I've been a bit quiet for the last few days - reading posts on my mobile as they come in but not posting because I have to get the laptop out to do that. I do hope we can start writing postings on mobiles again soon, when everything can be so much more spontaneous.
Where do I start - first by welcoming our new bunnies.
I'll get my situation off my chest first if you don't mind, then I'll do more chatty stuff. After my really horrible experience with the cannula on my FEC2 I have truly become cannula phobic. My hand (aka bunny paw) is still bruised and tender and I'm now on day 12. I am really angry about the way the nurse delivered the drugs. She was careless and heavy handed and I'm still suffering as a result. I am going to complain vociferously to the onc when I have my appt on Wednesday and say that I will refuse treatment from that particular nurse if she ever comes near me again. Not sure how this will go down, but I have to give it a try. Anyway, I knew I had another cannula experience coming up last Friday when I had my CT scan. Building up to it, I felt really sick with scaredness and barely slept on Thursday night, then I cried my way through the insertion on Friday - the nurse said she needed to avoid the back of my hand because of the bruising so she tried in the crook of my arm - got it in and it popped straight out. She then managed to get it in to a vein on my wrist, up from the thumb. What a relief when it was done and I slept like a baby on Friday night (might have been more to do with the wine that evening though!) The scan itself was OK - hope to get the results on Wednesday. Other than that, I'm still really lacking in energy but sort of OK.
Onwards to nicer thoughts. The idea of a spa outing is brilliant and I'm definitely up for it, anywhere from London area up as far north as, say, Leeds/York area, or into Oxfordshire, Bucks, Berks, Herts, Essex, Hampshire, Surrey .... the only thing is that September would definitely be too soon for me as I'll be starting 5 weeks of rads in Sept and anything in a pool is forbidden during rads. That'll bring me to late October. Pixie, I totally agree that we should do this when everyone that wants to take part can do so and actually rather like the idea of doing it in April when we'll all be able to celebrate getting through a year of all this. But if it's sooner, I'm still up for it.
Wigs - Talullah's wolf whistle - brilliant (also pom-poms, berets etc!!!!) I've named my wig Minnie (mini-me) and, having said I didn't envisage wearing her often I finally plucked up the courage and wore her on Friday when OH and I went for a pub lunch after the cannula trauma. Felt great to blend in and not stand out like a chemo victim in a headscarf, felt like myself, and now reckon I am going to wear her most of the time. Honestly, those who are still hanging on to their hair by a thread you will feel better once you've taken the plunge and got rid of what's left. Like someone else - was it Vanns? - I have never been that bothered about my hair - yes, I like to have it well cut and highlighted, but I didn't think it would bother me too much when I lost it, but when it came to the crunch I was beside myself with upset as it fell to the floor. It took a while to come to terms with the baldness, but it was so much better than worrying about soreness, itchiness, bald patches etc and now I can't imagine not having done it. Strangely I keep running my fingers through my non-existent hair!
Different regimes - yes, it's really weird the different regimes our Oncs dream up for us. As far as FEC being only for ladies with existing tumours (Repunzal's post) - my tumour was removed yet I'm having FEC and as far as Tax only being neo-adjuvant (Pixie's post), I'm having that as adjuvant, not neo. It seems to be fairly arbitrary according to the individual onc. Pixie, I'll post on your different regimes thread so you have all your info together. It'll b interesting to see what conclusions you can draw, if any.
Teeth - I had been thinking my lower left molars had moved apart before seeing pixie's post about teeth so I gues that yes, the chemo has affected my teeth. What's more a chunk of tooth fell off a well-filled upper molar on Friday. No chance of having that hole filled for a couple of months - and I've always been so careful of my teeth, never letting anything go unchecked.
I had so many other things to say but can't hold information in my brain any more so I'll just send love to all the bunnies and good luck to those being done over with sparkly carrot juice this week.
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