Ooh a couple of things I forgot!
Well done Vanns on the gun dog comp!
Someone mentioned a rads trial where they got zapped for a week and then had a top up. I'm on the same but got 15 days (no time off for good behaviour lol!) and no top up. But has gone quickly and am now looking forward to getting my lie in back lol!
Finally have taken to drinking milk by the gallon for the past few weeks. Seems to be the one thing that tastes normal. And London Cheesecake. If I wanted to fit into my working clothes I might have a Bit of a job lol!
no idea about what my tattoos would be so something to think about tomorrow on the table lol
Have a good evening buns!
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Campo - well done you little trailblazer! So pleased that you are clear now!
Gadgetgirl - are you okay? Wave a paw just to let us know you're still there!
Little Chick - reading back on the posts - love your thoughts for the day! Definitely won't be stealing your punkawallah!!
Well, this is my last week on rads with only 4 sessions to go. Boob is red and sore and my underarm feels like I've been punched in the side several times. Tearful at times going to the hospital every morning but am so glad that it will be over soon. The staff are brilliant (except one nurse who always seems a bit firm when turning me so that it hurts but she's so nice I don't want to upset her by mentioning it) and it has been an opportunity to concentrate on the banana boat when the machine moves. I have very large elbows apparently, as when they changed my machine allocation they had to remove a piece from the thing that moves so it wouldn't hit my elbow. Who knew??
One thing left over from chemo - chemo brain! I managed to miss my consultant appointment last Friday. I'd even been to my rads appointment but they'd written my consultant appointment on the card not the sheets of paper they've been giving me with my changes of times. OH was convinced I had an appointment so is now reminding me that I forgot to put it in my diary! Rearranging appointment tomorrow when at the unit and offering my apologies!
Actually, two things left over... my arm is still a bit swollen and I can see the vein marks where they were although they are less swollen now. Am not putting any cream on them, was told they will go down on their own without any help.
Good news though - I have some hair! My bald pate is now looking decidedly fuzzy and I reckon another few weeks and I will be able to ditch the wig. Never really got used to it and will be delighted to give it up. Even now, I have times where I wish I was brave enough to walk about without it on. No eyebrows yet but some stubby eyelashes! LOL!!
Am going to have to go back to my GP as I think the Tamoxifan is working against one of the tablets I already take. I did give the onc a full list of what I'm on and according to the leaflet one of the tablets I take is counteractive towards the benefits of Tamoxifan. All I know is that I have been a bit down this week - more so than usual - and the only change has been the addition of this new drug.
Finally, can I add my boss to Campo's special course. Sent off my latest sick cert signing me off for the whole of my rads treatment together with an email saying that my GP wanted to review my health before I go back to work even on a phased return. Had an email back from him saying that he's worked out that I will be back in the middle of October and he's looking forward to having me back in the office as soon as possible. What he thinks I'm going to be doing and how long I'm going to be in the office each day, I have no idea. So a bit of education might be a good thing!
Okay, buns, wet and windy here today so currently reclining watching the Grand Prix. Can't be bothered to do much else to be honest lol!!!
Hugs and well done to everyone for getting this far.
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Hello October Pumpkins! Popping in from the April thread to say hello and good luck to those of you starting chemo soon. As the rest of the bunnies have said, it is doable and once you get into the schedule you will find it easier to cope. Not much else to offer in the way of advice except to say don't worry if you have down days - that's completely normal. Just go with it and it will pass. Oh and if you don't have a line put in and have to have your veins searched for on a regular basis (as I did) don't get too stressed and drink lots of water before you go to the unit. You may want to pee more but they will find your veins a little easier.
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Wow we're all starting to pick up the pace a bit lol! Have completed first week of rads and feeling terrible again. My boob is sore, my underarm is sore and last night have has terrible back ache and restless legs!! told the nurses and they said take paracetamol. Just what I need lol!
ThiS morning no beach or banana boat but felt more like Thunderbirds on the bed. Seemed to me like I would end up in the cockpit of Thunderbird 2!! I wish lol!
Planning a doggie social walk on Sunday and both mine now look gorgeous having come back from the groomers yesterday. It won't last long lol! Talking of walking my OH wants to visit Snowden but I've had a yearNing to walk up Catbells in the Lake District ever since I got a Wainwright book for Xmas a few years back. It's not the tallest but I think Bertie and I could manage it. Something to go on the bucket list!
Have a lovely weekend bunnies wherever you are!
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Hello bunnies!!! Apologies for not posting for a while - I am still here and waving my paws at you all.
Lots to catch up on so here goes...
Elaine: Had pre-eclampsia myself and it was awful. Rest those feet and keep them up as much as possible. Sorry to hear that so many of you are suffering.
Nails: my nails seem to have escaped lifting off but they have developed ridges - a bit like the rings on a tree. I have about 6 lines on each nail which corresponds with my chemo treatments. Did put varnish on but it usually chips straight away so currently admiring my tiger nails!
SEs: having now been off FEC chemo for a month (yippee) I am now feeling more like myself. Still tired and occasionally emotional but certainly not breathless as much and am now able to walk the dogs for up to an hour now and again. Not much hair regrowth yet, but I live in hope lol!!
Pixie: well done on keeping Bertie! My Bertie sends woofs!!! I'd love another dog but not the right time at the moment as my two are so settled and chilled together. But you never know!!!
What about me? Well the weekend away was wonderful, great hotel and service was brilliant. They didn't even blink when I answered the door to room service in my pjs and without my wig! I'd completely forgotten I didn't have it on. OH thought it was very funny! We pottered around in the local area and it was a lovely way to celebrate the end of my chemo treatment.
Since then I've been going for my radiotherapy appointments for a week now. It's not unpleasant but it's early in the morning so I'm having to get up earlier too! A real shock to the system! To be honest, when I'm laying on the bed listening to the machine doing it's thing I have my eyes closed and I'm laying on the beach at Spa del Campo. Once or twice I thought I heard the bunnies on a banana boat but that must have been my imagination!!!
I did get to the Paralympics - on Thriller Thursday no less! It was a very long day and I walked further than I had in months but it was so worth it! The atmosphere was brilliant and the sport was fantastic. Even getting there and back on the train wasn't too bad. Truly a once in a lifetime experience.
Finally, someone mentioned not wanting to go back to work. I saw my GP who has signed me off until October. She wants me to have a clear couple of weeks without treatment before I go back. I'm still not keen to go back especially as it will have to be full time or nothing. If I go back part time I won't earn enough for the bills and we'll lose our benefits so it's a bit of a nightmare. Have tried to talk to OH about not going back there at all but he thinks as I have a job it's best to go back and look for something else when he has a job. All I can say is that I am so not going to be put back in the same stressful environment that I left in March. I couldn't bear it and think it would be the worst thing for me and my recovery. I was chatting to a friend who had cancer (and recovered) and she said that she went back to her job and it was okay to start with but after a couple of weeks they expected her to be back to normal. She ended up leaving and getting a new job with less stress and where they didn't know about her cancer. I have a lot of thinking to do...!!!
Well that's it for now. Am looking forward to seeing everyone at Bunnyfest!
Hugs and hope everyone's feeling a bit better today,
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Wow lots of posts to answer and for once I am feeling very compus mentus!!! In fact, over the last few days am beginning to feel like I'm coming out of the fog. Physically still tired but even getting up in the morning is a little easier.
Sara12 - so glad you have someone coming to stay. I didn't get to the thread quick enough to wish you good luck (not that you need it) but am happy you're back home. I stayed in just 24 hours after my op as I hate being in hospital wards - you can never get any rest. Re. the swelling - speak to your GP (phone not visit) just to get it checked over. And rest loads. Healing takes time so don't push yourself too hard.
Big M - good for you staggering the wedding and getting through the day. Am still pretty tired myself - even walking from the car park to the hospital gets me out of breath! We need to take it slowly you know!! I had no real sickness issues, but did suffer terribly from mouth ulcers which stopped me eating. And ever since I am eating smaller portions and sometimes just can't even manage to eat much at all because I just can't seem to taste anything. However, I am drinking gallons of milk and eating a little of what I fancy when I fancy it. I seem to be okay for lunch but dinner time seems too much for me to cope with. Sorry you have to have further surgery too - when you're feeling a bit better, let's reschedule our lunch! And yes, I get ratty and short-tempered too, so take it as normal at the moment and don't worry too much.
Little Chick & Sameelee - it was me mentioned the tea sets, can't wait to get out to some car boot sales and get some more! Tea shop with home made maccarons sounds fabulous! I feel a chain of vintage tea shops named Bunnies coming on... lol!!! Talking of which I love GBBO (Great British Bake Off) and am currently watching the Celebrity Masterchef too. As a very bad cook I am determined to improve my skills next year and am planning a baking course. That'll kill off the tea shop then lol!!! I have no excuse because my mother is a fantastic baker and makes all the kids cakes and batches of rock cakes for my daughter to take back to uni everytime she comes home. However, cakes tarts and pies are not supposed to be on my diet for next year to get healthy. Oh well...
MarGie - thanks for the thoughts about the tattoos. I still look like I have biro on my chest but am now trying to disguise it if possible with some long and elaborate necklaces. Might need Sameelee's vintage stuff to help but am no longer sulking about it. Lol!! I think it was just the fact that I was told you get this and this and then they did it without really asking if I was okay with it.
Sameelee - I haven't read or watched anything relating to bc but might give this one a go. Sounds like it might help me get my head in perspective!
Pepihorse - I felt crap on the day I had my rad pre-treatment assessment. They do tend to book these things close together and as I was day 7 after the last chemo I felt pretty weak, tearful and sweaty. But at least once you are done, you are moving to the next stage of our journey. I'll be thinking of you and hoping it all goes well.
Chrisp1e - hope you start to feel better soon. It can't have helped with the extra drugs and illness. Go back to sleep and let Campo soothe you with some lovely sea breezes. I had a few days back when I just got up to go to the loo and then back to bed to sleep so let your body tell you when to rest. Hope you enjoyed the wedding though.
Gadget-girl - I am still pretty bald too although I have a smattering of hair on my head. Not enough to keep me warm though, as I now wear a beany hat to bed like a little premature baby. Funny thing is I'm more bothered by the wig than the hair loss - just wish I was brave enough to go "commando". And the one eyebrow going has made me look pale and a bit interesting!! Who knew we would have to deal with these things. I know you're facing surgery too and I completely understand about the sympathy thing too. A week after my surgery I was back at the clinic for a check up and had to wait such a long time as they were running late. I felt so ill I had to get them to get a chair to put in the entrance way because I thought I was going to pass out. The unit was packed and I felt so embarrassed because I seemed to be making a fuss about having to wait when all I wanted to do was just go home and lay down. I try not to make a fuss these days but even so, I would have loved sometimes to whip the wig off and say "look I'm still ill" even though I look okay with the wig and the make up. Some people don't get it so don't worry especially as doctors receptionists can be the worst!!
Campo - loved the horse riding, might book that again if available. I know I should stop worrying about work so called them and told them I will pop in next week with my sick cert and that I am going to be off for another month at least before I think about coming back. Amazingly, I felt much better after that lol!! But you can still send over the hunkiest punkawallah to tie me to the hammock... ooh came all over 50 shades of grey then... lol!!! Thanks for the brilliant walk today, just what I needed to visualise next time I'm in for my rads.
RachelP, Pixie, Southpool, Ambarose - waving hello at you as didn't want you to feel left out of this marathon post.
Went for a complementary reflexology session at hospital today. Was lovely and relaxing and I got a clean bill of health on my feet too! Actually really enjoyed the session so might have another one soon. Still not quite as good as the facilities at Spa del Campo, but needs must.
Finally, am packing today for our weekend away courtesy of the grant we got from the Macmillan Trust. Two days in a hotel with no worries about anything - I can't wait. We're off to a place near Chichester which is another area we know well so plenty of mooching around and walking by the sea. My OH is so exhausted that it'll be good for him too.
Okay bunnies that's it for now. Hope all of you are resting loads and thinking about your party pieces for Bunnyfest! I'm still practicing the Barry Manilow medley while watching the Paralympics. And talking of which, how good was that opening ceremony? Was in floods of tears at little Miranda being hoisted around the stadium - shows there really are no limits!!!
Love and peace,
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OMG Bunnies - I am still here!!! Have been lurking at the back of the Spa del Campo after having my rads pre-treatment planning meeting. Came in week 2 which meant that I was already feeling dreadful - sick, sweaty and tired (natch) but have been trying to force myself to be a bit normal too which has taken it out of me.
Had the planning meeting and got the tattoos - side ones okay but sore the only one I am a bit miffed about is the one RIGHT IN THE MIDDLE OF MY CLEAVAGE!!! It looks like I've written on myself with biro and I am not particularly happy about it. Rads start on 7th September for a minimum of 15 days although now they are suggesting that I have a top up of 8 extra days. Am on the trial to see if higher doses for shorter times works but still got the long straw! Means that things won't start to get back to normal until end of September at the earliest. Went in and out of the scanner thinking about the Spa and the sea and the hammock so thanks Hilary for making it bearable!
To be honest, bunns, I've been a bit of an angry bunny this week. Am so fed up of treading water and feeling like a limp dish rag. The SEs from the last chemo hit me this week and I have constantly felt like I am staggering between breathlessness, tiredness and swollen arms and lips the whole time. I look like an incontinent hobbit!!! Have taken to wearing a Rocky-style beanie hat to keep my head warm day and night. Who knew that hair was so warm? I even brushed my scalp yesterday just to remember what the action of brushing my hair felt like. I'm due to go in to work this week to catch up with my bosses but I am so embarrassed by my looks that I am seriously considering putting it off. I've not been in to the office for over 3 months now and feel very remote from them all. Worst of all I feel quite panicky when I think about going back to full time work. Truth is that if I go back to work part time I'll lose my benefits which will put us worse off so it's an all or nothing situation which is not helping. And the thought of sitting in the office all day is now not something I can bear to think about.
You all know that I've been doing dog training part time previously and I've carried on doing the odd bit during my treatment to keep me motivated but even that, at the moment, seems like a big chore. However, it's the only time I get out on my own and I do still get a kick out of helping people. I would so love to do it full time and agree with Pixie that we're all making huge life changing decisions at the moment (BTW, you'll be great as a life coach!) but even making a decision about whether to move away from this area (which currently gives me a good client base) or stay here and struggle on with the financial fall out of bc is making by my head hurt. Then there's do I want to do my own thing or just settle for a bog standard job in an office that I can do 9-5 and not worry about at weekends and evenings? Which is what I am now afraid of... lol!! Pixie I may just be your first client lol!!! And this is all making me very cross!!!!!!!!
Well done Pixie on reaching the £3000 mark - go you!! And the books sound interesting too. I have the idea of doing a series of short dog training books and then wandered off into a whole book about my experiences with bc and the benefits system which culuminated in me doing a stand up routine in a theatre and touring it round the country. And it's not all about the money these days, I just want to be happy, less stressed and comfortable... does that make sense?
Sammeelee - LOVE the idea of vintage jewellery and artwork made from pieces you can't or don't want to wear at all and other bits and bobs of nice materials and buttons etc. My daughter loves everything vintage so would be a good customer I'll bet!! I've started accumulating vintage tea sets - 1950s types - just need somewhere good to display them. Hmmm... a tea shop possibly... (oh god another idea...!) If you need any help with websites or networking at all, let me know... I bet it'll be a huge success!!!
Hot flushes - I've had them for years but never ever like these. I can feel hot and cold all in the same moment. Am driving the family mad as I had the heating on last week and was wearing socks and the hat to keep warm. According to my onc, I'm not even through the menopause yet but actually I think I'm pretty much there and so does my GP. Apparently my ovaries are still active lol!!!
Hand, foot and mouth - sounds awful - just what you need at the moment! I had a really ill day a couple of weeks back and was laid low so am sending you healing vibes!!!
Southpool - am rocking the earring thing myself. I've always liked long drop earrings so have a few nice pairs to wear and they look great with no hair. I have a little growth back but have lost most of one eyebrow and my eyelashes. Am hoping they are back soon though.
Did someone mention decluttering? Oh how I long to be able to do that. I have a lot of clutter in the garage and the loft that needs doing. OH has said we can start going through it when I'm well. Will be a huge weight (literally off my mind) to get it all sorted out!!
Hilary - can I do the horse riding? Haven't done it for over 20 years and it's on my list of things to do once this bc debarcle is over. Not very good with bikes so reckon that it's the safer option for me. I'll bring my own velvet hat and hacking jacket... lol!!!
Finally, Pixie - I cried with laughter at the social services turning up to find octogenarian, drunken arsonists. Love the fact they have a home made greenhouse and an Anderson shelter!!! You really need to write this all down... because you couldn't make it up..!!!
With much love to all our lovely fabulous bunnies and hope you're having a good bank holiday weekend wherever you are.
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Hilary - I'm here too!!! Loving the Spa... spent the whole weekend feeling pampered and relaxed every time I lay down. Which wasn't much lol!!!
Hello to all the bunnies in the warren, glad some of us are now getting out of the gloomy parts. I have to say I have been waiting for the bit of a st eroid crash but so far so good. Feels weird to be through the chemo now and a bit sort of odd. After all the practical stuff we've had to cope with and the SEs I guess now comes the philosophical and thoughtful phase! Not looking forward to that one much... a confession from me having watched a lot of info on TV recently, I am on anti-depressants and have been for some years. I had a bit of a breakdown some years back but managed to stay strong and on the tablets. Had another one - all stress related last year way before bc came along. Life has been tough for me but I have always bounced back and that's what I cling too.
So, from that comes my silver linings...!! Definitely get the idea of having time with the kids, although mine are grown up I never regretted working part time so that I could have quality time with them. These days, I have other things to be thankful for.
For my lovely OH who has finally understood that we are living too much of a stressed lifestyle. It's been lovely to be with him so much too, and I never realised he was such a good housewife! I may never do any housework again!!
My wonderful kids who have been brilliant through this whole debarcle. From start to finish, they have been there with me to give me hugs when I was tearful and laugh with me when I thought my wig was going to blow off!!! I am so lucky to have them.
The dogs... well, they've had the summer off from training and working with me. They are loving the break and are really chilled and relaxed. As for the dog training, well I have had lots of positives come out of this break and have learned so much more about where I want to go and what I want to do. Next year I really will get my a*se in gear!
Work and money... Like Pixie mentioned a few posts back, the world hasn't caved in and although it's been tough and I wouldn't want anyone to have to go through this in the same way, I am now more relaxed about the whole life work balance. I don't think I will ever feel the same again about working for someone else and right now, my focus is on getting our finances back on track and then kicking employment into touch. Why have I wasted my life being so stressed? And on behalf of other people too?
Finally, the biggest silver lining has been the warren. To find some other like minded souls who don't want this journey but are going to do it their way has been fab. I can't wait to meet you all.
Much love and hugs from the boiling south
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Gone to bed and wired on st eroids so will be awake all night lol!
Nat - go you nearly there will be thinking of you tomorrow.
Everyone else hugs and waggling ears. I know I'll crash next week so will write a long post tomorrow on the laptop.
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Just back from my last FEC!!!! Feels slightly odd mix of euphoria and weariness. But I've done it bunnies!! Longer post to follow but thank you all for helping me through it!!!
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Happy birthday Vanns!!!! Despite everything being so pants at the moment, hope you have a good day.
MarGie: sorry to hear about your loss, you're right it's an extraordinary year and not always in a good way. Thinking of you and sending you a hug.
Did type a long message on my iphone but the site decided to lose it! Was moaning as usual anyway... lol!!! To be honest, am feeling a little better phyisically but mentally all over the shop like a drunken sailor! No olympics either to make me feel better. And had a flood of tears at the dousing of the flame (more than usual) which caught me off guard a bit.
Greatest achievement? When I turned 40 I said that I would stop being the nervy, anxious person and start living. I've been blessed with lots of new opportunities and met some great people who became friends and did things that I wouldn't have believed I could do. Nothing earth-shattering but they were BIG steps for me. However, I have to say that my greatest achievement is raising my kids from happy little toddlers to well rounded, adjusted, confident and caring adults. They have been a great source of pride to me and I can't believe that they are my children some times I am that proud!
Okay, that's it for now... off for my final blood tests and doctors visit prior to 6/6 chemo. Can't believe I've typed that and am almost done!! Come on girls, we can do this!!!
Peace and love bunnies,
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Hello bunnies - well just when I thought I was feeling better and more normal I get some sort of virus or something and spend the weekend throwing up and having the runs (at the same time). Went out to lunch with a friend on Friday which was lovely but obviously overdid it. Since then can't keep anything down and for the last 48 hours have felt worse than at any time during this whole saga. Who knew that chemo was such a terrible cure!???
Poor Big M, have sent you a message - will have to forego our meeting tomorrow. OH has put his foot down and said that I'm to rest until the last chemo is done. He's worried that I may not be able to have my chemo this week due to the virus. Am feeling pretty awful and sorry for myself too. x
Watched the Olympics last night and am looking forward to the Paralympics too. Has been the only thing keeping me going (apart from the warren and Spa del Campo) recently. Nice to know that there are normal people out there living normal lives.
Campo - thank you for the lovely visions. Have been using these over the last day or two when I felt awful. Have been in the hammock listening to the sea with tears streaming down my face but the breeze from the trees has been a thing to concentrate on. Thank you x
Sorry to whinge so much but seems like this journey is not quite over yet. And I so don't want to have the last session and feel ill again.
Hugs bunnies, I'm hopping back off to the hammock!
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Feeling much better now and on the countdown to my last session of chemo next week. Brilliant news that so many of you are now through chemo. I can't wait to join you all!!
Gadgetgirl lovely to have you back and go you on losing weight!! I have now discovered that I weigh almost as much as two of the flyweight lady boxers!!! My lovely OH pointed this out but has sworn to be my personal trainer in the new year to get me back to my normal fighting weight lol!
Sex: you lot honestly lol! Can't even think about it let alone work out the actions!! Tbh my boobs feel weird enough as it is and I had a bit of a wobble about never feeling the same again. My OH has been great with lots of cuddles and tells me that I still look fab. Scarred boobs, bald head, fat rolls and all!!
Pepihorse: am now also thinking of you as a Thelwell girl lol! Rode as a girl myself and might take it up again one day!
Chrispie: have a wonderful time at the tattoo!! My daughter is mad for anything Scottish - too many Burns Nights as a child lol!
Vanns: am definitely channelling my inner athlete. So far I've watched pretty much every sport so am now ready to take on the world!!! We have all risen to the Olympic challenge and we are definitely world beaters!!!
Everyone else have a fab day!!! Sun shining here and a full day of sport ahead!! I'm exhausted already!!!
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Vanns just popping in before bed and would say definitely speak to your local Macmillan team. They have been brilliant for me more so than the BCNs who are lovely too but I just clicked with my Macmillan lady and she's been a tower of strength. Hope you find someone to help and listen.
Night night all
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MarGie: will be thinking of you on Friday. Hope everyone else's parents are okay too. I lost my dad a couple of years ago and my father-in-law a couple before that. Still got the mother around (nearly 80 and still ignoring my illness) and my mother-in-law (70s and a bc survivor of nearly 40 years) who are both fiercely independent so am blessed that they are in reasonable health.
Hugs, Sarabee xxx
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Well I am on my good day... rather than a good week! Have been more like myself mentally so catching up on emails and calls and everything else. I was awake last night worrying that I was moaning too much on here last week but Sammeelee and Southpool have written exactly what I was thinking so thank you bunnies for making me feel that I am actually "normal" and not a big fat balding whinger! Can we go through post-traumatic stress? I have been worrying about my OH, my kids, my job, my health, my future... all in big chunks, which is not good.
Anyway, on with the motley. Hello to Southpool, Sammeelee, Campo, Vanns, GMT, Ambarose, Libby12, Nat, Christine, Big M, Wendy and Pixie. If I've forgotten anyone - it's the poor memory... I really need a list lol!!! Big M, have sent you a message about our meet up on Monday - thank goodness you reminded me lol!!! Not sure I'll cheer you up but we'll have a laugh trying. I'll be the one wearing a wig and carrying a pink i-phone... you won't miss me!!
Campo - thank you for your post today. Am always channeling your lovely posts about sea breezes and punkha wallahs and fruit juice especially when they are scrabbling round to find a vein. Also thanks for the heads up on the rads.
I had my first meeting at the Royal Marsden Sutton yesterday for my rads information. Was a big shock to see so many people in the outpatients knowing that they had cancer related illnesses. Anyway, had a good meeting with the consultants registrar who has asked me to go on a trial that they are doing to see if rads can be speeded up. Basically there are three groups, the ones who have 15 sessions and two groups who have 5 sessions with larger and smaller doses. If you get on the 5 sessions group, they will give you top up sessions so you won't lose out but the idea is that initial tests have shown that higher doses and shorter treatment times is as effective as the normal 15 sessions which helps with recovery times and less stress for the patient. I'm happy to do it especially as it might mean that I get my rads done faster. But the positive is that I know now that my rads will start mid September (3 weeks after my last chemo) and that at the very worst I'll be done with the treatment by end September latest. My OH was so pleased he kept smiling and squeezing my bad hand - I didn't have the heart to stop him! He has been brilliant but very worried over the last few weeks as I got more and more tired. Now we have a date to work towards and it's much easier all round.
Olympics - it's been brilliant and I'm watching the sailing as we speak. Not quite as warm as the Spa del Campo, but still a seaview. I have tickets to the athletics paralympics in early September (already told the hospital about it and they said that's fine) and I can't wait to go and see the Olympic park and the buildings. Super Saturday turned into Super Sunday as my OH brought me my own gold medal. Tears in the lounge as he made me stand up on a footstool and then officially presented me with my medal. Okay, was wearing pjs and a beanie hat and the picture he took of me with a shining round face was funny but for a moment we felt our normal silly selves!!!
Pixie: your post also caught a vein (I wish) with me. I don't think life is ever going to be the same again for me or my OH. In fact, he's talking about lifestyle changes and getting me fit again. I have always worked hard, brought up the kids, did school things, chaired the PTA for some years, raised money for charity and generally rushed around non-stop. We've never had much money but we've been relatively okay until now. And do you know what? I suddenly don't care. The world hasn't stopped turning and although I know I have to go back to work of some kind, I'm not prepared to put myself through the stress and agony of recent years. It simply isn't an option now. When I first got diagnosed a friend said that this was my body's way of saying that enough was enough. I had been so stressed for three years working all the hours I could that I didn't see any way off the treadmill. Not quite what I would have wanted but maybe, just maybe bc will turn out to be a big positive for me and my OH.
A long while back on the posts I said that I wanted to get involved in helping people through this sort of thing in the same way that we have helped each other. I really do want to get involved in the Macmillan work because my contact at Kingston has been wonderful. If they are starting a practical help drive - to help out people who don't have the support or family around them - then I'd love to get involved in that too. I can't think of a better way of giving something back. So there's a new door opening up for me too.
Right, that's it for now. Still watching the surfboarding from Weymouth. Campo - can you sort out the weather?
Bunnies - stay positive and good luck to those of you on your last chemo session. Can you believe how far we've come? Gold medals all round I think...!!!
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Sarah - I also thought about doing the au natural look in honour of the cycling team. Would be much nicer than wearing the wig. Am now reduced to wearing a hat in bed to keep my head warm. Obviously am following on from the dad who was wearing his long johns. My dad always wore a vest summer and winter lol! Thank heavens we haven't had a heat wave so far lol! xxx
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