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Amber_D
Member
since
02-03-2013
372
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3
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08-01-2015
09:52
Just ordered from Daylong for the first time yesterday so will see how well it fits. I have been wearing a sleeve with my glove over the top today which was ok until about an hour ago I noticed swelling on my hand. When I took off the glove my hand was huge. I think glove and sleeve together may be pushing the fluid to my hand, my local Lymphodema clinic is only open Tues/Wed. Will see how it goes tomorrow and if the same happens will keep sleeve off until I can speak to the nurse x
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08-01-2015
01:55
Hi Rattles, It's so frustrating trying to find even gauntlets with fingers isn't it. I've found a sleeve with hand and fingers on a site called Daylong.co.uk.only black and flesh colour. I've placed an order so hopefully will be ok. Thinking of possibly ordering a bright coloured sleeve to wear with flesh coloured gauntlet but will see how I get on with this one first. I can't believe how my priorities have changed since diagnosis, every time I try and get on with my life it takes another part of me! Would welcome any ideas or tips to disguise the sleeve and gauntlet especially in summer xx
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07-01-2015
08:21
Stressy, thanks for your kind words. That's a great website, I decided that if I have to wear a sleeve I'd prefer something nice and bright. My problem is my hand and fingers are swollen too so I need a gauntlet with fingers which seem to be difficult to find x
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07-01-2015
04:49
After having wore a compression glove since August, Iam gutted today to discover the swelling is now in my arm. As a result I have to wear the arm sleeve plus hand glove with the fingers. Does anyone know where I could purchase a nice coloured/patterned one in the UK. Seems to be a problem finding gauntlets with fingers, but as I have swelling in my fingers I need the whole thing. I couldn't believe how emotional I got when I found out today and just feel is there anything cancer can throw at me when I just want to forget. Hopefully some of you lovely ladies on here that are living with lymphodema can shed some light as all I can think of at the moment is having to wear these for the rest of my life and how it will affect me.
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05-07-2014
08:54
Hi Cal, No swelling in my arm it was on my hand and has disappeared since changing meds
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26-05-2014
05:20
Hi Sheba, I found once I shaved my head the pain went almost instantly xx
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07-05-2014
08:42
Don't suffer girls, I had bad joint pain and aches and my Onc changed my meds to Letrozole . Now on week 4 and have noticed a big difference in the pain x
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01-05-2014
09:57
My dental surgery does Botox and fillers and my dentist told me never to let anyone give me fillers after I'd been diagnosed.
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27-04-2014
08:50
Hi, just been on them 10 days so don't know if it's too early to tell. I still have bad joint pain but that could still be from the Anastrazole as not sure how long the effects stay in my system. Once says to try for 3 months and see how it goes.
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27-04-2014
06:00
Interesting reading lilymole. I've recently been changed from Anastrazole to Letrozole due to the bone pain. I just looked at the brand and it's sandoza, am I correct in thinking this has given you problems in the past with bone pain and that teva is better for side effects.x
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16-04-2014
09:05
Had my appointment at lymphodema clinic yesterday and good news the swelling is not lymphodema. It's side effect of Anastrazole on my bones. My Onc has changed my meds to Letrozole so will see if it makes a difference x
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13-04-2014
08:21
Can I send a friend request?
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13-04-2014
08:01
Lori, I've put on a photo of a cupcake with BC ribbon
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13-04-2014
07:55
No picture yet, will try and log in and upload one
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13-04-2014
07:46
Soz Judy our messages crossed, Iam on as Amber Doodle
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13-04-2014
07:45
Yippee, my son has set me up on fb what do I do now?
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13-04-2014
07:03
This Facebook group sounds exciting but complicated. Wouldn't have a clue how to set it up but will try and ask my son to do it lol x
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