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GingerLaces
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01-05-2012
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10-04-2012
08:02
Hi ladies I did recently start another thread 'is Arimidex causing trigger thumb'? I have been suffering with both my thumbs and to the extent that I will be having an op on my right hand in a couple of weeks. GP and rheumatologist both say that it is very common and it happens a lot to ladies our age but also that it could be the Arimidex. I have had both thumbs injected and whilst the left one has improved greatly the right one has not. I have read the Arimidex contraindications and it does state there that it could be a SE. Having said all the above, I am sure mine started almost immediately after starting Arimidex, therefore I am not so sure whethter to blame the medicine or not. Whilst it is unbearably painful, I do not wish to stop taking the preventatives. Adi
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08-04-2012
03:07
Just so sorry to read that yet another young family have lost their lovely Mother and wife. May you rest in peace Lora and many condolonces to your family and friends.
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31-03-2012
06:24
RIP Rhian. Condolonses to all her family and friends. Such a lovely and funny lady whose posts really cheered me up during my horrible treatment last year. A candle is burning for you and may you sleep tight. Adi x
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26-03-2012
08:02
Hi I had all my treatment last year at the Chiltern and Mount Vernon. Didn't have any problems with either and found them all very friendly. Adi x
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04-03-2012
03:02
Hi Charlotte I had 10 weekly taxols after 3 FEC. We all cope in different ways and have different SE's. If you need to share anything please feel free. From a previous thread you posted, I believe you many not live too far away from me. Feel free to PM me if you need anything. Best of luck. Adi
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19-02-2012
02:29
It's just not fair. Wendy is too young to leave her wonderful little boy and husband. May you rest in peace Wendy. Many condolonces to all her family and friends. Adi x
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03-02-2012
07:51
Hi Danica, not sure where you are having treatment, but I got complementary treatments via MacMillan at the Luton and Dunstable Hospital which was arranged via MacMillan Nurse which in turn organised by my GP. I also got further treatments when I had radiotherapy at the Mount Vernon in Borehamwood. I live in Beds. Hope this is helpful but if you want more specific feel free to pm me. Adi x
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22-01-2012
06:40
Erin, so sorry to hear you have lost Jo after a courageous and strong battle. May she rest in peace.
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21-01-2012
05:47
Evening Ladies, thank you so much for your responses, which are quite reassuring. I have had very high cholestrol for a number of years and went sky high on the chemo and still very high now. Not taking Statins as they made me very poorly when I took them before, but may need to review this. I am post menopausal so appreciate that some of the problems are caused by this. It was my GP who wanted to check all my bloods again due to the excessive tiredness/breathlessness.(He has been wonderful through my treatments). Blood counts are very good compared to earlier on but the results for TSH and T4 have come back showing Hypo Thyroidism and also tested for TPO thyroid antibody which came back positive. It is no wonder I cannot lose weight and I was blaming the Arimidex, which even my consultant confirmed that if you are on Aromatose Inhibitors, weight loss is very difficult. Started my thyroxine today so won't see any change for a few weeks I don't think, but doctor wants to do another blood test in 4 weeks. I won't give up trying to lose this excess weight, so will persevere with it and will let you all know. Just want the tiredness to go! I think as long as I am trying to shift it, I will feel better for it as this disease has already caused me enough health issues. I thought having treatment for C, would be over and done with once active treatment finished. Boy was I WRONG!!!! Enjoy your evening ladies x
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20-01-2012
05:54
Hi ladies just wondered if anyone else been diagnosed with underactive thyroid after active treatment. Had WLE and SNB this time last year, followed by FEC/Taxol and radiotherapy. Went back to work in October on a phased return but still very tired even now. Was very anaemic during treatment together with lots of other SEs so GP keeps an eye on me and carries out regular blood tests. Got a shock today when informed that now need to take more drugs for underactive thyroid. This could be the reason why the excess 2.5 stone gained during treatment is just not shifting, despite watching what I eat. Wanted me to start on the tablets straight away, and see him next week when he can explain the whole situation in greater detail. My question really is was it the chemo or the radiotherapy as had rads to clavical area and now worrying myself silly as to how much more damage has been caused. Any one else in similar situtation?
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18-01-2012
05:19
Hi Ladies I have also been taking Arimidex for the last 6 months. Last week I asked GP for repeat prescription and was given the generic, when I questioned why it had been changed as Onc had prescribed Arimidex it was def to do with cost. GP agreed to give me the Arimidex for further month and then to go onto the generic. I just hope that my SES are not worse once I start to take it. The cost is approx £68 per month extra. I have enough SEs already so hoping that they will not get worse on the Generic version.
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19-12-2011
08:04
Year since diagnosed
Sentinel node biopsy
Wide local excesion
3 lots FEC
10 lots Taxol
25 sessions radiotheraphy
Arimidex 5 years
Treatment was tough
Now onwards/upwards
Hair growing back
Returned to work
Still very tired
Will beat it
Keep going ladies
You can do-it!
Merry Christmas all x
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16-12-2011
09:06
Morning Ladies. I am not on Tam but on Arimidex and have problems with both thumbs now. Life bit difficult with two trigger thumbs!!! When visited GP with first one he said it could happen to anyone and could not blame the Arimidex. Although a possibility! Chemo has a lot to say for the problem I think, but now with second thumb also giving up not sure what to do. Just simple things like pulling up socks is very painful and no strength. Mel would you be so kind as to pm me with details of gluosamine and emu oil cream you are using. Used to take glucomsamine which I used to get from my chiropractor but not been able to see him because of risk of lyhmphodema etc and he is a long way away and choice in shops is confusing! Thanks and good luck everyone.
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22-11-2011
05:22
Thanks ladies. Fingers are all losing strength and frustrating when trying to do simple things like open bottles etc. and doing up buttons. Only another 4.5 years to go!......Best wishes to you all. x
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21-11-2011
05:43
Hello ladies, don't post very often but still come on to see posts in case I can benefit from any of them. Started Arimidex in August and have been suffering from trigger thumb which is not only very painful but I have no strength in my fingers. Doctor said it can happen to anyone and I do know that it is very common regardless of medication. Apparently even Maggie Thatcher used to suffer from it. It would appear that my other thumb is now starting to be affected and I wondered if anyone else is experiencing the same. It does say in my contraindications that it can be caused by taking Arimidex. My joints are all very painful and I thought they would settle down after chemo but I finished this in June and still feel like I am 90! Don't want to come off Arimidex as I feel it is my safety net, so would welcome any one's stories. Thank you.
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26-10-2011
10:28
Hi Laurie, I finished chemo end of June and was prescribed Arimidex as post menopausal. Onc suggested I waited at least a month before starting to take them, in order to give my body a chance to recover from the side effects of chemo. Hope this helps and you can sort your Onc out x
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21-09-2011
09:05
Morning Ladies, good to hear about all your lovely holidays and that we are all moving on now. Congratulations on your 40th Lisa!
I have also finished the radiotherapy now and skin is healing well. Wasn't a pretty site for a little while and seemed like it would never heal.
Al - fatigue seems to be a concern for lots of us and my Doctor wants me to rest for a few more weeks before will allow me to go to work. Have to say whilst I want to go back, I am still very tired so best I take his advice!
Lisa - can;t believe they want to transfer you already. Never mind.
I don't post very often now as feel a bit like you Lisa. Some of the postings like googling can be quite scary. I have a few nasty side effects from the arimidex but will discuss them with my Onc and Doctor. It is just something we will have to put up with for the next five years!!!
Best wishes to all Feb ladies. Anyone heard from Lizzie?
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26-08-2011
10:20
Such awfully sad news. Another beautiful young lady lost her battle to this horrendous disease. Rest in Peace Claire. Condolonces to all her family and friends at this sad time.
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24-08-2011
09:38
Thanks ladies. That means I will have to wait 5 years Msmolly!!! Slimming club here I come.....
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