Breast Cancer Care Forum

Good luck with T on Wednesday DiKat.  Will be my turn on Thursday. Good that you know your blood results before you go.  I have my bloods taken Tuesday by district nurse who comes round to flush my picc But dont know the results till I get to Chemo unit on the Thursday. ... View more

Interesting article Wahini.   I first had breast cancer 2009 oestrogen one and was on tamoxifen for 10 years. But in the 9th year which was last August, was diagnosed with TNBC in same place as previous breast cancer. Its classed as a new primary but now I wonder if its a relapse.  I cant have radiotherapy again as had it previous time, so I worry this could increase my chance of another relapse. Hoping the FEC T blasts it all away tho 😮    ... View more

Thanks DiKat and Sunnydaze.  Im just glad it was a new primary and not a secondary. .   Think I found out the culprit for my trapped wind (apart from chemo side effects).  Too many quorn nuggets lol.  I really fancied them and as they are low fat thought would fill up on them to stop me craving fattening foods.  Think I had too many over the last few days as they are delicious 😮    ... View more

Thank DiKat.  Yes I been drinking lots of boiled water with lemon and ginger in.  But still getting a tight feeling in my stomach and cant pass wind lol.  Perhaps need to up the amount.    Hi Sunnydaze.  Yes since stating T my stomach is bloated, tight and stretches the scar a bit.  Was fine before I started T.  Hoping its just a temporary side effect from the chemo.  Glad I had it done though.  Was less palaver than the chemo lol.  I cant have radiotherapy as I had a primary 2009, when I had lumpectomy and rads and tamoxifen.  Unfortunately last August 2018, found new lump in same place as before and it's TNBC so another primary but cant have radiotherapy in the same place twice 😞    So hopefully chemo is mopping up any strays 100%  .  Im hanging out in Jan thread too but it doesnt seem so busy as this one. Started my chemo 27th Dec, so didnt know which thread to hang out in lol  ... View more

Trapped wind again.  Kind of wishing I still had my apron tummy from pre diep days 😄    Not really.  But hating this tight feeling.  Wish I could play "name that tune" if the dam tune would start lol    ... View more

How does one release said trapped wind.  I keep taking Bisadol tablets, that I already had indoors but still feeling bloated a lot.  Cant keep taking these like sweeties can I ?  Will get some peppermint tea next time I manage to get out.  That may help.   ... View more

No didnt really get aftertaste like this with FEC, just awful nausea.  Far as I know Im just on the Taxol.  I only had one bag (apart from some saline and glucose).  Thats enough 😮   x ... View more

Had first T last Thursday. SE so far. Red face day 1 and 2 (probably from steroids) so everyone was saying I was looking so well  Seem to have bad trapped wind day 2, 3 and 4.  Where I had masectomy with DIEP the stomach bit is flat(tish) now and the trapped wind seem to stretch the scar badly.  Just took normal indigestion tablets and that provided some relief.   Food tastes ok but seems to leave bad after taste. Anyone else got that?  Got the aching bones and muscles.  Been taking Ibuprofen, seems to work better for me compared to paracetamol.   Also got tender fingertips but perhaps thats over use of the computer.  Or could be start of effects on nails    Now waiting for the runs 😮      Still its better than the FEC with the nasty nausea.    Hope everyone coping ok and hugsss. x  ... View more

Started my T yesterday. No problems yet 😄 😄 😄    Mentioned to the nurse about my "panic attack" I had 3 days after FEC last time and she concluded it was due to me taking too many anti sickness tablets, which I had been told by 2 previous nurses I could do.   Still no sickness so far.  Yes had to take 8mg steroids 24 hours before T and 12 hours before T and same again more steroids this morning and tonight and same tomorrow. Got 6 injections this time instead of 5.  My nephs were at the low end when I had my blood test Tuesday but I forgot ask how low.  So they took blood again yesterday morning, and levels had come up a bit. Nurse said that could be due to the steroids I took the day before, so that was good.   Am still cold capping and like someone mentioned I have bald patches at the top but just wear a beret style hat when out. Might need the winter hats again soon according to weather forecast lol.  My fringe is still there and cut it into a full fringe so when I have the beret on it looks like decent amount of hair there.   Waiting for a wig.  Was ordered weeks ago but when appointment made for fitting it, it was only few days after a FEC session and was feeling too nauseous, so cancelled and was arranged for following week. But that was cancelled due to Wig lady having the flu.  Still waiting for appt, but at this rate maybe I wont need it if the bald patches start filling in.  Can live with wearing berets if I still have fringe and hair around the edge of the beret.   Huggs to all and good luck to the ones changing to T soon.  Hope the side effects are kinder to you all 🙂       ... View more

Haven’t been here a while. Find this forum hard to follow. I noticed some are having mri. Is that standard during chemo.  Having first of T tomorrow. Haven’t had any mri yet.  ... View more

Re my message above,  and talking to others, Im beginning to think my "episode" over the park was due to panic attack or body in shock.  Never experienced that before.  Just hope it never happens again . x ... View more

Had 3rd FEC last Thursday 7th.  Didnt feel too bad day 1 2 3 while on the Emend.  Since then been taking prm prochlorperazine 3mg and/or Domperidone 10mg .  Did anyone find either of those tablets better than the other.  I seem to think prochlorperazine 3mg works better.  Just wondering what others are finding.  Still feeling icky.  Other day (monday) took my dog for a short walk.  I had just taken both prn tablets as was advised.  Got to field (about 5 mins walk) then found I couldnt walk anymore. It was like I was frozen to the ground. Walk 10 steps and the frozen again. Of course decided to come home and managed it slowly. Had district nurse round about 2 hours later to flush PICC and told her what happened but she didnt seem too bothered and said well done for coming straight home....   Havent been out since so poor dog has no walkies.  Has this happened to anyone else.  Was wondering if it was because I took both prn tablets near together.  Anyway, taken Domperiodne 10mg this morning and still feel icky but now to scared to try the prochlorperazine.  Such a nice day. Would love to go out for a short walk with the dog.     Hugss to all 🙂    ... View more

Hi had my 3 rd chemo of FEC last Thursday.  Worse part was the cold capping.  Think it was too tight on the forehead bit.  Was really glad when it was taken off.  Still got good coverage of hair but still lost a fair amount too.  Was thinking of not doing it for the T bit but I asked a nurse if you still get hair loss with T and she said yes.  I thought I read somewhere you dont.   Anyway, not so much nausea this time round.  1st one was really bad.  2nd cycle not so bad and this time ok so far.  So fingers crossed I dont get it now.     Hugsss to all 🙂    ... View more

Hiya Val.   Yes I think most of us feel better after the first week or so of chemo has passed but we are all different. Are you sure you havent caught a bug or something.  Make sure you keep checking your temperature.  I was told if mine goes up to 38C, to call an ambulance and tell them you are on chemo and they should blue light you to hospital.   Hope you are feeling better now.  If not maybe give the chemo place a call.   xx  ... View more

Saw my oncologist yesterday.  3 hours waiting in crowded waiting room.  Then he says dont forget no going to crowded places due to germs etc. Im like hang on, Ive just been sitting in a crowded room for 3 hours lol.   Anyway, he says I look well.  I said this week is my good week but I had been suffering big time with nausea after each cycle of fec.  He says its ok to double up on the meds.  Im like I dont want to overdose but he seems to thinks its ok to take double.   3rd cycle of Fec next week Thursday.   Ugh 😞    Hugss to all 🙂          ... View more

Hi Georgie and Val.  Another TN here.   Well 10 days post chemo 2 and now got my taste buds back and nausea gone. So hopefully a pleasant 2 weeks and then will be round 3 of FEC .  Ugh.  Still got hair but coming out in handfulls so thinning nicely 😮      Huggs to all  ... View more

Day 6 and still some naseau.  Im wondering if the  filgrastim jabs have something to do with it as when I get up I feel fine and then half hour later I do the jab and then a short while after I start feeling sick. But at least Im not getting the bone pain which is a more common side effect.     Huggss to all.  ... View more

Yes had a PICC line put in Monday. No problems with it.  Ask your GP to prescribe a waterproof sleeve to keep it dry.   Had chemo last week Thursday.  Still getting some nausea.  Im thinking its the  filgrastim jabs that are making me slightly nauseous as I wake up feeling ok and then have the jab half hour after getting up and then feel nauseous.  Still havent got bone pain, which is a common side effect apparantely. Had last jab this morning, so hopefully feel ok now till next round of chemo 😮      Hugss to all xx  ... View more

I had emend.  But still feel bit sicky.  Not a lot.  But still feel I want to take one of my prn (as needed) anti nausea tablets.  Anyone else done that, or just brave out the slight sickness.   Hugggsss to all x ... View more

I had my chemo 17th Jan and on my box of filg injections says to start 19th jan, so had first injection this morning.   Still not feeling tooo nauseous compared to after my 1st chemo. But dont have much appetite and only fancy carby type foods, when I do eat.   ... View more