Breast Cancer Now Forum

So sad to hear about Kym. My thoughts are with her friends and family. Can't believe how quickly this happened. RIP Kym xx ... View more

Congratulations! I have my last Herceptin next week 🙂 ... View more

Diane Sorry to hear you need more surgery 😞 hope you have a lovely holiday though. Ladies, how do I subscribe to the Facebook groups? Lizzy ... View more

Hi ladies, I've not been on here for weeks and now the new forum website has thrown me! I've updated my profile pic as my hair is coming back. I will soon stop wearing my wig at work. I'm still not sleeping due to hot flushes but other than that am slowly getting back to normal. I will read the posts when I've figured out the new website!Lizzyxx ... View more

Hi October ladies, just popping into say hi. Yes I would love to come to the meet up in Brum on 22 September. I've not been on here for ages which is a good thing in that I am so busy with work and getting back on with life that I find that I don't need to come on here anymore. Sue, I can only echo what you say and would love to thank all you lovely ladies for your help and support over the last few months. Big hugs to all. It's been a tough journey but I feel I am coming out on the otherside. Dizzy, good to hear from you, I hope the mole is ok Alison, yes my hair is coming back. It seems to be sprouting from everywhere now. In a month I would say I should be able to use mascara again (I hope) but it's disappointing to have to shave my legs again! My head hair is over a cm now. I still wear a wig for work but hopefully I will be able to ditch that in a couple of months. judy, you made me laugh re the eyebrows. I have been pencilling in mine and have joked that I could have serious face or angry face or go for the James Bond look...not that I have dared but it would be funny! Take care ladies. Looking forward to seeing you in September. Lizzy xx I'm still getting hot flushes from the Tamoxifen but am just getting on with it really. ... View more

Hi ladies, just dropping in to say Hi. I've not been on for a couple of weeks as have been totally manic at work as it's our year end and I also seem to be back in the swing of things. My energy levels are pretty much back to normal save that I am pretty shattered in the evening after a day at work. My fingers are still numb and veins still sore but my hair is now growing big time and I reckon I will be the pre-chemo yetti I used to be before long. Still getting loads of hot flushes. Gill, Glad you managed to get two packs of Tammoxifen...I am seeing my Dr on Tuesday as my onc said I could have 3 months worth. I do hope so as it's a pain having to get to the pharmacy now I'm back at work. AmysMum- I sympathise with the lack of sleep. I can't remember the last time I slept through the night. I wish my body would decided whether it's going to be hot or cold! Well done for all you ladies who have finished chemo and getting on with rads. Take care all Lizzyxx ... View more

Hi ladies It's so good to hear we are now on the road to recovery. I had a lovely Easter week in the Lakes with my folks and even tried a wee fell race (it was a short one) and didn't do too badly all things considered. Although I did get rather hot, threw my hat off in the first mile and ran the race commando causing my mates to joke about GI jane running up the mountain. Tazzie, yes I'm having hot flushes on Tamoxifen. They seem to be worse at night. I'm not sure how to reduce them. I just get up and have a drink of water and then it seems to get better. I also get them randomly throughout the day. When are you taking your tablet? I'm taking mine when I get up in the morning. Simone, hope you have a fab time in Anglesey. that's great news on the hair front. Mine is getting there....very soft on top, a bit like a mole but no eyebrows or lashes yet. I am having to shave my legs regularly now! Clare, glad you had a good Easter break and that you are getting your mo jo back. Yep my feet are not back to normal yet but they are much better. Lulu, hope you are feeling better. Yes having a holiday was great so I hope you have a fab time in Minorca. Libby, boo hoo to peripheral neuropathy. I've still got it in both hands and my big toes but the hospital don't seem too concerned.I've kind of got used to it now. The hospital had a look at my veins and said they will take months to get better but that it's just the damage from the Epirubicin. My 6th months check up went well in that the consultant poked and prodded and was quite happy. He said I would have an appointment for a mamo in a few months. Alice, sound like you had a perfect weekend with DVDs and girly shopping! take care everyone Lizzyxx ... View more

Evenng ladies, Theresa, hope you feel better soon, Libralady, congrats in finishing chemo! 🙂 Paula, glad you are healing well. It is a lot to get used to at first, I only have small boobs and found it strange at first but I am kind of used to it now. Gill, I know what you mean about reading. When I was having my chemo I couldn't read books as I found it too confusing. The same went for complex plots in films. It does get better though Linda, glad you are doing ok. Hope your seroma clears up I had my 6 monthly check after my MX today and the surgeon seemed quite happy with things. I just wish these hot flushes would stop so I can have a decent night's sleep! Lizzyxx ... View more

Gill, full time work was hard at first and I used to be shattered by about 4pm but it's slowly getting better as my energey levels are returning. I do find it hard to concentrate at times and my brain wanders a lot...must be chemo brain. I hope your return to work goes well and you have a good Easter break. Audrey, I hope you have a good Easter and you get your energy levels back soon. Take care ladies Lizzy xx ... View more

Hi ladies I'm finding that I am not coming on here very often now that I am back at work full time. Paula, hope everything went well with the op today. I am finding the Tamoxifen ok so far but keep having hot flushes and night sweats! My hair appears to be coming back but my eyebrows and eyelashes are still in hibernation! take care ladies Love Lizzyxx ... View more

Hi ladies, yes I am definatly up for a group meet up in Birmingham and have pencilled in 22 September. I live near Warrington so would want an overnight stay. I too am spending less time on here. I find it hard to find the time now that I am back at work full time. I just had a lovely week skiing and am so pleased I managed to ski every day. I did have a lot of rests and finished early each day. My hotel had a lovely pool and sauna. However it was Austria where the norm is to go naked in the sauna. I didn't want to reveal my MX scar to everyone so kept a towel firmly wrapped round me! I feel my body is slowly recovering and I am back to running. I did my first race since September yesterday and did well all things considered. I've got a busy hospital week this week as I'm having Herceptin on Wednesday and then have my 6 monthly check up with my surgeon on thursday...can't believe it's been 6 months since my MX! I also need to speak to the Dr about my veins as they are still very sore when I twist my arm and are really hard. You can actually see the grooves in my arm where the veins are which I'm a bit concerned about. Well, time for me to go to bed! Sleep well everyone (and hopefully not too many hot flushes!) Lizzyxx ... View more

Hi ladies, I've not posted in a while as I'm finding it hard to fit everything in now I'm back at work. My energy levels are much better though and my running is slowly getting better. Of course I'm itching to get back to racing but that will have to wait. I'm going away to Austria at the weekend so can't wait for that. My fingers are still a bit numb following my last TAX 5 weeks ago but they are not as bad as they were. I've still got canckles and the hot flushes are getting worse but for some reason I only get them in the evenings and at night. tax, that's a bummer about not being able to ride your bike. I hope your surgeon gives you the go ahead. Theresa, that's great news on your results 🙂 Libby, sorry to hear you are feeling down. To be honest I have been feeling worse mentally since finishiing chemo. I think it's partly because everyone thinks you should be back to normal and it's not quite as easy as that Well I better get back to work! Take care everyone Lizzyx ... View more

Hi ladies, I've been reading your posts but mow I'm back at work I haven't had time to post. I hope those still haveing chemo are ok and the SEs are not too bad Good luck to those having rads. My fingers are still numb 5 weeks post my last TAX but they aren't bas bad as they were and I seem to have more energy now.I have even been able to go back to running (albeit slowly) I just keep getting hot flushes every night from the Tamox so wake up eery couple of hours! I'm off on holiday on Saturday so can't wait. I'm going to Austria skiing although I suspect there will be a lot of relaxing and not so much skiing! take care everyone Lizzyx ... View more

Hi ladies, Clare, love the poem and the sentiment. Hope you are feeling a bit better and less tired from your rads appointments Teresa, hope your results are ok (gentle hugs)and that you feel better after being drained. Sue, well done for your run, sounds like you are doing well. I ran better at training this evening than last week. I'm slow but I'm getting there Judy, glad you're recovering from your op Lulu, I can't decide whether the swelling/water retention is from the Herceptin or the Tamoxifen. I've still got pitting edema in my shins but it's not as bad as last week. Yes I'm trying to put my feet up but I keep forgetting! I've not spoken to the unit about it, guess I should really. simone, glad you had a great time in Plymouth Time for me to go to bed sleep well Lizzyxx ... View more

hi ladies, I've been reading all your posts but it's hard to keep up now I'm back at work full time. AmysMum, I started my Tamoxifen this week (just over 3 weeks after my last chemo). My colleagues told me that I am looking better this week (I must have looked dreadful!)I'm already having hot flushes but I was having them with the chemo, they are just worse now. I've got bad water retention so am not sure whether this is the Tamoxifen or the Herceptin. I'ts that bad my ankles and calfs have swelled up. Good luck to those starting rads of having surgery Lizzyxx ... View more

Hi ladies, Simone, hope you have a good time in Plymouth. Have any of you started Tamoxifen? I started on Monday and my ankles and calfs have swelled up. I'm not sure if that's normal. I hope everyone has a good weekend Lizzy xx ... View more

Trudi, congrats for finishing chemo, yay 🙂 I hope the SEs are not too bad. I work in an office which and sit on my backside all day which has helped. I have had a week and a half off with each chemo cycle and have always left on time rather than doing the late hours I used to do. My firm have also been good and taken most of my workload off me and are easing me back into it. Right speaking of work it's time for me to go home! take care everyone Lizzyxx ... View more

Hi ladies Happy birthday Clare! I hope you can celebrate properly at the weekend Simone, glad you're feeling better but it's ok to have a wobble now and then. Teresa, Sorry to hear you're having a bad time. I hope things have gone ok for you at the hospital today and your wound is healing nicely. Libby...yes I am on holiday count down. Just two and a half weeks left at work. I hope your tummy bug has cleared up now. I better get back to work as I off tomorrow...hospital again. Take care ladies Lizzyxx ... View more

Hi ladies Lulu- good luck with your rads. My oncologist has decided I don't need rads.I'm relieved but part of me is slightly paranoid that not having it is not belt and braces. i hope you're feeling less tired today. weme - glad to hear you're home and healing audrey - no I've gone straight back to work full time but my workload isn't too bad at the moment and I am leaving at 5pm every day. I am pretty shattered by 4pm though. I've not had any scans since the MRI before my MX but I guess that's because there was no node involvement and I had the MX first and chemo after. Friends keep asking me whether they do any tests to see whether the cancer has gone and when I will get the 'all clear' and I find it quite hard to answer. I've started my Tamoxifen today so am now waiting for side effects from that. So far I have a headache and feel tired but I guess that could still be the chemo leaving my system. Lizzyxx ... View more

Hi ladies, I've not been on here for a while as I've been back at work. It's great to hear so many of you are finishing chemo, well done :)Good luck to those starting rads. I'm just down to Herceptin now and will be having my 3rd Herceptin on Wednesday. I think it just take 30 minutes this time. I am starting my Tamoxifen on Monday too so feel like I'm slowly getting back to some sort of normality. I've still got numb/ tingly fingers but I guess that will get better in time. I', just want my hair to grow back! Lizzyxx ... View more