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xwelcomex
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01-05-2012
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12-09-2011
08:46
Ah well done and thank you to Suzi Perry being brave enough to consider the impact of this and understand the issues
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12-09-2011
08:46
Ah well done and thank you to Suzi Perry being brave enough to consider the impact of this and understand the issues
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11-09-2011
11:39
Yes, The Wright Stuff are running it tomorrow. You might want to call in or email them on air or beforehand to make your views known.
If you use Fb you might want to 'like'' the page Boycott English Threads.
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11-09-2011
11:23
Almost all comments have been removed from the company's site. However, if anyone does take this to the press, please inbox me first. I have something helpful.
And, to add a bit of balance, some of these are as bad
http://www.zazzle.co.uk/breast+gifts
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11-09-2011
11:03
If anyone does take this to the press, please inbox me first. I have something helpful.
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10-09-2011
08:14
After I was told about the T shirt I posted the first query on the Breakthrough site this morning; couldn't quite believe they had ok'd it. Then went over to English Threads to suggest that they had it wrong. It is heartening to see the support in favour of my comment since this morning.
So big dislike.
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10-09-2011
07:28
@Jude48 (sorry, a few pages back)...I have already written somethng to that effect on the Fb pages of both English Threads and Breakthrough (the national page ..there are regional ones too). It makes me go 'ugh' but you have to 'like' the pages in order to post on them. Unless others do the same this kind of thing will continue.
On the English Threads Fb page, among the comments from those with bc explaining why they find it offensive, it is telling that some (non-bc) people are writing things like 'lighten up!' and describing the t-shirt as 'cheeky and fun'. I think that shows why it IS a problem.
Heart attack? Lighten up!
Bowel cancer? Lighten up!
Brain tumour? Lighten up!
Eye caancer? Lighten up!
Alzheimers? Lighten up!
No, of course nobody would say it. So why is it ok to have a giggle about breast cancer?
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09-09-2011
03:21
Outrageous, disgusting. Go to the Breakthrough website on Fb (the national one) and add to the thread about it there. ('like' the page and you can add a comment')
The message that this gives is so wrong that we might as well go back to the days of shame about breast cancer. If the man who owns the company had cancer of the penis and had it removed, I doubt he'd be producing pants saying 'nice dick'.
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20-08-2011
10:50
Ask GP for melatonin/natural 'sleep' hormone
Is approved for over 55's with certain sleep probs in this country but everywhere else is available over he counter. I got it at 44 - GP considered circumstances special enough 🙂 Works brill
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20-08-2011
10:47
In Somerset?
(Facebook link deleted by moderator)
More networking and 'doing'/face to face than chatting online, but page is totally private. Do ask for an add if you are in/near Somerset.
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11-08-2011
09:57
I believe neo-adjuvant chemo is often the preferred treatment, especialy for larger tumours. It often means that a lump can be reduced in size (by the chemo); you're then able to have a lumpectomy rather than a mastectomy. 🙂
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08-08-2011
11:12
Yep, choccers has it. It's the way it is delivered that pees us off.
I mean, exercise, yawn, cancer, yawn...it's not exactly new info is it? I think it's the idea that non-cancer (ordinary? lol) people will see it and think I'm some lazy bum that asked for it that annoys me. As it goes I do three miles every day with the dog, but that's neither here nor there. I don't fit ANY of the other criteria for bc either.
I had lunch the other day with a work associate who I'd only ever spoken to online. She knew I had bc. When I met her she said "Oh, I thought you'd be really fat or something, what with having cancer". (Probably one for the 'stupid things people say' thread too). I've never been overweight and even if I had, it doesn't follow that all overweight people are going to get cancer. Clearly though that was her impression.
So then. Following the risk factors, we are all steak-munching, idle, fat, very tall (yes, it's statistically true), have a family history of bc, had no kids until well past the point at which we ought to have done, had periods when we were 9 and menopause at 60. And then there's the wellies, don't forget the wellies (sorry to newish people: in-joke). Put your hand up if you fit the profile.
Bah 😞
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08-08-2011
09:23
08-08-2011
09:13
Was dx Jan 2010. Had no idea until I saw this that I could have claimed money; know nothing at all about govt benefits. Was self-employed and did not earn anything for a year so have HUGE debts now.
What a shame there is no advice about this at the point of diagnosis. :-(.
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07-08-2011
12:17
Hi...thanks for posting this...do let us know how you get on.
I'm HER2 and was dx at stage 3b in Jan 2010; just finished Herceptin. Pertuzumab has had quite a lot of mentions at the bc symposia hasn't it? I read a few conference presentations and it looks as though its worthwhile.
Pleased to see its being trialled for the ok here. By the way, do ask your onc about Neuvax (HER2 vaccine), which has had stunning results in phase 3 trials in the USA and is heading our way. Depending on your exact HER2 status, youmight be eligible for forthcoming trials of that here soon too.
Keep us posted and hope it does the trick for you xxx
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07-08-2011
12:08
Haha norberte... you made me laugh girl...and I needed it.
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05-08-2011
08:10
05-08-2011
07:53
The most accurate online prediction tool seems to be the UK NHS one, especially if you are ER negative. It's at http://www.predict.nhs.uk.
There's a through presentation explaining the data it uses at the BASO site - it was presented at a conference in 2010 (think it was the BASO/ABS one). You can lsten to the presentation there and see the slides if you;re interested.
Predict accounts for HER2+ but does not cover HER2+ treated with Herceptin. At the conference, they said that that data on that would be available from July 2011 and incorporated into the tool (but it doesn't seem to be on there at the moment). It seems CancerMath and AdjuvantOnline have their figures way out for HER2+ (sadly, overestimated).
As for whether you should know your prognosis, I fall into the 'why not' camp. KNowing mine (= a bit pants) has been important to me and it has influenced (in a positive way) the decisions I make now.
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02-08-2011
10:27
Well, the thread title, from what I've read, is only partly true.
It might not always be effective without some help, but targetting the immune system is a major focus in treatment research.
One of the most promising fields is in immune therapy for HER2 cancer. It is by manipulating immunity and sensitising it that such amazing results are achieved. Looks like it's finally coming our way after phase 3 trials in the US.
http://www.ukmi.nhs.uk/applications/ndo/record_view_open.asp?newDrugID=5337
Here's what CRUK are up to with the immune system
http://search.cancerresearchuk.org/search/results.jsp?siteid=0&query=immunotherapy&go.x=0&go.y=0
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