Breast Cancer Now Forum

Hi Teresa, Sorry you have joined the club no-one wants to be in. I too am under Miss V...though originally I was under her predessor Mr S. I was dx 7 years ago aged 43 WLE. grade 3, no nodes involved, Chemo, Rads and 5 yrs Tamoxifen. The group does meet up regularly at The Longford Inn in Gloucester, not sure when next meet is...but am sure someone will say soon. Yes it is like living a nightmare and hoping to wake up and find it was just a dream 😞 x ... View more

Such sad news....Cat and I spoke often on facebook....I too am devestated by this news, another life taken far too soon. Love and heartfelt condolences to James and Nathaniel.....going to miss you Cat xxx ... View more

Correct cromercrab....decaf is ok...forgot that 🙂 x ... View more

Glad to hear your allowed home SGL, be sure to drink plenty of fluids, I used to fill a 2 litre bottle with water and drink from it all day to be sure I had at least 2 litres a day, Tea and Coffee don't count as they are dehydrants .......xx ... View more

Hi Chris, Hope you've managed to get your new home sorted, you've certainly had a well travelled summer. Hope everyone else is doing well. ... View more

I am 7 yrs post dx, had yearly mammo's up to five years then 2yrly ones, though I did have one last year due to a concern then when my next appointment came they said I couldn't have my mammo as I'd had one in the last 6mths....phoned my BCN ....consultant intervened and told them reason why I'd had mammo' and that I was on a plan that had been set up by consultant and I was to have the mammo'...which I did. Then today I got called for Breast Screening.....so that will be another phonecall on Monday....obviously they do not check their records!!!..... I was anxious about going to 2 yrly so def., would not be happy about having to wait 3 yrs....especially after only a few years post dx.....I will seriousy be conidering paying for mammo' when my check ups finish ( fingers crossed I'll get that far!! ) ... View more

I am 7 yrs post dx, had yearly mammo's up to five years then 2yrly ones, though I did have one last year due to a concern then when my next appointment came they said I couldn't have my mammo as I'd had one in the last 6mths....phoned my BCN ....consultant intervened and told them reason why I'd had mammo' and that I was on a plan that had been set up by consultant and I was to have the mammo'...which I did. Then today I got called for Breast Screening.....so that will be another phonecall on Monday....obviously they do not check their records!!!..... I was anxious about going to 2 yrly so def., would not be happy about having to wait 3 yrs....especially after only a few years post dx.....I will seriousy be conidering paying for mammo' when my check ups finish ( fingers crossed I'll get that far!! ) ... View more

Hi,I found rads no problem....parking is always a problem at any hospital it would seem at the moment..but at least whilst having treatment in Cheltenham the parking is free. I know alot of people who have found Maggies a nice relaxing. non-clinical place to go whilst waiting....it wasn't there when I was having my treatment unfortunately, so I too spent most of my time whilst waiting people watching too!!!.....though I did meet some lovely new friends in Oncology waiting area....I was pre-warned to expect to be waiting alday so was prepared for that. ... View more

I had WLE node sampling in GRH in 2004, I too had a bad experience there, but this was before surgery and is a long story. I will say that after that, my experience of GRH has been wonderful, my surgery was carried out by the surgeon Miss V replaced...in and out in 24hrs...no probs, but at that time my surgeon insisted on his paitents having surgery on Russett ward (no longer there ) to reduce chance of infection. I had wonderful care by my surgeon and my BCN's. ... View more

How about setting up a '' LONGFORD LADIES '' page on Facebook??? xx ... View more

Hi All, Noticed in the local paper last week that it said ALL breast care services are being transferred to Thirlestaine House in Cheltenham...I know mammograms are over there now.....does anyone know if this means check ups , referrels etc., will all be over there too? x ... View more

Hi SGL, I've already msgd/spoken to you on FB, but wanted to say how I don't understand how yr consultant could tell you what yr treatment plan would be before the pathology reports were back....I thought those kind of decisions were made between consultant surgeons and oncologists AFTER resuls were back.....was definetly out of the ordinary. I should think, for a consultant to give that kind of information without having the facts ie., grading etc., My consultant told me what could happen in worse case scenario but added he couldn't say what my treatment plan would be until after pathology results.....raddiotherapy was a definate from beginning but Chemo and Tamoxifen were decided AFTER results. Like you the thought of chemo completey freaked me out....although, strangely I wasn't worried about losing my hair....it was just the thought of chemo/side effects etc.,...I had FEC and fortunately had NO bad reactions at all!! Takes a while to get yr head round it...but as many have said it is doable.....I was put on anti-depressents, Tamazepam....and before chemo was administered I was given a Lorazepam tablet at oncology to calm me down.....7 yrs on I still take anti-depressents, Diazepam and sleeping tablets.....may seem weak to some to still be on these...but as my GP says....they enable me to maintain a normalish life and continue with my job....and help with the demons that still lurke. Do seek help/counselling.....we have a wonderful new Maggies Centre now....I wish we had it when I was first DX...they offer all kinds of support. DO NOT....compare your dx with anyone elses....everyones case is individual to them. Take care. x ... View more

SheanaY.....So very sorry to say tht Sheana lost her fight last night and passed peacefully away with Gary holding her hand. She would of been 50 next Friday and also leaves 2 teenage sons. I will miss her very, very, much x ... View more

Sorry to hear about your friend busybee2161 x ... View more

Very sad to say that dear Sheana lost her fight last night, she passed peacefully away with her partner by her side x ... View more

busybee2161.........so sorry you also have a friend in the same awful position......causes alot of mixed up emotions doesn't it......feeling sorry for the family and children but most of all feeling sorry for the person concerned who's life is going to be cut short by this awful disease, who's gone through hell and fought for life...who does not deserve this to be happening to them...and sorry/angry for all the things this disease is robbing them of seeing. Sorry I am very angry at the moment!! I do hope one day to get to a meet...always seem to have so much going on or/and working. xxxxxx ... View more

Hi, Everyone, bit of sad news actually, one of our group 'SheanaY' is now in Sue Ryder, she was dx with secondaries about 6 mths ago and in the last 6 wks has gone down hill rapidly, I have today been told she is mainly sleeping and the medical team feel she will slip away in her sleep in the next few days. Feel so sad/angry, she has 2 teenage sons and is not yet 50, life is so very cruel at times. x ... View more

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