Angelhearts and Raechi,
My heart goes out to you both and hope very much that the situation improves with all you have both been through.. I consider myself very lucky when I read about your experiences with TAX. The main side effects have been in keeping with what my ONC said I may experience. Mainly joint ache, flu like symptoms, sore mouth but not sore throat, tingling finger tips, sore soles of feet, rash on face and finally fatigue. All these symptoms I have managed but the most distressing was sore mouth. I need to research peripheral neuropathy as my ONC hasn't mentioned it. In comparison to what some of the ladies have been through mine have been tame.
I have researched hair loss on TAX and am alarmed to find that in rare cases and I stress rare that hair does not return with a small percentage of women having permanent hair loss. I tried the cold cap on 2 occasions
whilst on FEC and kept my hair apart from thinning on top and because of
this decided not to bother with cold cap. Whilst on FEC i lost most of my body hair, on legs, underarms and pubic hair, all gone and still no regrowth. On TAX I have found eyebrows have thinned and so have eye
lashes however my hair seems to be growing with 1/2 an inch growth all over but the top of my head can still feel smooth patches. I imagine on my 2nd TAX this Friday I will lose the growth again.
I've to have surgery around 4-6 weeks after chemo so that's another bridge I'll cross when I get to it.
I send out heart felt love and blessings to all you courageous and lovely ladies and hope the sunshine is lifting your spirits.
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