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vivrog
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since
01-05-2012
101
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31-05-2011
09:07
Hi Elinda
It has crossed my mind that it could be the start of lymphodema and that is another reason I am worried about having the op on my shoulder as I know it may increase the risk. I have today made an appt with my physio as she is the specialist physio for breast cancer and seems to know quite a lot about lymphodema/cording etc. I will feel a bit more confident in her diagnosis of this new pain than the cons...daft isn't it??
Viv x
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30-05-2011
06:27
Hi Elinda
Yes I will definately keep you posted. I have to say I am getting more and more frustrated as the tight pain in my forearm is staring to really bother me. Can I ask if any one out there has had has this and if they found out the cause?
Viv xx
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29-05-2011
07:18
Hi Elinda
My cons just said that he sees this problem quite often in ladies who have had breast surgery, nodes removed and radiotherapy...but he has never said which bit in particular. I feel that it was the radiotherapy that triggered it all as that is when it all began.
Viv x
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28-05-2011
05:06
Well I had an appt with my ortho yesterday after having an MRI (ordered by onc to check for mets) Glad to say no sign of cancer but my shoulder is a mess. He gave me a steroid injection as a temporary measure but he feels it is too far gone for the injection to have any real affect so he wants to operate (keyhole capsular release)
I am nervous about having another op on my bad side because of lymphodema risk but I have soemtime to think about it. I have also developed in the last week a nasty tight pain in my inner forearm that only comes on when I stretch my arm out. The cons thinks it is tendonitis and has told me to take regular ibuprofen and rest it. I'm not sure because I wonder if it is cording but so far nothing to see.
All in all I am pretty fed up with my 'bad' arm.
Viv xx
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24-05-2011
06:15
Thank you all for your replies....Wow I'm glad in some ways I'm not the only one suffering but obviously sympathise with you all too.
I am 47 so yes I could just be naturally Menopausal. I started on Wockhart but changed to APS due to legs pains. My SEs are certainly increasing rather than lessening.
I will see how I get on over the next few months. I am due to see my Onc in September and may make a decision then if no better.
Much love
Viv x
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23-05-2011
06:54
Hi All
I am seriously considering giving up Tamoxifen. I finshed active treatment in September and have been taking Tam since then. I am increasingly feeling more and more unwell. I get the hot flushes etc but I also have a permanent headache, nausea and general blah feeling. I saw my Onc last week who advised that I take Evening Primrose which I have started and today I went to see my GP to get some Oestrogen cream for 'down below' and ended up bursting into tears...basically I want my life back! She has prescribed a low dose of beta blockers to help with the headaches which she says are hormonal and I am to go back to see her in a month to see how I go. I know I will have to give these things a try but at the moment I just wish I could feel normal.....rant over!!
Viv x
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12-05-2011
11:03
I was told to try the magnet but it made no difference and it was very inconvenient as it interfered with my laptop at work so had to take it off then anyway. I am now trying evening primrose on my oncs advice.
Viv x
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12-05-2011
10:57
I went to the Hop Farm festival last July on the weekend before my last chemo...I even camped!! I coped but did spend a lot of time sitting down!!
Viv xx
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05-05-2011
08:11
Hi Nicola
Yes it is a recent phenomena but I would say mine as more of a hint...I really feel like I wish I would just start a period as this horrible feeling I have now used to go away as soon as I started.
Viv x
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05-05-2011
07:24
I've been taking Tamoxifen for 8 months and I haven't had a period since last April after my first chemo. In the last few weeks I have been feeling really pre-menstrual ie headachey and tummy cramps. I am 47 and assumed I would'nt start periods again. Has anyone else experienced this?
Viv xx
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27-04-2011
08:26
Thank you ladies for all your replies. I think as you say it is an individual thing so I won't overly worry and just be sensible.
Also thank you for the link that was posted.
Viv xx
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25-04-2011
06:49
Does anyone know if there is a maximum weight we are supposed to lift if we have/or are at risk of lymphodema?
All advice says not to lift heavy shopping bags etc...but how heavy is heavy???
Viv x
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25-04-2011
06:47
Does anyone know if there is a maximum weight we are allowed to lift if we have lymphodema/at risk of it.
M
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25-04-2011
10:48
Just read 'The hand that first held mine' by Maggie O'Farrell and just loved it. My favourite books of the moment though are the Outlander series by Diana Gabaldan. These are set in 18th Century Scotland and in the 1960's too so a bit of time travel. They are very long books but I just get lost in them.
I too got a Kindle for Xmas and love it. I do use it as well as not instead of books....especially as the Diana Gabaldan books are not on Kindle yet!
Viv xx
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21-04-2011
01:45
Thanks Elinda...didn't think to connect the headaches with my shoulder!
I was back at my physios last Monday and I am due to see the Consultant on 16th May but have appt with breast surgeon on 12th May so I am going to talk to him as my arm has swollen a bit so maybe lymphodema has kicked in to add to the list!!
The headaches do feel like the ones I used to get when I was pre-menstrual (only worse) so that was why I assumed it was the Tamoxifen.
Viv xx
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21-04-2011
11:09
I've been suffering really bad headaches for the last few weeks. I have a low lying dull head most days but some days I am waking up with a pounding head. I have been taking Tamoxifen since September ( after chemo and rads). Could this be a side effect of this...anyone else suffering like this?
Viv x
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11-04-2011
10:26
Hi ladies
Thanks for all your comments. It is beginning to seem to me that the docs/physios don't really know what goes on in the shoulder/arm area after bc treatment. I too am getting very painful spasms in my breast/rib area which take my breath away along with all the shoulder pain and stiffness. My physio actually rang me today and said she would like to see me next week as my appt with consultant is not until 16th May so at least she is trying to help. Will keep you posted.
Viv xx
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08-04-2011
03:57
Hi Elinda
The appt is a private one..apparently he's very busy! I have decided to go to my GP anyway...if anything just to get something for the pain.
viv x
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07-04-2011
08:57
Thanks for replies. I have kept up my exercises but have got to the point that I can't do some of them now as too painful. I rang my physio today and she said i should return to shoulder consultant. I have rung hospital but earliest appt is 16th May. I have taken the appt but if it get's worse I may go to GP....unfortunatley as my BC treatment was all done privately I don't have a BCN!
Viv x
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06-04-2011
06:55
Half way through radiotherapy (mid Sept)I developed a frozen shoulder. After weeks of physio I eventually was referred to a specialist who performed an arthroscopic hydradilatation (basically steroid plus water into the shoulder joint to free it up). I had further physio and the shoulder improved dramatically. My mobility increased by 50% and the pain reduced by 80% 6 weeks later. I have carried on the exercises but the pain is slowly coming back, together with a new constant throbbing and sickly pain in my upper arm. My underarm and breast area is also still very tight and quite painful at times.
What I wondered is if anyone else has had a similair experience. I don't really know who to go back to on the medical side as the shoulder consultant wasn't really interested in the fact I had had breast cancer/surgery and I don't see my breast surgeon for another couple of months. I'm just frightened I will end up as bad or worse than before.
Viv x
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