Breast Cancer Now Forum

Hi Dorsetgirl (am a Dorset Girl too) I think the one thing i have learned through all of this is every healthcare seems to work differently & yes it can be so confusing 😞 My Dad, Uncle & Granfather were/are all in their 60's at DX of Prostate Cancer, 1st hospital that i was under said no real link but new hospital has said real risk hence being tested, i think my own Dx of BC at 40 (well 2 weeks before 40th) elevetated the risk of chance of carrying gene but am obviously hoping that i dont but if i do would rather know as i have 4 children & 3 sisters, no one else that we know of in my family have had Bc though. My original hospital told me that although it has yet to be licensed for 3 monthly use in Bc patients many hospitals & Gps are offering this choice as results as Cheshire cheese states have shown it to be as effective. Ref side effects, i was ok on months 1,2 & 3 but 4,5 & 6 were awful although i dont know if this was the Zoladex or letrazole, at the moment things seem to be settling down, i still have a few flushes a day & aching joints but i am either getting used to them or thay are slightly better, my dad (who lives with me) doesnt get sweats but does get a few tropical moments, he`was recently put back on zoladex due to spread to lymph nodes & strangely has found that Se's different this time round to 1st time he`was on it, my Uncle though seems to be side effect free. Cheshirecheese, havent been on forums for ages but seem to remember that you had lipofill ?? how is that going as not sure if you remeber but i was offered it to but havent done anymore about it, hope i have right person & that all is going well & you dont mind me asking. Sarah. ... View more

Hi, i am a year down the line on Zoladex, i too was borderline for chemo but chose to have it, i was then put on Tamoxifen on which i had no problems but then it was discovered i had a clot in my neck from treatment so was taken off Tamoxifen & put on a combination of Zoladex & letrazole. My father has Prostate cancer as well as my Uncle & are both on Zoladex & their side effects are totally different to mine. I was initially told that i could have 3 monthly implants but then chaged Oncs & new Onc has stated she would rather i stayed on monthly it is my understanding that many Bc patients are on the 3 monthly ones but the majority are still on monthly, my Onc did say that her choice of monthly is nothing to do with the effectiveness just a personal choice of hers & if i indeed wanted to switch to 3 monthly i could, for now i have stayed with monthy as am undergoing testing for BRCA gene & will wait till i have results of that as treatment/prevention could well change if i am found to be a carrier, i am being tested because of the Prostate/Breast link in my family. Sarah ... View more

Raechi, I am being referred to genetics team, this has come about after i recently changed hospitals, at my original hospital genetics were never brought up but when giving family history at new hospital the Onc looked up straight away & suggested that i be referred to genetics team. My history is Dad, Uncle (dads brother), Grandad (dads dad) Prostate cancer, Grandmother ovarian (Dads mum) & me Bc. My Onc said there is a strong link between Pancreatic,Prostate & Bc for BRCA 2. Have also Pmd you a number that may be helpful. Sarah.x ... View more

How awful,I feel bad for recommending them now 😞 but am guessing every company does indeed have "one" although in this field you would think that everyone would be kind,polite & understanding. I hope you get something sorted. Sarah.xx ... View more

Hi GD, have you tried insure with, i went on a course on Saturday with the lady that owns this company & we discussed USA & travel cover, maybe worth an enquiry. Sarah.xx ... View more

Thank you Vickie for re posting here, such sad devastating news. RIP Gingerbud you will be truly missed.xxxx ... View more

So very sorry to hear this news, i remember always thinking what a lovely smile Susie had. Rip Susie & love & prayers for her family & friends.xxx ... View more

Hi Lou, I had to have blood thinning injections in stomach for 4 months & the bruising was unbelievable, black, purple,green over my entire stomach & i was told that this was indeed normal, now i am off injections my stomach has returned to normal.. Sarah.xx ... View more

I was put on Zoladex & Letrazole after being taken off tamoxifen due to blood clot, I too am every 12 weeks, no real Se's to report, had periods all through chemo & whilst on tamoxifen but they stopped with letrazole & Zoladex was age 40 at Dx & Er +++++ & Grade 3. X ... View more

Hi Mg, Am still undecided but in my post chemo brain state i need to apologise to Deed as we DID have same surgeon but i have now swapped hospital's so Deed if you are reading SGH does it who work alongside Salisbury so that would make sense. I too hope someone who has` had procedure a while ago comes along to let us know Cheshire Cheese, how is the swelling/bruising etc is it settling down ? Sarahbev.xx ... View more

Good Morning Claredroppers, I hope all are well ? Good Friday 1998 my son arrived in the world & was also the day of the Good Friday Peace agreement 🙂 Good luck today Cm hope they sort you out as can't have you dropping down whilst out with me anymore as my poor heart can't take it lol. Sarah.xxx ... View more

Deed, We have same surgeon & I have been offered it. Sarah. Xx ... View more

Hi, have pm'd you both. Sarah.xx ... View more

Hi, I had a clot from Picc line & presented as a swollen arm, I was put on clexane injections daily for 6 months then a venogram was performed to check that clot had dispersed . Picc line clots are a bigger risk than people think so any swelling should be checked, this type of clot rarely breaks away & generally they disperse quite quickly although the swelling seems to stay but not as bad, The symptoms are totally different to the usual hardening of veins from chemo so am glad it is being checked out. Sarah. Xxx ... View more

have sent you a Pm laura.xx ... View more

Hi, I did 6 x fec & had a heart scan & a lung X ray, i was 40 yrs & was told at my hospital it is standard practise for anyone about to start chemo to have both these tests done. I also took steroids & had injections daily for just 1 week as my white blood cells had dropped a bit. Try not to be nervous & remember that all hospitals seem to vary on what they do & don't do but whatever they do do will always be what is correct for you at the time. Also try not to worry about side effects as there is medication that can sort most of them out, i was very lucky in so far as apart from hair loss & a few wakeful hours whilst on the steroids I didnt really experience anything else & pretty much managed to carry on in the new "normal". Sarah.xxx ... View more