This website uses cookies. By clicking OK, you consent to the use of cookies. Click Here to learn more about how we use cookies.
69229members
327online
363459posts
Turn on suggestions
Auto-suggest helps you quickly narrow down your search results by suggesting possible matches as you type.
Showing results for
- Home
- :
- About Bethy
Bethy
Member
since
01-05-2012
76
Posts
1
Hugs
13-04-2012
07:47
Hi Burnie
I was prescribed Gynest Cream by my gynaecologist prior to an op last year ( been on tamoxifen since April 09). He said he wanted me to be as young on the inside as on the outside!! When I questioned him , as my c was 8/8 oestrogen +, he said a weeks useage would do no harm but that I should not use long term. I checked this with both my GP & Oncologist who both agreed that I should only use for the 7 days prior to the op.
Hope this helps! Bethy x
... View more
08-03-2012
10:14
Hi Rose
Yes ,is the simple answer. I had perfect eyesight up until commencing Tamoxifen 2 years ago... I now cannot read anything without glasses on. I go every 6 months to the Opticians and they are very thorough and do the test on the back of the eye... having been 8/8 hormone p0sitive on both ...I cannot afford to give it up!
Best of luck. Beth x
... View more
07-09-2011
05:47
Thanks so much for this Dugsy...really helpful to know exactly whats going to happen and how it will be on the day.
Best of luck with your treatment and I'll let you know how
I get on:-)
x
... View more
07-09-2011
12:12
Hi
I am hoping someone will be able to advise me why my consultant wants me to have a PET scan as opposed to another type.
Diagnosed Sept 08, invasive lobular,lymph involvement.Had lumpectomy,Full lymph removal, 6 x FEC, Radiotherapy. Now have ache in breast bone. Consultant says moderate chance of c in bone... Had scanners as very claustophobic and had so many sleepless nights.... Scan is tomorrow afternoon..
Thanks
x
... View more
26-08-2011
08:40
Hi everyone
Thankyou for your welcoming posts....I also had MLD weekly for 6 months then reduced to monthly ( all on NHS) but then we moved house.... I then had what was meant to be an intensive fortnight - which turned into just 4 sessions and that was it:-( I was told to come back in 12 months time or pay the same therapist privately!
Anyway for now sld everynight...b..boring but feel it does something.
Have a good weekend...in the rain
X
... View more
24-08-2011
09:24
Hi
I was diagnosed in Sept 08 with lobular BC, 2/20 nodes 8/8 oestrogen pos,& 6/8 progesterone positive. Had lumpectomy, chemo,full lymph clearance and then radiotherapy. By Sept 09 I had developed trunckal lymphoedema on the affected side. How is is? Well I had a course of MLD which helped and now do SLD EVERY night before bed. Its b... boring but I am in no doubt that it helps. I also run twice a week ( never did before) and try and keep my weight down... all these things help. I would love to be in touch with someone who suffers the same as it can feel very lonely:-( Bethy x
... View more
19-08-2011
11:25
Hi
I have been on Taxoxifen since April 09 along with all the lovely side effects that come with it....I have now lost nearly 2 stone by attending a Rosemary Conley class and running 6 miles a week. Its a hard slog but so much easier when you are doing it with others...also Rosemary Conley do exercise as well.
Good luck !
... View more
27-06-2011
03:52
If you can get a friend or family member to go with you ,I would advise it.... hopefully you'll get good news and then you can go for a coffee together. Unfortunately I went alone, received the news we dread and after that always dragged my hubby with me - no matter what the appointment was for:-)
Good luck with the results. Bethy x
... View more
13-06-2011
03:19
This is a really interesting thread! Two years ago I claimed a very nice sum on my critical illness cover but I had no idea there was a company out there willing to take on sufferers for new life insurance cover....hopefully only to be used in the distant future.Just phoned the Insurance Surgery and they were most helpful:)
Best wishes to everyone and thanks.
Bethy x
... View more
23-03-2011
01:32
Thought I'd let you all know that following your advice I phoned my BC nurse this am and now have an appointment with my consultant tomorrow morning. Sometimes its so much easier to advise others and not take the advise yourself!!
Will let you know how I get on.
Beth x
... View more
21-03-2011
05:16
Thanks for your help. One just starts to get totally paranoid! Tomorrow my GP wants to redo the thyroid and potassium blood tests and I now feel happier speaking to the hospital if these come back clear.
Best wishes to you all
Beth x
... View more
21-03-2011
03:04
Hi ladies, really hoping someone can advise me... a bit of history.
DX Sept 08,lobular, lumpectomy,radiotheraphy, full lymphnode clearance 3/20 nodes involved, Hormone receptive 8/8 6/8. Been on tamoxifen for 2 years.I also have truncal lymphoedema. For the last year I have felt better than I had for years.
However 6 weeks ago started to feel very tired with very little energy.Last week I visited the GP who did some blood tests-Liver profile, bone profile, full blood count, electrolytes, thyroid, glucose.My blood pressure was also very high. Just gort the results and she said all clear although potassium was slightly raised- told her I eat 4 banannas a week 🙂 . I have a bump on my neck but wouldn't say it was a lump. Now I don't know whether I should just try and forget- some friends say I should see my BC consultant as it could be related....I don't want to waste anyones time and the symptoms seem a bit vague!Be really grateful if anyone has had anything similar.
Thanks
Beth
... View more
22-01-2011
12:44
Please be assurred you are not alone. All your worries are very normal at the beginning. I was diagnosed with invasive lobular grade 3, node involvement so full clearance, back in 2008.
Like the others have said before- find out about your local BC support group- mine was brilliant and although I don't go along now I have made very good friends with 3 ladies who I met there.
Your friends behaviour is very upsetting for you but not surprising. I had a very similar situation with my brother and Father!! I think they were so terrified of the situation that they just stayed away-this was more upsetting to me! After several months of treatment I wrote them a letter explaining that I understood their fear .... it was a turning point from then on.
Please call the helpline - they are a fantastic support.
Take care and have rest- you are still in shock probably.
Big hug
Bethy x
... View more
28-12-2010
03:18
Hiya
I have a similar story, however my delay in diagnosis went on for 2 years . During this time I had 2 mammograms, 2 ultrasounds and 2 needle biopsys. I was told it was a fatty lump. I wasn't until the lump was removed that BC was diagnosed. Invasive lobular Grade 3. 3 /15 lymph involved. I finished my treatment in June 2009 and just take Taxoxifen now.... so far so good!!
... View more
21-11-2010
07:46
Hi
I also have had breast lymphoedema for the last 12 months. I have a good support garment given to me at the lymphoedema clinic. I also use the haddenum taping which I find helps. Try M& S... I went in and explained my situation and the woman was really helpful advising me on a non wired bra. Unfortunately I seem this weekend to be developing it in my hand!
Good luck
Beth
... View more
26-10-2010
08:42
I had 3 out of 3 infected in the SNB , then chemo and then removal of the remaining 20. The report said none of the remaining 20 had been infected with cancer- they can tell apparently even after chemo.
The only problem I now have following full auxillary clearance in Lymphoedema in the breast- not enough said about this before the op... still it wouldn't change anything.
My consultant says the lymph is only one passage for spread and the best way to try and keep BC away is to eat healthily, drink moderate amounts of red wine and enjoy every single day! If only it was so easy!!
... View more
12-10-2010
04:51
Just to let you all share my good news... I have just received my results from the Oncologist for my back MRI... I must be the only person that when she was told she had "degenerative spinal erosion" cried with happiness... I am just so relieved.
Lella - let me know how you have got on with your scan - I have been thinking about you.
Laura - very best wishes to your mum
xx
... View more
11-10-2010
02:36
Hi Krissy
I have been on Tamoxifen for 18 months now and for the first 3 months I was suffering dreadful nausea and wuld regularly be unwell. When I spoke to my oncologist about it , it was suggested that I should take it at before bed which I started doing... the symptoms disappeared.
May be worth a go...
Best wishes
Beth x
... View more
05-10-2010
08:35
Thanks for all your kind words... Lella I will also be thinking of you on Thursday!
Flinty- I'm 46 and have already thought about the mattress- its very good quality and only 18 months old....so not that.
I have had the constant lull of pain for the last 7 weeks...
x
... View more
05-10-2010
04:26
A bit of background... dx in Sept 08 Grade 2 invasive lobular, lumpectomy,3 nodes involved, fec, radiotherapy & now tamoxifen.
Just been to my oncologist for my check up and mentioned the niggling back pain that I have which worsens at night... on the journey home her secretary phoned to say MRI scan has been booked for Thursday this week. I wasn't scared but now I am!! Suddenly all the implications are looming in front of me.. Has anyone else had symptoms like this at all?
Hubby is about to go away on business trip- he wants to cancel and youngest has just started uni....
Any advice very welcome
Beth
x
... View more
- « Previous
- Next »
