dont hurt as long as you plunge very slowly. I really hated doing it though. And I had side effects, but I'm generally sensitive to medication.    I am due on this week and have had a tiny bit of spotting but consistency and volume are different. I'm watching for a few days before getting it checked out. 41, so expecting medical menopause.    Two trips to the chemo helpline this week. Sat because I had a uti and then a sore throat.. they discovered I was severly neutrapenic.. 0.09!! That was terrifying, but all has been fine. Weds I was back in because I have a red rash appear.. they weren't too worried but I was thrilled that my nutrafil were already back up to 0.7. So still neutrapenic but going in the right direction!!   This week I have been to yoga at Maggie's and today I managed 10 minutes kickboxing... that's a result as I'm still pretty weak!!! My husband owns a martial arts club and we have decided to start a free weekly 'kick cancer' session for anyone affected by cancer. It's very good for physical and mental health and it's really hard to find aerobic excersise that's suitable for cancer patients. Idea is to let those whosoever ones have cancer come too. No doubt ( one of my professions is a fundraising consultsnt) I will squeeze some fundraising off the back of it too... maybe a kickathon of some sorts.    Anyway, this is my 'good' week before round two next week. So I'm trying to do normal things!    Oh and my head hair is coming out now... really hope the lady shaving her head keeps the thick blonde hair until the shave... good luck.. you have my full respect for making that so public!!    Xxx     ... View more

Evening!   @jasmine I had the injections. They prick slightly but dont hurt as long as you plunge very slowly. I really hated doing it though. And I had side effects, but I'm generally sensitive to medication.    I am due on this week and have had a tiny bit of spotting but consistency and volume are different. I'm watching for a few days before getting it checked out. 41, so expecting medical menopause.    Two trips to the chemo helpline this week. Sat because I had a uti and then a sore throat.. they discovered I was severly neutrapenic.. 0.09!! That was terrifying, but all has been fine. Weds I was back in because I have a red rash appear.. they weren't too worried but I was thrilled that my nutrafil were already back up to 0.7. So still neutrapenic but going in the right direction!!   This week I have been to yoga at Maggie's and today I managed 10 minutes kickboxing... that's a result as I'm still pretty weak!!! My husband owns a martial arts club and we have decided to start a free weekly 'kick cancer' session for anyone affected by cancer. It's very good for physical and mental health and it's really hard to find aerobic excersise that's suitable for cancer patients. Idea is to let those whosoever ones have cancer come too. No doubt ( one of my professions is a fundraising consultsnt) I will squeeze some fundraising off the back of it too... maybe a kickathon of some sorts.    Anyway, this is my 'good' week before round two next week. So I'm trying to do normal things!    Oh and my head hair is coming out now...   Xxx     ... View more

London's cool with me. Easy to get to and I'm often up there for work.  ... View more

Actually, although may seems ages off, it is nice to have a point in time to think about when this is all over.    I agree that finishing chemo is something to be celebrated, but my surgeon indicated there would be as small a window as possible before lumpectomy, so getting this small window lined up sounds tricky  ... View more

I finish chemo in Jan, if no delays. But then have surgery and radio. I havent been given timescales for these but could probably find out.    Where do you all live... I'm gloucestershire ... View more

My husband, who has perfect timing at knowing the bits he can laugh about, and the bits he cant, says I need some kind of tiny Hoover constantly stored about my person, so that I can quickly suck up any stray piles of body hair that fall out in public. This image makes me giggle so much I'm generally okay about the baldness that's looming.    Although if my underarm/upper lip hair doesnt fall out too... I'm going directly to the European court of human rights.  ... View more

Hi smclaire     Sorry you find yourself here but as you do, it's good to have you 'onboard'. I'm with you about feeling like this will never end. I've had a full on treatment plan from the get-go. 6 FEC-T, 12 months herceptin/pertuzumab, surgery, radio, then 10 years hormone tablets. PositiveLou has a plan to have climbed to the top of the UK's 4 highest peaks by next xmas, and then to conquer an international peak in 2021. But, on low days I worry that this will never end, more things will be found, and i will be constantly on treatment until it finally spreads. It is a rollercoaster indeed. Yesterday morning I could hardly raise a smile, nothing felt worth it. But today I'm off to the park for a coffee and leg stretch.    @Kath that's a lovely way of putting it about the warm feelings. It's so true, the out pouring of love and kindness has really touched me too. Although sometimes I find it overwhelming because I'm like '**bleep**, this must be serious', or the realisation hits that I'm THAT person, the one with cancer that everyone rallies round! But, I totally agree with you that the beauty in this nightmare is feeling the warmth of humankind. Even though, cocooned in love as I am, I do feel desperately lonely too at times. As much as they care they can all go 'home' and I cant.    @smclaire, are you on the younger womens breast cancer board thing on facebook? There are lots of positive stories shared from women who are in similar positions to yours.   Much love to you all, PositiveLou ( LowLou has done one today 😊 )         ... View more

Ah, sorry I hadn't clocked you have  port. I dont have pic or port, dont know why but I'm going to ask.    Nope, no greasiness here. But my body hair is starting to come out 😳 going to have to make sure I wear trousers with elasticated ankles to catch it all 😂 😂 😂 😂 😂 😂   ... View more

This is what I mean. .https://www.boldbeanies.com/products/womens-picc-line-sleeve-cleo-pink ... View more

I had chemo 11 days ago so I'm in prime neutrapenic territory. Last night the dr said they worry less about viral colds, its bacterial infections that can be more serious. So, fingers crossed your cold comes and goes with no added dramas.   ❤❤ ... View more

That's horrid not to sleep ClaireL, can you buy some kind of sleeve to keep it safe and in place? I dont have a line so dont know if that's even a thing.   Thanks for your kind words. I have been overwhelmingly surprised at the support and I love I have recieved from friends but still seem to feel so lonely.    Xx ... View more

Hi folks,  How are we all this weekend? Lots of love to the lady who just had chemo and slept for 17 hours!    I have had a crappy few days. Feels like a new drama every day and my mood is dropping daily. Friday I was diagnosed with a uti, then yesterday my throat got sore and a gland popped up. So I spent the evening in the chemo helpline unit. They were crazy busy with several ambulance admissions and one poor woman screaming for ages whilst they tried and failed to get a catheter in. It was horrid.   Eventually I was sent home as they thought it was safer at home. I'm severely neutrapenic with levels of just 0.09. My throat hurts to swallow and my temples are pounding. But I dont have a temp so gotta keep a sharp eye on that.   Just cant stop crying. Went for a lovely walk in the woods yesterday with a good friend, but fear I over did it and brought on the sore throat.    Sorry for the glum post. ... View more

It certainly will... I will walk every day now and be back up on the hills next week. Not much that stops me getting out into nature 😊 😊 😊 😊 ... View more

Had to share lovelies... I just walked around the block. 🎊 🎉 🎊 🎉 🎊 🎉 🎊 🎉 and the sun shone on me 😊 😊 😊 . Its such a huge difference from yesterday and I just know I will be able to go a little further each day. It's a small win, but I'm taking it!!! Onward, upward ( until round two 🤣 🤣 🤣 ) ... View more