Pixie, first of all I hope you start to feel better very soon. It is a complete disgrace the way you have been treated. Your OH is right. He must complain, but let him take the strain of doing this while you concentrate on getting better. My heart goes out to you.
I had my tax1 yesterday. After being checked over by the onc due to my sore throat and mega summer cold, we decided together to go ahead. I really didn't want a delay. Fantastically the nurse got the cannula in first time this time (4 attempts last time) and I felt the 'experience' of tax v fec going in was much less stressful, probably due to just having the one drug instead of 3. Right now, I am having a duvet day but feel OK - but am fully anticipating the tax tank/truck/train to hit me within the next 24 hours. Such a shame because we've yet another 'experience' day coming up on Saturday if I can manage it .... at the end of last year my OH bought a new BMW. The BM dealership nominated a 'charity supporter hero' to be an Olympic torch bearer - he carried the torch in another area but on Saturday is paying a visit to the dealership to meet invited guests and we have a slot booked to be photographed holding the torch ourselves. I'm going to drag myself there no matter what, even if just for 10 minutes for the photo!!!
It's proving to be such a strange year or highs and lows. The bc is the obvious extreme low, but what with our jubilee pageant, my dil running the race for life, this olympic experience, tickets for both the olympics and paralympics, there are many highs. I will look back on 2012 as one very unusual year. We also had our holiday in Dubrovnik after my surgery and before I started chemo ... that was amazing. I never said at the time, but for some reason we were upgraded to the very best suite in the Dubrovnik Hilton, directly overlooking the beautiful old city. Some American guests in the next door suite gleaned it was our wedding anniversay on the Saturday, told the hotel manager who organised for our room to be decked out while we were out. We came back in to find kissing swans fashioned out of towels on the bed, surrounded by a big heart of real rose petals and a gift of bathtime goodies for me!! Not bad for a 39th wedding anniversary. We have lots of photos of this and the other 2012 experiences - think I will have to make a scrapbook for highs and lows of the year!!
I've blown it as far as Race for Life goes - I've told so many people now that I am going to do it myself next year that I won't be able to renege on it. Oh dear. Some serious training coming up later this year!!!!
Well, after my 4th juicing I really am starting to feel the end is perhaps in sight. A glimmer of light is shining through from the burrow above into my corner of the warren. At my next onc meeting in 2 weeks I get to have my first meeting with the radiology onc to start planning the next stage of treatment and also I have agreed o take part in a clinical trial. It is an international trial - sample size amost 3000 - and I fit the criteria apparently. Itis looking into the use of an osteo-arthritic anti-inflammatory as a means of reducing the chances of a recurrence of bc. They believe tumours thrive in inflammatory situations and think this could help. All it entails for me is to take an extra tablet day for 2 years and have on-going check ups and extra blood tests. I can't see a downside (except perhaps the blood letting!). This will be alongside the Arimidex hormone therapy already planned so no change in the planned treatment, plus I get the bonus of more closer monitoring over the first 2 years after chemo. Only ral potential downside I suppose is that it will be just my luck to be one of the 1 in 3 people in the trial on a placebo, but I'll never know!
By the by, I had a scam email via bcc forum last night - someone called Vic aksing be to be her friend. Never heard of her and her email was all about her and her baby. I've forwarded it to Mike. Also, is anyone else getting ALL their postings from our thread direct to their email account? No need to log into the forum to read all the messages from lovely bunny friends. I've alerted bcc to this as well. I'm sure it's not a secure situation.
That's all for now. Love to everyone, especially Pixie of course at this particular time. Even though I'm not mentioning others by name, we're all together in this and I love and value your support.
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