Breast Cancer Now Forum

Another HER+++ girl here!! I have had no side effects from Herceptin at all, I recommend getting a portacath put in, to save your veins!! Best wishes to all Donna xx ... View more

Hi hjv123, I had to have the gcsf injections after my first chemo for the other 5 chemos because my White blood cells were really low! You can do them yourself or get the district nurse to do them for you! They are okay, but I will say they do make your bones ache because the injection works really hard on your bone marrow to produce more WBC. Best wishes Donna xx ... View more

Hi Runner-girl, So sorry to read that you are experiencing horrible panic attacks, I to have started having them, had a really bad one today that has made me feel not so good tonight? They are horrible and I'm not sure about you but to me I feel a loss of control, I also had my first one whilst driving home from work on the motorway and now I try at all costs to avoid the motorway!! I did see my GP but he wasn't really sure what to do or say, just said try not to be so anxious, easier said than done eh?? I do believe it is quite common to experience this after traumatic times in your life such as medical/life threatening illness, I believe that this year has been so tough with surgery, chemo, rads, Herceptin and now tamoxifen and the fear of breast cancer has all caught up with me, it was like a whirlwind and now it has started to settle as treatment starts to end, I think reality has started to kick in for me, and maybe this is the same for you? I do hope things start to settle for you and feel rest assured that your not on your own we are all in this together! Hope you get some help and reassurance from your GP Best wishes Donna x ... View more

Fingers crossed for you Cherub xx ... View more

Thank you Pammy for your really positive post, your cancer sounds similar to mine!! It is so nice when you read posts like this, best of luck to you Thank you Donna xxx ... View more

Thank you all for your responses, mine feels bruised and tender at the back and the bottom of ribs, I only feel it if I lean against it, bend over that way or touch it? I hope you are all doing okay, I just don't think we ever stop worrying?! Nymeria so sorry about the shingles that must be awful x Donna xx ... View more

Bump I am having treatment at the William Harvey, Ashford. Xx ... View more

Well I thought it was just me, I cannot remember the last time I had a full nights sleep?? I wake up between 2 - 4am, and then when I finally manage to go to sleep my 2 year old daughter wakes me up ha ha I to do do not want to use sleeping pills as my partner works away and I am on my own with our daughter and I also work full time and do not want it to have a knock on affect! I agree I think we just have to deal with it, just another side effect of the Tamoxifen, my view is if the Tamoxifen is doing it's job then I can deal with the side effects Best wishes to you all Donna xx ... View more

Hi, I started Tamoxifen the day after my last Radiotherapy as advised by my Oncologist! Weird how we are all told different times etc... Donna xx ... View more

Hi all, I am with axa ppp healthcare through my work and they have paid me £50 per any over night stay, £50 for each chemo and rads(although am still waiting for that) and they are paying £50 for each Herceptin but with the Hereptin they will not pay for more than 12 infusions? I must say though I've had a nightmare trying to get the money from them for my 18 rads they would not except the list of all appointments that I sent in, and have requested info from the hospital which is taking forever to be sorted out, I don't quite understand it as they requested a breakdown of my treatment plan from my oncologist which they have but still they request this info from hospital. Hope you all get your entitlements Donna xx ... View more

Hiya, I remember when I had my first FEC I got a very sore throat, cough and my glands were up! I ended up going to the out of hours dr as my temp was up, he done bloods and results the next day showed my White blood cell count was very low! Unfortunately your immune system takes quite a knock with chemo, I ended up having the injections every time I had chemo as my count was so low. I'm sure you are but keep an eye on your temperature, and if you are at all concerned give the on call chemo nurses a call that is what they are there for. (( hugs )) Take care Donna xx ... View more

Absolutely DISLIKE!!! It is so in appropriate and I made my feeling clear on the English Threads FB page but it was deleted!! DISLIKE ... View more

BIG Congratulations to you and you family xx ... View more

With trying to explain how I am feeling when I am NOT feeling so "positive" and am scared and being told NOT to be "negative" ( hope that makes sense) Not feeling at all feminine Being reminded of cancer everyday xx ... View more

Hi Daisygirl, My appt is 9.40 today so will miss each other, my appts have mainly been 9.00 or just after. They are a nice team the radiologists, very friendly. Donna xx ... View more

Hi, I am from Ashford, had WLE, ANC, 3x FEC, 3xTAX and having Herceptin for 12 months all at WHH and am having 15 Rads and 3 boosters at K&C am half way through with the Rads. Have posted about east Kent before but didn't get much response! Hi to those who are from this area Donna xx ... View more

Fluffie, I have also started itching after 5 rads wonder if it is the aqueous, think I might need to change to something different. I have also been using it to wash. Need to shop for something different I think Thank you everyone Donna x ... View more

Arghh!!! I've been using aqueous cream cause that's what the radiologists recommended?? Confused now?? Donna xx ... View more