Hi bunnies
I cannot believe 5 days have passed since I last posted. So much to say - but will my chemo brain remember it all? I doubt it!
First, thanks to everyone for the lovely messages about my Mum. Her funeral is on Friday down in Hampshire. My lovely onc is giving me extra steroids to help me through it. It is a long drive and will be an emotionally very stressful time, but we must all remember the good times with her. After all, she was 91 and had enjoyed her life.
I had my pre-chemo meeting with my onc last wednesday. She is fantastic. Aside from the extra steroids for the funeral, I also discussed with her the breathlessness, pain in my trachea and cough that I'd developed, and also the exertion of going to the Olympics. First she sent me to have a different kind of CT scan - this one to rule out the possibility of a blood clot .... apparently another possible side effect of tax. The most skilled chemo nurse - most skilled at getting cannulas in - did my cannula before I went down for the scan. The radiography team said they wanted a pink cannula - big - but the nurse refused and used a turquoise one. That led to a big debate among the radiographers who said it wasnt big enough .... I went into melt down, after all it was only 15 hours after hearing my mother had died. I was in no state for any of it. Anyway, in the end they used the turquoise cannula and it worked. Luckily, no blood clot. However there was a 'patch' on my lung of a 'non-sinister' nature. Probably inflammation. The upshot was a prescription for some antibiotics and a different kind of steroids, both to eliminate the cough etc and to help me through the journey to London. Cough has now pretty well gone, as has the pain in trachea. Still breathless, but that goes with the chemo.
So, we made it to the Olympics on friday. Magic! The atmosphere was amazing, both in the stadium and in the park itself. We had tickets for both the morning and evening sessions so saw 4 of Jess Ennis's heptathlon disciplines. I slept on the grass by the river for an hour and a half in between the two sessions!!! It was totally exhausting but I wouldn't have missed it for anything. I slept on the train coming home on Saturday, then slept for 10 hours on Saturday night! I wonder if different steroids have different effects in terms of sleeping. The usual ones around chemo are dexamethasone, but the ones to help me with the chest and the Olympics are prednisolone. Like other bunnies, I am enjoying the Olympics SOOO much. So much choice of what to watch. I'm glued! I thought of Vanns over the weekend and hope she enjoyed it all as much as I did.
Campo, I loved your post to Pixie telling her off for snoring. She's a terror, isn't she!!!!
Christine, I hope your Dad is better now.
I am so pleased for all the bunnies who have had their last chemo, even though we know there are still all the SEs to be got through. That will be me after this Wednesday. Yippee.
Teeth - I've noticed a change in my gums through chemo. I am a serial tooth grinder and have to wear a tooth guard at night. I am aware that this is fitting differently now to how it was before chemo started. Also I have two side by side crowned molars which I know have moved apart because I get something stuck between them every single time I eat anything. I also lost a big, big filling from another molar right at the start of chemo but decided I had no option but to ignore it till after chemo. I'm pleased to say I've had no probs with it, but cannot wait to get it sorted out. My onc said to leave it 4 weeks after the last chemo. I also asked her about eye tests and she said to leave that for 4 months after last chemo to let things settle down.
Hair - definitely growing, albeit sparsely, but the chemo nurse advised to shave it off once it reaches half an inch to get rid of what she called chemo hair. I'm a long way off the half inch right now. Can't wait for the LG hair to grow again. There is something so wrong in being totally smooth and hairless down there!!!!
Have I said I have my rads planning on Aug 22? Wendy, I can't believe they are reckoning to start your rads so soon after final tax. That shows very little regard to your personal well being. I hope you are managing to change it.
Pixie, hope portacath ooze is improving.
Must end to watch GB's equestrian jump off for gold/silver ...
love, margiexxxx
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