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gocat
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01-05-2012
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19-09-2009
01:13
Started tamoxifen 27th august and in that week put on 3 pounds. Was really gutted as am doing slimming world and had been following the diet and thought oh great tamox is gonna undo all my previous good work. Well Im delighted to say following week I lost 4lbs and got weighed yesterday and lost another 3lbs so cant blame tamox now (for now anyhow ) 😄
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17-09-2009
11:53
Oooh just seen this thread. Bit late for the Kent course I reckon, even though the website says places still available, but have inquired about next year for me and my mum. Both have breast cancer and both have hip replacements, so should be interesting.
Have a great time, those going soon 🙂
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15-09-2009
08:23
Hi Shenay. I had my planning appointment a week ago and am due to start 15 sessions of rads on 1st October. I wasn't asked what time I would like and also I did tell them I will be going on holiday from 24th October but they have allocated mine so that it finishes just 3 days before my holiday. So they are not really all that flexible but musn't grumble this is the NHS after all.
I did find out I could get transport though and Im not on any benefits or anything like that. But then when I asked to be booked for transport they tried to put me off saying it will take up most of my day etc. I live about 25 miles from the hospital where I will be having my rads.
Hope you manage to get transport.
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15-09-2009
09:20
Thanks Mal and Cathy. Yes think it is more sensible to have my rads and slap on the cream and hope for the best 🙂 Will not be sunbathing and will try to avoid the sun as much as possible and just chill out lol.
Now trying to find out about lympho sleeves for the flight.
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15-09-2009
09:17
Will be going on a long haul flight end of October. Can we get these sleeves in the uk on prescription and if so can we just go to our GPs to get the prescription of do we have to contact the BCN/ Consultants?
Surprised this wasnt mentioned at my last check up appointment as they know I was going on a long haul flight (had to tell them due to radiotherapy sessions coming up).
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15-09-2009
08:37
Hi. I had WLE 10th August and already had a month long holiday booked and paid for which will commence 24th October.
I recently had my planning appointment for rads and was given a date of 1st October to start 15 sessions, so that will finish 21st Oct just 3 days before I fly off on my long haul flight. Appreciate they took note of the dates of my holiday but finishing 3 days before the flight seems a close to me.
My worry is being extremely sore on the flight, as I seem to read here that some womens skin break down just as their course of rads finish. Im fair skinned and burn easily so guess I will have some breakdown of skin no matter how much cream I put on myself.
Wont be too bad when I get to my hoiday destination as will be staying with relatives and have access to air conditioned room so can spend the 1st week recovering from my flight (and skin breakdown if any) Just worried about being more uncomfortable on the 13 hour flight from here to Malaysia.
I was thinking, is it feasible to ask if my sessions can start when I come back from my holiday end of november. Or is that not advisable. I do notice here that some people do wait for rads several months after their ops.
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14-09-2009
06:04
Hello. Am from Essex, Lakeside area and wondering what party it is that you are planing. Tried looking all through the thread but got lost lol.
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14-09-2009
05:59
Wish Mia online did actually give quotes online tho lol.
Wondering if any of you that got a quote via mia online also got a quote from "all clear travel" ? (they do actually quote online)
If so which was cheapest?
Alternatively anyone got any experience with "Allcleartravel" ?
TIA
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13-09-2009
09:36
Now read on another thread that evening primrose oil is not good to take if you have BC. Cant win.
Will stop taking it for a while and hope I dont start the hot flushes (at the moment thinking it's the EPO stopping me from getting Hot flushes)
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11-09-2009
03:34
Hi Sandra. I was the opposite. I had the mirena coil about 6 years ago to try to control heavy periods but it didnt work but since taken tamoxifen (only 15 days so far lol) my period didn't come on the due date so Im hoping I will get that "side effect" of periods stopping for now.
I went to Slimmng World this morning and have lost 4 lbs this week so I guess last weeks weight gain was like I said in my previous post re PMT and some of the 4lbs lost this week was water retention.
Taking Tam in the evening and waking up with mild headache. Not sure if that's related but still no hot flushes so that's good.
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10-09-2009
09:17
Been on Tam 14 days now. I did notice some weight gain last week but seem to have gone back to what I was pre tam. Think it was fluid retention as I kept going to the loo more than normal for a pee the last few days lol. Hope that's all it is anyhow. Was very moody/tearful when first started taking tam but seem back to "normal" again. Im wondering if when I first started taking tam I was due on and all that moody/tearful/weightgain was PMT but I never had a period probably due to the Tam and now Im back to as if I would have had a period (if that makes sense). Will know in a months time I guess.
Still no hot flushes yet 🙂
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09-09-2009
08:17
I've written a letter to my main GP today (saw one of his partners the other day) and enclosed a print off of that link I put in my first post on this thread and hopefully he will read it and realise I need my antidepressant changed even if it's just to stop me worrying that Tamox might not be working because of the Prozac. Hopefully he will get back to me soon (so hard to get an appointment with him and that's why I had to see one of his partners the other day). I did suggest Effexor so will see if he agrees to this.
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08-09-2009
01:58
Had my planning appt this morning. Got 2 tiny tattoos that I cant see now lol. Appt only took about 20 minutes. The 15 sessions start 1st October. Thought it might be sooner as I had previously told them I have a long haul flight already booked before I knew I had BC 24th October. My sessions will finnish 21st Oct. Hope Im not too sore during the flight 😞 Should be ok once I get there as just visiting relatives for first week so can chill our in air condition room. I normally sleep off the jetlag for the first week anyhow lol.
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07-09-2009
12:21
Well done Chipper.
Day 11 here and still no major SE's. I have APS brand so will try to make sure I get that when I renew my prescription. Also TOM date been and gone and no period. Wow I dont miss that, that's for sure lol.
I too (like Sandra) take evening primrose oil capsule so maybe that helps with preventing SE's.
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07-09-2009
12:18
4 weeks since my WLE, and scar area feels ok. Infact shape and size of that breast seem better than before as matches other breast now lol.Previoiusly left breast was slightly bigger than right.
But Under arm scar still feels a bit tender and am on antibiotics atm as it was weeping a bit. Also slight tender feeling on left inner arm from elbow to underarm.
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06-09-2009
03:28
I recently started taking tamoxifen and havent had any serious SE's yet .
Was googling andepressants + tamoxifen and came across this link
http://www.cancerbackup.org.uk/QAs/Search/related_faqs/QAs/76293980
Im on prozac so queried this with my GP and asked him if he could change my antidepressant to effexor and he asked me to contact my BCN which I did and she said no drugs badly interact with tamoxifen and I will be ok with Prozac .
So wondering if others have experience of taking Prozac and Tamoxifen and if they had the same worries as me.
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05-09-2009
04:36
Thanks Chipper. Would love to see my path report after learning bits and pieces here 🙂
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05-09-2009
03:55
Didnt think to request a copy of my pathology report when I got my diagnosis last week. Will be attending planning meeting next week for RT , do you think they will have a copy of the path report and could I request it there?
For what it's worth, I've been on Tamoxifen for a week and havent really had any SE yet, apart from moodiness/tearfullness first few days.
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05-09-2009
10:51
Know how you feel gingery. I started Tam just over a week, am doing slimming world diet and stuck to it religiously and have put on 3 lbs this week grrrrrr. Hope the weight isnt going to pile on again.
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05-09-2009
07:43
Have got planning appointment Tuesday 8th September but dont know when my 15 sessions of rt will be starting yet. Hope it's soon as they know I have a 4 week holiday booked from 20th October so want it all done and dusted by then if possible.
Was wondering how long the fatigue lasted after the 15 sessions of rt has finnished.
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