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Jo22
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since
02-07-2020
121
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01-08-2020
04:33
1 Hug
Excellent news Claudia. Fingers crossed for Monday. Lots of hugs, Jo xxx
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01-08-2020
03:55
2 Hugs
Hello everyone, I was diagnosed with invasive ductal cancer in June (Left breast, 1 lump 16mm, grade 3, ER/PR+ 8/8 HER2-) . I have dense breast tissue so they did an MRI after the ultrasound and found another lump slightly smaller but the same type. I had a lumpectomy and sentinel node removal 10 days ago and had the results yesterday which showed no lymph or vascular involvement... so far yay. But there was an area of DCIS found which they hadn't picked up on any of the scans and they found it in the margins of the tissues they cut out. So they want to re-operate and scrape some more away. And if there is still some detected during the pathology tests they will suggest a 3rd surgery to do a mastectomy. And all this comes with a 14 day self isolation each time before and after. Has anyone else had this? I'm concerned that they aren't going to get it all as they don't even know where it is and therefore how do they know it isn't in both breasts if it isn't showing up on any scans? I'm leaning towards mastectomy but am i overreacting? I have to talk to my nurse again obviously but just thought one of you kind ladies might have experienced something similar. Thanks in advance, Jo xxx
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01-08-2020
03:42
Hello Louise, I got my results yesterday... so some good but a bit of bad news. Good is that it's not in my lymph nodes nor blood vessels. Bad news they found an area of DCIS attached and they found it in the margins of the bit they removed. So they have to go back in to do a badly termed "scrape". More bad news I can't have it till 21st aug & I have to self isolate for 14 days all over again. I'm concerned that the nurse said they didn't know the 3rd area was there as it hadn't shown up on any scans so I am probably going to get a 2nd opinion and may opt for mastectomy. Plus who knows it's not also in the other breast. Lots of questions. How are you doing, ready for Monday? xxxx
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31-07-2020
07:17
Hi, My husband was there for the initial diagnosis and there haven't been any other appointments apart from tests and surgery. I have my pathology results today following lumpectomy last week and my husband is ok to come. I don't think they'd have a problem with facetiming/dialing in, it just hasn't come up for me as yet. All the best, Jo x
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30-07-2020
10:58
Hi Claudia, great to hear from you. How are you? I'd lost you, how are you doing? Did you start chemo already? Fingers crossed for tomorrow that there is only localised infection and they can carry on. i get my pathology results tomorrow which I am anxious but realistic about. I am here if you need a shoulder for anything xxx
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30-07-2020
07:31
1 Hug
Good to hear you are doing OK, Susan. It's a slow process I think. I over did it on Tuesday and paid for it yesterday. Back to the exercises only and trying to rest. Nice that your niece and come and do your hair. I would love a hair cut, I had to go into pre-surgery isolation just before the hairdressers were open again. I look like a banshee! Should get my results tomorrow which will dictate next steps. Any news on your results? Take care, happy hair do and enjoy the sunshine this weekend. 😎 Jo xxx
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30-07-2020
07:25
1 Hug
Yes I think something has changed as i didn't get a notification when you replied either? Great that it's Monday! And the tests are local - that would be a pain to travel for those as they take 5-10 minutes. It's funny how covid style (I'm stealing that one!) is becoming so normal for us. I wonder what it was like to have all the support groups, massages, manicures etc. during this. I think it would have made it much more manageable to be with people going through the same thing and to have a few perks lol! I'm loving being back with the family although I did way too much in the garden on Tuesday and paid for it yesterday. I've got my results back tomorrow so fingers crossed they go the radiotherapy way and not more surgery and/or chemo. Bit anxious but it is what it is. I'll be in touch over the weekend. Enjoy the sunshine 😎 xxxx
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30-07-2020
05:10
Hi Louise, Just checking in on you. Any news on tomorrow? I've been thinking about you lots. I do hope you get some progress soon. Lots of love & hugs, Jo xxx
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26-07-2020
07:08
Hi Louise, I do feel much better... and fresher, thank you! And I am back with my family which is glorious. Sorry you've had a worrying week, it sounds like so much is up in the air, which must be hard. If I can do anything to allay your fears about the main hospital and increasing your chances of catching COVID I would say that if they are following the NHS supergreen guidelines it should be highly unlikely. The process with me was military style. It was like I was a VIP. They moved people out of my way when i had to go up for my wires putting in and radioisotopes. We had a separate entrance, waiting area & post op ward. It's never going to be perfect but I wasn't worried at all, I felt very safe. The nurses working in that area were there for the long haul and would not be working anywhere else during the supergreen rules phase. And even if you need the ICU at least it's right there. I would imagine they are under pressure to get you on a treatment path now so hopefully it won't delay your SLNB any further. My fingers and toes are tightly crossed. Sending you huge hugs Louise. xxxx
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25-07-2020
12:45
Hi Susan, I also had surgery on Wednesday but just one side (diagnosis 2x lumps Grade 3, ER+ PR+, HER2 -ve). My armpit area is the most sore but the breast not too bad I guess I depends where they cut? Mine was 5 o'clock left breast. And yes I'm still blue but I'm wearing a front fastening bra 24/7 so don't have to look at it too often. 😁 I am allowed a shower today which will be bliss. Have you managed the exercises yet? They are quite hard initially as it hurts but I'm trying. Take care. Jo xx
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25-07-2020
12:37
Hi Laurabelle, Sorry to meet you through this forum but it really has been a great help to me and hope it will be for you. I was diagnosed in May invasive ductal BC and have just had surgery (lumpectomy & sentinel node removal). Your diagnosis is no doubt overwhelming right now and it will take time to come to terms with it. I'm here if you need to chat. Stay strong & lots of hugs, Jo xx
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25-07-2020
12:25
Oh I'm pleased its going OK for you Mel. Had my surgery on Weds & recovering well except for the obvious pain & tiredness. Only 2 more sessions for you then? That's great. Are you doing ok? Jo xx
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25-07-2020
12:22
Hi Louise, Thank you! It went well by all accoutres 2 lumps removed and 3 nodes. Sore & tired and have been very groggy from the anaesthetic but coming round now. I'm allowed a shower today (72 hours) which will be marvellous! How is your pre-op planing going? Do you have a date yet? Fingers crossed it is soon. You doing ok? Jo xxx
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20-07-2020
07:05
Aah yes my friend recommended Working Moms too! I'll give it a go, thanks. 👍 One of the shows I watched was Motherland which is a similar sort of thing I think but based in the UK. Gosh, sounds like you have a real plateful in terms of your other condition. I am sorry it's complicated and I do hope you get a clear plan soon. I think you mentioned mastectomy before, how are doing on your decision for (or not for) reconstruction? Are they even offering it because of covid? When this all started I was all for a bilateral mastectomy and getting some new pert boobs - thank you very much. 😃 Yes a step back is definitely a good thing. Take some time out, while they sort out the details. ❤️
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20-07-2020
05:46
Hi Louise! So nice to hear from you! Sorry I was absent for awhile needed to de-cancer my thoughts for a couple of days. With the isolation & rain I was slowly going crazy but totally fine now after watching some bad but funny films & box sets. Great that you've got your hubby at home full time and obviously your daughter too. Really good news on the tumour sizes and grades. I presume lumpectomy & radiotherapy then, fingers crossed? I'm starting to get nervous about my op on weds but also keen to just get started. 2 lumps & sentinel nodes all being well. I'll let you know how it gores. Take care & I hope they give you some updates soon.. Jo xxx
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16-07-2020
07:30
Hi Louise, I was thinking of you all day, it sounds like it was very hard, I'm sorry. But you are further along your, for want of a better word, journey, and have more info. But yes the waiting is the worst of all. Good that it's HER2- fingers crossed on the fluid. Sorry to ask and you don't have to answer, but why aren't they doing the mastectomy at the same time as your node removal? I'm so sorry you have to join the complete isolation gang, it is hard not to get the hugs and human contact but it does give you time to process all the things going on. I found being allowed to "just be" with no distractions was therapeutic and I wrote a lot of things down to get it out of my head. Take care. Jo x
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15-07-2020
02:31
Hi Mel, Just checking in on you. How is radio going? Not long to go now I hope. Jo xx
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14-07-2020
07:03
1 Hug
Thank you, that's really lovely of you. I might take you up on that number once I can stop the "crying on speaking" thing. Typing doesn't evoke the same emotions thankfully! Sounds busy at your house. How lovely to have them around you though at the moment. I'm lucky our 2 boys have been here too and will be for a while. One is starting an apprenticeship and the other off to St.Andrews in September. I bet you've got warmer weather down there, I'm up in the pennines in Yorkshire! It's as cold as March! Shame about your husband's company not being supportive, if i hoped for anything from this pandemic it is that people & companies show more compassion and understanding and value life & living more! Like you say he can't really come in anyway at the moment so here's a huge hug from me... HUG!!! to take in with you. Stay strong xxxx
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14-07-2020
06:51
Ah that's good to know, Claudia. I'm an ex- weekend rugby & footie mum so hopefully I'll be ok too. Fingers crossed the anti-sick meds keep doing their job 😊
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14-07-2020
05:44
Hi Claudia, Oh you poor thing. It must be so hard, I'm so sorry you are going through this. I'm so sorry we all are for that matter! Were you scheduled for surgery originally then or did they just put you on chemo straight away? Have they given you anti-sickness tablets? Did you have the cold cap? Take care, Jo xxx
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