Thank you Thank you everyone for all your input. I am hoping to get my comments/thoughts down on paper over the weekend and get the letter off to my MP. I really appreciate your input.
Tina - I totally agree with your re prescriptions charges for chemo medication. BCC have a campaign \"Prescription for Change\" pressing for free prescriptions for all cancer patients. I intend to highlight this to my MP. Apparently drug abusers get theirs free - I\'m not saying they shouldn\'t - but surely if they do then so should we!
Your example about car parking is well worth a mention - as your rightly say you are not supposed to drive home from chemo so there should be some system whereby people offering to help out don\'t get stung by an outrageous charge.
Roison - totally agree with you re the wig - certainly should not be postcode lottery - thanks for the input lizziecee.
Lionheart - I totally agree with you re the benfits system being a minefield - I will relate my recent experience at the end of this posting. You hit the nail on the head by stating that you need to know what questions to ask. I too was at the Marsden and despite the staff knowing I had a long journey every day (travel for radiotherapy cost me Ã‚Â£1000) not once did anyone tell me I could have some help with travel costs. No reflection on level of medical care I hasten to add. Your rant wasn\'t at all ill informed - it came from the heart from personal experience - this is exactly what I want to relate to my MP.
AliceB - totally agree with you there is no one source of info about benefits etc. My experience is phoning endless different places and getting completely conflicting info. Think it is a great idea to have someone resident on site in each and every hospital - somebody who knows about all the different Government bodies. I have had exactly the same experience as you - complete lack of communication between Inland Rev, NI office, benefits agency. Each one seems to have their own little bit and trying to find out all the relevant things from each place is like trying to do a giant jigsaw puzzle.
Celeste - Thank you for your comments. You are so right re terminal diagnosis coming possibly at the end of a series of complex and debiltating treatments. I think your comment \"You state that is is inappropriate to give a \'blanket waiver\' and yet you give a \'blanket inclusion\' \" is great and I hope it is ok with you if I use that. Benefit - I have found the whole system to be an absolute nightmare. Didn\'t know about the those on IB being returned to work with the aid of a computer programme - great bit of info. How crazy is the world getting?
Lizziecee - I think the scheme you have quoted that obviously works in Plymouth sounds great. It would be good if this could be done elsewhere. I shall mention this in my letter - I don\'t want it just to be a list of complaints but to also to be able to say what might work and help us all.
Suzee - thatnks - I am having similar problems to you re being self-employed. It has been a nightmare and nobody at any office I have spoken to quite knows what to do with me. I too could end up paying money out in order to claim some back.
Steph - Thank you so much for relating your experience. I too gave up my career to look after my children and have similarly found that it now exceptionally difficult to get help from the state. I agree with you that the financial stress relating to a dx of cancer is very difficult to cope with. It\'s bad enough having to cope with this awful illness without having to deal with financial problems too.
Joy - I am going to relate my problems re being self-employed in this posting and hopefully IF I ever manage to finally get it resolved it may help you too. You make a good and very valid point about the finance office being at the other end of the hospital. It is things exactly like this that makes it impossible for us to be able to get help claiming money. If you are feeling rotten the last thing you want to do is traipse round and round endless hospital corridors. Where is the thought in that for patient needs?! The comment you received from the woman behind the counter is simply outrageous.
Hassles I have encountered
I was self-employed doing domestic cleaning prior to getting cancer and numerous times I phoned the relevant places about National Insurance and should I be paying it etc - I particularly made a point of doing this regularly as I am divorced. Every single time I was told because I was getting child benefit I didn\'t need to worry as I was getting HRP (Home Responsibilites protection). This information was wrong - yes I was getting some NI credit but it wasn\'t a full-value \"stamp\". Just prior to diagnosis - all of 2 days - I got a job as a part-time teacher. I still intended to do my cleaning work so officially I was both employed and self-employed. I got SSP for about 6 months and then tried to get IB. I was told that I couldn\'t get IB as I hadn\'t paid enough NI (even though I had tried to in the past and was told that I didn\'t need to pay it) and therefore would only get my NI paid through claiming IB and not any money. I asked if there was anything I can do to improve my NI and was told that there wasn\'t - WRONG.
I saw a barrister last week re my on-going maintenance with my ex husband and she told me that I could pay back the missing NI and therefore be entitled to claim full IB. She warned me it would be a nightmare finding out.
Yesterday I tried to tackle this. I phoned my Job Centre Plus who told me that self-employed people can\'t claim IB. WRONG. I checked this out on the web site. I phoned the Benefits Enquiry Line who said that I could pay back my NI and then would be entitled to claim IB. They told me to phone the NI Contributions Agency, I phoned them and they told me to phone the Self-Employed NI Contributions Agency, I phoned them and they told me to phone the Job Centre Plus, I phoned them and they told me to phone the Inland Revenue, I phoned them and wait for it..... they told me to phone Job Centre Plus. All in all I spent 3 hours on the telephone, I related my problem from scratch every time. By the end of this I felt exhausted and totally and utterly frustrated. The system is dire - trying to deal with it when you are not feeling brilliant is just unbelievabley awful.
Joy - if I get anywhere with this self-employed stuff I will let you know.
It seems to me that although there are benefit schemes etc in place they are not practical or remotely easy to go about. Actually working through the system is a nightmare and something not to be undertaken when you are feeling fit and well let alone when you are undergoing treatment for cancer.
Once again - thanks to everyone for your help. If it is ok with you all I shall quote some of the things that you have all said. I will not mention any names at all.
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MP wants my comments - help please! MP letter
I clicked on a Macmillan link somewhere Ã¢â‚¬“ for the life of me I can’t remember where Ã¢â‚¬“ which took you to Macmillan Cancer Support’s “A better deal for people dealing with cancer campaign. Macmillan made it really easy to email your MP Ã¢â‚¬“ it had done a standard email with a gap for putting in anything else that you thought might be appropriate. Well, I did this, my MP wrote to the Minister of State, Rosie Winterton, quoting things that I said and making his views known. She responded and he has forwarded me a copy of this asking for my comments. It seems like too good an opportunity to actually get our views heard to let it pass by. I want to my best to make my letter worthwhile and would be really grateful if any of you have any comments to make.
Points mentioned in Rosie Winterton’s letter are:
The Government acknowledges that finance is an issue of great importance to people with serious illness. We are aware of concerns raised by Macmillan Cancer Relief, the National Audit office and the Public Accounts committee about cancer patients not claiming benefits to which they may be entitled.
The Government believes that good benefit advice should be available to everyone to enable them to make informed decisions about possible entitlement to benefit and, with this wider remit in mind, we are making good progress in addressing these concerns.
Officials from the Department for Work and Pensions and the Department of Health have been proactive in working to improve the way benefit advice is delivered to all patients.
The Disability and Carers Service has met with the Department of Health to explore practical ways of delivering benefit advice closer to the point of diagnosis. It has been agreed with PALS (Patient Advice and Liaison Service) that relevant information should appear on the PALS website with links to the websites of the Department for Work and Pensions and DCS to help signpost patients to relevant services. Some hospitals also now work in partnership with Citizen Advice Bureaux to improve the benefit information given to patients.
Our recently published White Paper, Our health, our care, out say: a new direction for community services confirms our commitment to providing better access to services which can tackle health, social care, employment and financial needs, including social security benefits.
Turning to the issue of entitlement to benefits, it is right and fair that people with non-terminal cancer have to meet the same entitlement conditions with regard to DLA and Attendance Allowance as people with any other diagnosis. Entitlement to DLA and AA is based on an individual’s care and mobility needs rather than their diagnosis and to waive the retrospective and prospective tests for cancer sufferers who are not terminally ill would result in one group of disabled people being treated more advantageously than other groups. It would be inappropriate to make a blanket waiver where a cancer diagnosis is given, as not all cancers have the same progressive or worsening prognosis.
The Hospital Travel Costs Scheme (HTCS) provides financial assistance to those patients who do not have a medical need for ambulance transport but who require assistance in meeting the cost of travel to receive their NHS treatment under the care of a consultant. We will not widen the HTCS to cover specific conditions as it is open to all based upon ability to pay for travel expenses and doing so could lead to health inequalities. Patients with a medical need for transport can have their travel needs met through Patient Transport Services (PTS) regardless of ability to pay.
It is for NHS organisations to advertise the availability of HTCS and for patients to avail themselves of it. Patients should be informed of HTCS in their appointment or admission letter or through leaflets and posters in patient areas. Patients on low incomes but not on a qualifying benefit should apply to the NHS Low Income Scheme to see if they are entitled to assistance. It is the responsibility of Primary Care Trusts in collaboration with local stakeholders to decide how local services are organised and patients supported.
Car parking and transport management are entirely based on local circumstances. NHS Trusts are legally autonomous and the provision of car park spaces is dependent on local authority conditions. These factors mean it is neither practical nor helpful to issue national blanket guidelines on car parking charges on NHS premises.
Many Trusts acknowledge the problems of long-stay patients and patients with critical care needs and their relatives and carers and adopt a policy of refunding car parking charges, providing temporary permits or granting concession rates. As previously mentioned , patients can get access to PTS regardless of their ability to pay. If they face financial difficulties, there area cashiers offices available at hospitals for eligible patients, such as those in receipt of benefits, to make claims for reimbursement of their parking charges through the NHS Income Support Scheme or HTCS.
It would not be helpful to single out cancer care patients for exemptions. It is for NHS Trusts to determine the criteria for offering exemptions or temporary permits based on the specialist care pathways offered at their particular healthcare facilities.
I haven’t had much time to think recently but the few thoughts I have had are
No mention of prescription charges
Not everyone had internet access and can access sites mentioned.
I would never have thought of going to Citizen’s Advice Bureau re costs of travelling to hospital etc
Not all cancer patients are terminally ill but all do have seemingly endless hospital appointments and have costs involved in travelling and car parking. Endless weeks or radiotherapy costs!
I had not heard of HTCS and certainly was not informed about it in and appointment letter. I had radiotherapy at the Marsden and I do not recall a single poster about it. The staff knew that I was travelling a distance every day but not once was I was told about this.
I have found the benefits office extremely difficult and unhelpful to deal with. Trying to sort out Incapacity Benefit was an absolute nightmare Ã¢â‚¬“ and this was just to get my NI kept up to date Ã¢â‚¬“ not to actually claim any money.
I would be really interested to hear other people’s views. I know that car parking has been mentioned in a thread somewhere Ã¢â‚¬“ if I recall rightly the cost was Ã‚Â£6 a time.
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Hi Vodkasue Hi
I\'ve been on tamoxifen since Feb 05 and I feel lousy on it. The tiredness is the bit that really gets me down. I can only drive short distances as I get sleepy and I just don\'t feel safe. Anything over half an hour is a problem. I itch from top to toe, I feel nauseous, headachey, fat, as if I am coming down with flu, horrible night sweats - I could go on.....
I have been backwards and forwards to my GP and oncologist trying to resolve the problems. My oncologist has told me that I can either take tamoxifen and put up with the problems or stop taking it and have an increased risk of recurrence.
At the moment I am sticking with it - I would (rightly or wrongly!) blame myself if I came off it and then got a recurrence. At the moment I feel I want to do my best to stop that happening. This is just how I feel at the moment - I may well change my mind as my quality of life isn\'t the same as it used to be.
A few things that have helped - taking it in the evening after supper has lessened the headache and fluey type problems. Not missing meals has helped the nausea - tend to carry biscuits around with me nowadays.
I take aspirin to counteract the increased risk of DVT (I also have blood that is more likely to clot so I have to be careful).
I have just asked my Dr to switch me to NOlvadex-D (\"brand\" name of tamoxifen) - different brands have different filler ingredients added to the basic tamoxifen. This has helped the itching quite a bit.
I hope this has helped you a bit - it\'s not easy to decide what to do, is it?
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Me too Hi Janet
I was a complete wreck before my yearly check-up - so stressed out. It\'s normal! Don\'t worry!
I even made an idiot of myself and almost started blubbing at the reception desk - they said they had no record of me and was I a new patient - having had 3 ops for breast cancer in the previous 12 months I was not amused.
Hope everything goes ok.
Will be thinking of you.
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Thanks for this.
In section 5.1 it is stated....
\"Early breast cancer is defined as non-metastatic primary invasive carcinoma of the breast. Early breast cancer in the HERA trial was limited to operable, primary, invasive adenocarcinoma of the breast, with axillary nodes positive or axillary nodes negative if tumours at least 1 cm in diameter.\"
I obviously fall into that category as although I had negative lymph nodes my tumour was over 1cm (1.8 in fact). I think I was in a bit of a grey area at the time of diagnosis (especially as my HER2 status wasn\'t known). My guess is that in the future people like me will be advised to have chemo - I wasn\'t. I can\'t turn the clock back and I do accept that I was advised properly according to the knowledge available.
I\'ve been following the \"delayed\" herceptin arm re HERA trial on the her2 support site. It\'s really interesting. If Hercpetin has a positive effect even a few years after chemo then surely it must have some effect even without chemo. Could help people in the future.
Thanks for links.
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Hi Sandra Hi Sandra
Thanks for putting up this link.
I am not sure if I am reading the same thing as you but on the 21 page document Final Appraisal determination document 4.6 contained information about node negative people. Being node negative with a tumour of 18mm this obviously interested me. I was advised not to have chemo but that was before my HER2 status was known - I\'m now too late to have chemo.
It seems like they are saying that node negative people with a tumour of 1 cm or less probably won\'t benefit much from Herceptin but I can\'t quite fathom out if they think people with tumours but over 1 cm fall in this category or not.
I didn\'t have chemo because of being node-negative - would this now be different and as my tumour was over 1cm I would be advised to have chemo and Herceptin.
I\'m well aware that I have \"missed the boat\" - just still interested though.
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Thanks Christine Hi Christine
Thanks for the extra info - very much appreciated.
I think you are right - with all the \"scare\" type stories in the paper connected with Herceptin the media often portray it as almost inevitable that the cancer will recur for all HER2 positive patients - in light of that I think it is reassuring to know that it is not the case and the percentage in reality could be 50%.
Thank you for your reassurance - I am not over alarmed - just always keeping my eyes open for further information. You are so right - I seem to be in a grey area - not helped by being diagnosed before HERA trial results and having to push my onc for a test anyway.
I noticed on the HER2 american site that at ASCO there is going to be a presentation (on 2nd June) on new guidelines for treating HER2 positive patients. I think it could be quite interesting and I am hoping it will cover some of the previously grey areas.
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Hi linlin I had WLE and axillary clearance Jan 2005, I didn\'t need chemo, I had radiotherapy which ended end of April last year and am on tamoxifen. Finishing radiotherapy was a real low for me, all my friends thought that that was it and I should be celebrating - the trouble was my head was months and months behind my body. I think we are so busy initially dealing with the shock, the ops, the recovery and any treatments that we just don\'t have time to get our heads round it - that comes later.
A year and 4 months down the line I think I am just about starting to come to terms with it - as much as you do - but I have good days and bad days - just less of the bad ones.
What you are feeling is perfectly normal - you will get a lot of support from this site.
Very best wishes
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Me too This morning I put a posting up in the Men Diagnosed with breast cancer forum where one of the men had started a thread about how he felt on tamoxifen.
I feel YUK ALL THE TIME on tamoxifen.
I can\'t do a fraction of what I used to do and it all contributes to making me feel low.
My heartfelt sympathy to everyone who this drug effects in this way.
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Oh how sympathise! I have been on tamoxifen for 15 months now and I feel like **** all the time. I have been backwards and forwards to my oncologist, my GP, have read loads on the net about it. I read other people\'s postings and I feel that maybe I am being a wimp - a lot of other people seem to manage it ok.
I switched to taking it in the evening which stopped the permanent headache, but I feel bloated, achy, tired, nauseous, depressed, irritable, hot/cold/sweaty - generally just yuk - ALL THE TIME.
At a friend\'s house the other day I met her cousin who had just completed her five years of tamoxifen. She did know how I felt because she felt exactly the same and added that she hadn\'t realised quite how bad she felt until she came off it. She told me to stick with it and the time would go quickly. I came home, told my partner and burst in tears (I never used to be one for waterworks but these days tears flow freely) - to actually speak and see someone who knew exactly how I felt, who didn\'t remotely think I was being a wimp or malingering was so great.
I am still sticking with it, I am trying to be realistic and to pace myself more and not to expect too much of myself. I have found this really hard, I am the kind of person that used to be busy from 7 a.m until midnight and then some. I did an OU degree whilst splitting up from my ex husband, whilst my Mum was seriously ill and dying from bowel cancer, whilst my daughter had ME and numerous other things - I\'m generally someone who gets on with life and I just can\'t do this anymore. I wouldn\'t say that I have come to terms with this but I am slightly more accepting.
I am still open-minded about whether or not to go through another almost 4 years of feeling like this but I\'m not looking at the whole 4 years - too depressing! I am taking it month by month - sticking with it and telling myself just to see how I get on for one more month. It\'s helping. I\'m also going to ask my GP to swtich me to Nolvadex - sometimes changing brands can help.
I do truly empathise though with you David. It is such a horrible feeling.
Very best wishes
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My oncologist keeps telling my that because my prognosis is good my chance of recurrence even though I am probably HER2 positive is small - I can\'t say that I totally believe her!
In your posting you mentioned that a figure of 50% had been bandied about for all HER2 positive cancers. Could you point me in the right direction to find out more please.
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Adjuvant online Hi Mcgle
adjuvantonline - when you register you just pretend to be a health professional - loads of us have done it!
As someone told me - don\'t go on there unless you really want to see your statistics - there something quite scary about seeing them in black and white - or green, yellow, red and blue. You can type in grade, tumour size etc - nothing for HER2 status yet. My oncologist who I now have a good relationship with - knows that I go and look on adjuvant online. She has spoken to the people involved with it and they reckon to multiply your stats by 1.5 to bring in the HER2 factor. i.e. a 10% chance of recurrence would become 15%. This works ok unless you have a bad prognosis where a 70% chance of recurrence would become 105% - can\'t be that. I\'m not sure that they have worked out what to do for all cases yet. Your prognosis would probably be similar to mine so the mulitplying by 1.5 would probably give you some sort of indication.
Hope this helps.
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obsessive too Hi Mcgle and others
I\'m sure you know from other postings of mine Mcgle that I have wanted to find out as mcuh as I can about my cancer.
My Mum died of bowel cancer and whilst she was being treated she never once asked a single question, just \"did as she was told\". I found it extraordinary and I found it very difficult to accept and to respect that this was her way of dealing with it.
I have been totally the reverse, always asking questions, looking things up on the internet, reading medical journals etc. I have to say that this has helped in a lot of ways. My partner and I went to my first oncology appointment armed with info about delays in radiotherapy and why it wasn\'t good - we had been told by BC Nurse that it was 18+ week wait in my area (that\'s after waiting for an onc appointment). Instead of getting fobbed off I was sent out of area for treatment.
I only got an HER2 test done because I had bothered to read up about it and to insist on it. When it came back positive I did loads of reading up - when I also found out about my negative test result I then looked into methods of testing etc. I think I could have gone on Mastermind with it as my specialist subject! It made it easier to ask informed questions though. As my GP (great lady) said to me - you need to know what questions to ask.
I don\'t tend to google so much these days as having researched I do feel I have had the right treatment - but it was important me to find out as much as I could to come to that realisation.
I do fear recurrence especially with the HER2 thing but I don\'t think my fear is any greater for seeking out more information. I like to think that it gives me a realistic view on what might happen - therefore making recurrence less of a shock.
i was really interested in your views Daphne, I didn\'t have chemo (clear lymph nodes) it came to light too late that I was (probably) HER2 positive to have chemo and Herceptin. I met the criteria for the HERA trial and I think that in the future people with my type of cancer will be treated differently (they already are in France). What I have found though in the past that my fears of recurrence etc are dismissed too readily for my liking - I keep being told that my cancer was a \"good cancer\" (still don\'t think the words \"good\" and \"cancer\" go together!) and that I shouldn\'t worry. My chance of recurrence (not including HER2+) from adjuvant online are 1 in 4 - I personally don\'t call that nothing to worry about. I do think that sometimes people with good prognosis are not investigated quite so thoroughly as those less fortunate with a bad prognosis. Maybe this is why some slip through the net.
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APS tamoxifen I am on tamoxifen by APS (Approved Prescription Services Ltd).
The list of ingredients are:
tamoxifen citrate, mannitol, povidone, sodium starch gylcolate, colloidal silicon dioxide, magnesium sterate, hypromellose , polyethylene glycol and colour, titanium dioxide (E171)
I can\'t see any mention of lactose or similar.
Hope this helps.
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Hi Mcgle I do have a daughter - 16 year old. I was heartened to hear from you that HER2 cancers are not inherited. I worry about her getting it. My partner lost his ex-wife to breast cancer (they were divorced and she had remarried) so he worries about his daughters too. She died 6 years ago so we have no idea whether or not she was HER2.
My onc was quite adamant that not all recurrences are HER2 - she told me that all recurrences are tested for it and that they are by no means all positive - just realised I didn\'t ask her what the percentage was - oh well, another question to put on my list for next time!
I drive people mad too about wanting to know all about my cancer. When I was researching HER2 (this was after being told I was positive and couldn\'t have Herceptin but before seeing onc for explanation) I did get quite worked up - but at least when I went to see my onc I knew what questions to ask. She used to dismiss and brush off my questions but now knows that I am much happier knowing ALL the ins and outs and even made a point of phoning me after she had attended a breast cancer conference in USA to tell me on latest findings. We have a good relationship now. I guess that some of their patients don\'t want to know and perhaps they need to be sure who does and who doesn\'t want all the info. I know that my Mum didn\'t want to know and it probably wouldn\'t have helped her (made things worse even for her) if she had known more.
Our cases were pretty similar. My cancer was ductal - no vascular infvasion and I did have an area of intermediate DCIS all of which apparently they managed to remove. You are right - it would be good to keep up with each other as our cases as so similar.
My Mum had bowel cancer and sadly died of it 6 years ago. She ignored all the symptoms literally for years - until she was really ill and in a lot of pain. When they opened her up her liver was covered - the surgeon said that it was the worst case of liver cancer he had ever seen. They didn\'t expect her to survive the op but she did and she went on to have a further 3 1/2 good years. As her liver cancer was so bad she was referred to the Middlesex in London for some new laser type treatment and very new chemo and it helped her no end. I was paranoid about getting bowel cancer and I as have mild IBS (not too bad these days) I have a colonoscopy every three years. The one 6 years ago was fine, the one three years I had a pre-cancerous polyp removed - apparently it would have turned into cancer within 8-10 years. I always thought that I would end up with bowel cancer so breast cancer was a bit of a shock. Just coming up to another colonoscopy and I am a little on edge about what they might find this time!
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HI Hi Mcgle
Sorry it\'s taken me so long to reply to your posting - have had a busy few days. My son went back to Uni yesterday and I seem to do quite a proportion of his sorting out etc!
I am really pleased to hear that you managed to speak to a pathologist. I think some of the medical profession don\'t realise that some of us like to find out as much as we can about our cancer and that it helps us to cope with it. I\'m defintely someone like that - whereas when my Mum had cancer she didn\'t want to know anything and never questioned a thing.
The FISH test seems to be more accurate/conclusive than just IHC testing so if you are positive on the FISH test then you are HER2 positive.
It is important to know that because if the wretched thing comes back at least we won\'t have to waste time demanding and waiting for HER2 tests.
I found it very hard initially when I was told that I was HER2 positive and then found it even harder when I found about my negative result - the whole thing was so unsettling. I do understand how you must be feeling. It took a while for it all to sink in - I am now as OK as I can be about it, I\'m probably postive but there\'s no other treatment I can have at the moment and I know that I have done what I can to find out more about it and to make sure that I have had the right treatment. The percentage of recurrences for my type of cancer is pretty much the same as the percentage of HER2 positive cancers but my oncologist has assured me that on testing not all recurrences are HER2 and therefore statistically that means that not all HER2 people get recurrences. I accept that it is more likely if you are HER2 to get a recurrence but that it is not inevitable. Like everyone else I fear a recurrence but I don\'t think my fear has got any worse because I might be HER2 positive - I think I would fear it anyway.
I hope you manage to get it sorted out in your head - if I can help anymore then just please say.
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Lumps ok Hi
Oncolgist gave my lumps a good prod - she reckons they are fine as they are soft lumps and therefore most likely due to some kind of infections. She was really nice and didn\'t at all make me feel I was wasting her time. She said that she would much rather see people than have them worrying.
She brought up the subject of my different HER2 results - hadn\'t gone in there at all with the intention of bringing that up. I know I can\'t have Herceptin as I am too far down the line so have given up worrying about it.
She said that my local hospital didn\'t want to check their positive result as they were adamant it had to be right. She\'s insisting though in light of the Marsden\'s negative one. She said that it concerns her as they can\'t be telling people they are positive when they are not let alone filling them unnecessarily with Herceptin. She said that it might well be that I am one of the exceptionally rare people with a tumour that is part positive and part negative - the Marsden also mentioned this. Can\'t get worked up about it now!
Thanks for all your support.
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Thanks Thanks for your support Mcgle.
Have phoned my oncologist - they had literally just had a cancellation for Thursday at 3 so I haven\'t got long to wait. Feel lucky to be going to be seen so quickly.
Thanks to all.
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