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Bethy
Member
since
01-05-2012
82
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2
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16-08-2012
02:36
Hi
I was diagnosed in 2008 with Invasive lobular Grade 2 , node involvement. I only had to add my signature to add to the claim form, my consultant did the rest. It was a very tidy sum and made alot of difference at the time.
Best of luck.
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26-07-2012
04:21
Hi Goldie
I have now been on tamoxifen for 3 years but during the first 3 months I remember a spotty like rash area that appeared all over my chest and neck. I was so concerned that my consultant did a punch biopsy. I am pleased to say it was alsolutely nothing to worry about and with the help of some soothing cream that he gave me the spots went after a week or so. I think we forget what our poor bodies have been through with chemicals etc.
Best of luck
Bethy x
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16-07-2012
01:17
Hi everyone
I was originally diagnosed with BC in Sept 08. I had lumpectomy,full lymph clearance ( 4 nodes involved), chemo,& radiotherapy.Been on Tamoxifen since April 09. I have had a lot of stress over the last few years and now more with elderly ill parents. Anyway,2 weeks ago went on holiday and on the first day shingles started to appear.... what I really want to know ,has anyone else had shingles, was it related to cancer in any way and what can I do to strengthen my immune system.
Would really appreciate any help on this one as I am scared that its a precussor to something else!
Bethy x
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22-06-2012
09:26
Val ,so sorry to see your news...treasure the memories and good times...Bethy xx
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24-04-2012
04:28
Hi Sacha
I am now 48...was 44 at diagnosis. I had a Lumpectomy , full axillary node clearance, 6 x FEC Chemotherapy , followed by 30 X daily radiotherapy. 8/8 Hormone positive.. Now been on Tamoxifen Since April 09.
x
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24-04-2012
02:16
Hi Sacha
I was diagnosed in September 2008 with Grade 3 Invasive Lobular BC with 10/21 Lymph node involvement. At my annual check with my consultant I have a breast MRI as well as Mammogram & Ultrasound on the "good" side.
I also see my oncologist every 6 month .... so far so good:-)
Best wishes
Bethyx
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13-04-2012
07:47
Hi Burnie
I was prescribed Gynest Cream by my gynaecologist prior to an op last year ( been on tamoxifen since April 09). He said he wanted me to be as young on the inside as on the outside!! When I questioned him , as my c was 8/8 oestrogen +, he said a weeks useage would do no harm but that I should not use long term. I checked this with both my GP & Oncologist who both agreed that I should only use for the 7 days prior to the op.
Hope this helps! Bethy x
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08-03-2012
10:14
Hi Rose
Yes ,is the simple answer. I had perfect eyesight up until commencing Tamoxifen 2 years ago... I now cannot read anything without glasses on. I go every 6 months to the Opticians and they are very thorough and do the test on the back of the eye... having been 8/8 hormone p0sitive on both ...I cannot afford to give it up!
Best of luck. Beth x
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07-09-2011
05:47
Thanks so much for this Dugsy...really helpful to know exactly whats going to happen and how it will be on the day.
Best of luck with your treatment and I'll let you know how
I get on:-)
x
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07-09-2011
12:12
Hi
I am hoping someone will be able to advise me why my consultant wants me to have a PET scan as opposed to another type.
Diagnosed Sept 08, invasive lobular,lymph involvement.Had lumpectomy,Full lymph removal, 6 x FEC, Radiotherapy. Now have ache in breast bone. Consultant says moderate chance of c in bone... Had scanners as very claustophobic and had so many sleepless nights.... Scan is tomorrow afternoon..
Thanks
x
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26-08-2011
08:40
Hi everyone
Thankyou for your welcoming posts....I also had MLD weekly for 6 months then reduced to monthly ( all on NHS) but then we moved house.... I then had what was meant to be an intensive fortnight - which turned into just 4 sessions and that was it:-( I was told to come back in 12 months time or pay the same therapist privately!
Anyway for now sld everynight...b..boring but feel it does something.
Have a good weekend...in the rain
X
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24-08-2011
09:24
Hi
I was diagnosed in Sept 08 with lobular BC, 2/20 nodes 8/8 oestrogen pos,& 6/8 progesterone positive. Had lumpectomy, chemo,full lymph clearance and then radiotherapy. By Sept 09 I had developed trunckal lymphoedema on the affected side. How is is? Well I had a course of MLD which helped and now do SLD EVERY night before bed. Its b... boring but I am in no doubt that it helps. I also run twice a week ( never did before) and try and keep my weight down... all these things help. I would love to be in touch with someone who suffers the same as it can feel very lonely:-( Bethy x
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19-08-2011
11:25
Hi
I have been on Taxoxifen since April 09 along with all the lovely side effects that come with it....I have now lost nearly 2 stone by attending a Rosemary Conley class and running 6 miles a week. Its a hard slog but so much easier when you are doing it with others...also Rosemary Conley do exercise as well.
Good luck !
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27-06-2011
03:52
If you can get a friend or family member to go with you ,I would advise it.... hopefully you'll get good news and then you can go for a coffee together. Unfortunately I went alone, received the news we dread and after that always dragged my hubby with me - no matter what the appointment was for:-)
Good luck with the results. Bethy x
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13-06-2011
03:19
This is a really interesting thread! Two years ago I claimed a very nice sum on my critical illness cover but I had no idea there was a company out there willing to take on sufferers for new life insurance cover....hopefully only to be used in the distant future.Just phoned the Insurance Surgery and they were most helpful:)
Best wishes to everyone and thanks.
Bethy x
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23-03-2011
01:32
Thought I'd let you all know that following your advice I phoned my BC nurse this am and now have an appointment with my consultant tomorrow morning. Sometimes its so much easier to advise others and not take the advise yourself!!
Will let you know how I get on.
Beth x
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21-03-2011
05:16
Thanks for your help. One just starts to get totally paranoid! Tomorrow my GP wants to redo the thyroid and potassium blood tests and I now feel happier speaking to the hospital if these come back clear.
Best wishes to you all
Beth x
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21-03-2011
03:04
Hi ladies, really hoping someone can advise me... a bit of history.
DX Sept 08,lobular, lumpectomy,radiotheraphy, full lymphnode clearance 3/20 nodes involved, Hormone receptive 8/8 6/8. Been on tamoxifen for 2 years.I also have truncal lymphoedema. For the last year I have felt better than I had for years.
However 6 weeks ago started to feel very tired with very little energy.Last week I visited the GP who did some blood tests-Liver profile, bone profile, full blood count, electrolytes, thyroid, glucose.My blood pressure was also very high. Just gort the results and she said all clear although potassium was slightly raised- told her I eat 4 banannas a week 🙂 . I have a bump on my neck but wouldn't say it was a lump. Now I don't know whether I should just try and forget- some friends say I should see my BC consultant as it could be related....I don't want to waste anyones time and the symptoms seem a bit vague!Be really grateful if anyone has had anything similar.
Thanks
Beth
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22-01-2011
12:44
Please be assurred you are not alone. All your worries are very normal at the beginning. I was diagnosed with invasive lobular grade 3, node involvement so full clearance, back in 2008.
Like the others have said before- find out about your local BC support group- mine was brilliant and although I don't go along now I have made very good friends with 3 ladies who I met there.
Your friends behaviour is very upsetting for you but not surprising. I had a very similar situation with my brother and Father!! I think they were so terrified of the situation that they just stayed away-this was more upsetting to me! After several months of treatment I wrote them a letter explaining that I understood their fear .... it was a turning point from then on.
Please call the helpline - they are a fantastic support.
Take care and have rest- you are still in shock probably.
Big hug
Bethy x
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28-12-2010
03:18
Hiya
I have a similar story, however my delay in diagnosis went on for 2 years . During this time I had 2 mammograms, 2 ultrasounds and 2 needle biopsys. I was told it was a fatty lump. I wasn't until the lump was removed that BC was diagnosed. Invasive lobular Grade 3. 3 /15 lymph involved. I finished my treatment in June 2009 and just take Taxoxifen now.... so far so good!!
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