Breast Cancer Now Forum

I like the idea of wearing different wigs Moijan to surprise people! My hair is coming out a bit but I'm sure it was the dodgy not as cold cold cap I had few weeks ago. At the same I e my bald patch has gone so it's growing back where it was thin. Very odd! 7 more anti b to go. Blimey hat sounds like a long haul. Hope it's sorted things for you. Sharon, the permanent drain sounds like it will give you lots of relief even though you are not over keen. Hoping it works well and you can just eat little and often till then. My cat is making worrying yowling noises like she's about to be sick so gotta dash and sort her out! Love Helen xxx ... View more

Hi - I am on Zometa too and I didn't notice any side effects - I have chemo at the same time and never feel flu like. And I ways drive home afterwards 🙂 Helen ... View more

Sharon - gosh hang in there. Glad you got a week off chemo. Hope you are getting some sleep. Xx FF - if I ever get to the states (wanna take the kids there next year!) I'll pop in for a cuppa! Xx ... View more

Hi Sharon.. how did it go? Hope you got some answers FF shame you are in the US and can't meet up with us! Which town/state are you in? Helen xx ... View more

Perfect, upstairs at the JL restaurant.. I've never been so just clarify for us Barton, shall we meet at the entrance to the restaurant which is upstairs inside JL? hxx ... View more

Me and my daughtr's Piglee Pie Cake (she loves pigs) yummy!  ... View more

Great idea Barton. How about we agree a general time of 11.30 outside John Lewis but swap mobiles via PM so we can find each other, and earlier if wanted.    Get PM-ing ladies xx ... View more

Moijan, you mentioned both knees be,ow are feeling different. The side of one of my knees, to the inside on the kneecap is numb, though when I press it I can feel it. It's odd. i want to keep on it too as do t want to go through the chemo options to quick so hope things settle I. Next few weeks.   Sharon - I just had my week off and now have been given 2 more weeks off then meet with onc and see how things are.  Hooe you get relief tomorrow, and another week off Erib? Or perhaps a reduction in dose? Whatever you decide, if to give it up I totally u derstsnd. Really appreciating that quality of life in all of this is vital. No point feeling crap - there are other ways and we don't know for sure what works and what doesn't.    Much love and hugs to all eribuliners and all those going through the crap that chemo is! Friends think it is just an injection and after a cycle or 2 think we are ok.. little do they know!,, xxx ... View more

Carolyn, your hug cupboard sounds fantastic, I think you should go into production and sell them!   Scratch and Smartie, I don't know how you can manage with swollen tummies.. must be dreadful. Bet you want to get a needle out and let some fluid out yourselves. It seems mean to keep you waiting, why can't they do it immediately?   moijan - interesting re what your onc said. Mine seems convinced the numbness is the Eribulin, as if it's the peripheral neuropathy moving up from the feet up the legs.   re the tumour markers, I get the impression that for some people the tms really reflect the cancer and for others it doesn't.  So if it is a good indicator for you then that's really useful. I just wish mine would give it a go if it can be used.     Hair.. mine has stated coming out a bit but I had a not-so-cold coldcap a couple of sessions ago and I think it may be that.  Meanwhile it is also growing back on my bald patch so it's a bit confusing!   M - sorry your friend is ill with lung cancer, I also have a friend with cancer caused by asbestos and he's going downhill rapidly. It's so dreadful.   xxx             ... View more

Hi Tournesol - can't imagine what it is like for you - I guess trying to get some peacefulness and comfortable acceptance of how things are.   I've recently started a mindfulness course where you spend a minute or 2 meditating and focussing on the here and now, not allowing all the internal chatter of the brain that we constantly do. Sounds whacky to some but I find it very calming and gives me a chance to move away from dark/sad thoughts into a lighter place. if you have the urge check it out on YouTube, plug some earphones in have a restful time 🙂   Anyway, thanks for being in touch and wishing you lots of comfort and light.   helen xxxxx ... View more

Bristol meet up.. let's confirm it then, 15th October it is :-))))   Did we decide a time? Shall we have lunch? Just a reminder that I don't need pushing around in the chair as they have electric ones so I'll pick one up when I arrive. You'll know I'm coming from the sound of.crashing shop fittings and screaming shoppers... I'm rather lethal in an electric scooter !   i don't mind what time.. shall we say 11.30 or 12.00? Anyone other preferences ?    How exciting, it's next weekend! Xxxx   ... View more

Hi Eribuliners I saw my onc today and told him that my feet and shins really tingly, numb and cold and that 2 days ago my knew went numb. So he said to take 2 weeks off chemo and meet again to review. The concern is that if the numbness continues it cold be permanent and if it gets worse I may lose the use of my legs. A bit frightened reallly, I've become really unstable recently. Anyway, also gave me 2 weeks anti biotics as lungs are really bad at the mo and feeling like I am heading towards another bout of pnumonia 😞 No good as off to Amsterdam in less than 2 weeks. 😬   How are you ladies doing?  Xxx ... View more

Bristol Meet Up - 15th is good for me too, or the 22nd. If we can all do 15th then sounds like better option 🙂 So is it Barton, bonariensis, Moijan and Carolyn? Have I missed anyone? ... View more

Sorry!! Been ultra busy and not checked in for a few days. I'm in bed upstairs and the diary is downstairs so promise to check avail for the 15th tomorrow 🙂 ... View more

yes bonariensis - you've inspired me to get bulbs. 🙂 It's good to reflect on how far we have come, milestones etc. Xx ... View more

Oh Scratch that sounds like a rough day. So sorry to hear that the onc said that. Trouble is it's easy now to fixate on the negative part and not on the hope that this chemo is working. We've got to cling on to hope. Like some said on the bone thread.. Definitely worth asking for a second opinion if you have the strength. Could you go private for a consultation - I heard it was £250 or so... Or ask your GP to refer you. ? You could ask hubby to research and make some calls to other hospitals.. but not book anything until after the results as I'm sure they would want to see them. Sorry.. You've probably already thought about this but just in case..   i think getting through these next couple of months is gonna be hard as you are on naturally anxious about it all. You might find it worth talking to a counsellor - easy to book a one off private session, who might help you get you head straight and take you to a calmer place until the scan results? I recently started looking into meditation, not everyone's cuppa but it can help to get your mind away from the constant internal negative thoughts/chattering that we all do.   We are here to listen to your worries and help you through this tricky bit xxxxx ... View more