Breast Cancer Now Forum

Evening Angels, Amber I hope your daughter is better now 🙂 Sandy, so glad you got to Centre parks, how time is flying as it only seems a few weeks ago that you were worried you wouldn't be able to go! Mel so glad your off that train. Roz, sorry I didn't make it Monday, but have had this cough that causes coughing fits, so embarrassing, good news is its on the mend. Went to see my ONC today as it is hopefully the last time I will see her! although her door is always open. Full check over and all seems well, although the damage to my arm from the damaged veins is the worst she had seen, and is thrombosed all the way up to my armpit! she was so apologetic! and says it will hopefully heal!!! So I am now just to have the yearly check ups, quite nice really. I also joined the gym yesterday, mainly for the swimming. Off there tomorrow with eldest daughter, followed by lunch, well I don't want to over do it. Hope your all well Angels Xx ... View more

Afternoon Angels, wonderful news Sandy, so pleased for you and your family xx congratulations Mel on finally alighting at the station. I think your trip has been like the trans Siberian train trip, but the most important thing is your here. Roz, brilliant that you have sorted out about the hotel, you and Pauline are great! I will be coming for 2 days but not really into spa's and I will be seeing you tomorrow up in Winterton, very excited. What is it with this downy hair on the face! Only really noticed this weekend down at my sisters as she always has the mirror on the magnifying side, and yes Angie I also have nasal hair and numerous whiskers. Whilst it's lovely getting the hair back I would have liked it to be back in more specific places!!! I have just returned from a weekend in London and had a brilliant time.tottally worn out but worth it. I too am having a lot of problems with my hands and joints am now having to take quite a lot of painkillers. I am seeing my onc on Thursday and am going to ask about this. Anyway girls hope you have all had a good weekend xx ... View more

Hi Roz, how do I pm you? It's changed xx ... View more

Evening Angels, Sandy, sorry your having problems. For better pain relief you can add ibuprofen 100-200mg to alternate with the paracetamol so long as you are able to take them. This will boost the pain relief big time. I would also ask the BCN what her advice would be if it happens again as it seems a bit lame to say wait until Wednesday without even seeing you.Also , just check there is no infection heat redness. Getting very excited about April, time seems to be flying now. Norwich seems to have escaped the worst of st Jude's wind! Thank god, hate the wind particularly with short hair as it really whips around the ears. Shall be spraying it green on Thursday as eldest is having a Halloween party, and have got two pumpkins already for a bit of carving. Off to London at the weekend to give it the big un, well not sure about that but will give it my best. Hope your all starting to get your strength back? Mine comes and goes, often feel I could do a marathon but then fall at the first hurdle. Have decided to join a gym so that I can go swimming every day, to try and improve both fitness and arm strength which is really poor.Must go as I have just got a question right on Only connect !!!!! Xx ... View more

Almost there Mel 🙂 soon be on the the platform with us all. I have just received my letter from genetics and am glad to announce that I am not a carrier of BRCA 1or 2, whoopeeeee. Which is such great news for my kids and relatives. Time for a celebration. Baton down the hatches angels the weather is supposed to be awful over the next few days xx ... View more

Good morning to the lovely AAAs. I haven't been on for a while but still read all your post every day. Sandy, glad your are recovering well. I would never have known you were high as a kite on tramadol when we spoke on Sunday, quite the opposite in fact. I agree with the others about feeling guilty, you have really been through the mill, and I think it helps the family when they can do things for you. Mel, have you still got one more chemo after this one today? It's been such a long slog for you, but the end is now in sight. Angie, you are a star, working full time, but I know what you mean about working with a great bunch of people. Judy, your almost finished as well, the time is really flying now. Won't be long before we are all in Manchester, it's a great thing to look. Forward to. I enjoyed reading the posts about how the BC has changed everyones views on their life. I am still waiting for ATOS and capita to get back to me on retirement. Either way I will not be returning as it has already been decided I am no longer fit for my old job, so it's great in one way as the decision has been taken out of my hands. I am currently looking after my grandson Luca 2 days a week! he is such great fun! but it does take me quite a few days to recover. I have also been out walking in the grounds of Blickling Hall, the supposed birthplace of Ann Bolynn. It's been really nice as I can go at my own pace and being norfolk it's all flat. I picked a bag full of chestnuts as well. First time since I was a child. Weather is looking horrible today, lots of rain, so I am staying in and going to do some knitting. Hope you all have a good weekend. Well done Caz on completing your rads xxx ... View more

Evening Angels, just a quick update on Sandy. Spoke yesterday and following second op to remove the thrombosis is now doing well and hopefully will be out of hospital today. Angie, glad your feeling better now. I think we all have moments like this in some form or other and I think Gilly advise was great. Your one of the few of us who has gone back to full time work and so early. If it was me I would proberly looking at immigrating. You have done brilliantly and am sure a few days with your daughter and grandchildren will do the trick. That's the great thing about this group is knowing that we all genuinely care about how we all feel. Xxx ... View more

Good morning Angels, I have just had a message from Sandy saying all is now OK and to thank you all for the lovely messages. Xxx ... View more

Hi Diggywiggy, I am also on same timescale as you and Iam still getting random pains all over, mostly joints and shoulders, but have had pains like being punched in the arms and legs. I am not on any hormones. When are you due you genetic testing results? Mine are due in the next few weeks. Hope everyone is ok, and have lit the AAA special candle for Sandy xxx ... View more

Sandy 😞 so sorry you have had such a rough time. Thinking of you and your family, anything I can do, just say xxx ... View more

Good evening Angels, apologise for my not posting for so long. Mel, I hope you escape your incarceration soon, whilst it is the best place for you to be, it's still horrible being away from home. Kim, so jealous.... Such a beautiful place to be and glad your enjoying yourself. Sandy, your op is coming around so quickly, I will be lighting the candal and saying a few prayers for your quick recovery ( and yours Mel ). Don't worry about your decisions as I'm sure they will be the right ones for you. Well I finally have had the results from my CT angiogram, it has shown some furring of an artery but not explained what caused all the chest pain. My cardiologist has said he needs to do nothing more! Unfortunetly I think he does, as the fact that each time my bloods showed cardiac enzymes it means the heart was being damaged, so I am currently in the process of writing a letter to him to discover what I should be doing now as I am on five cardiac drugs? Sorry moan over. My sister came over from Ireland last week! she is still in shock following her husbands death 😞 so I have now booked to go over for a week in December for a bit of R&R for us both. Physically feeling quite good at the moment and even looking after my gorgeous grandson Luca 2 days a week. He's only 18 months old but is soo good. I do need a day each to recover after though. I received my appointment for my 3 year mammogram yesterday and have decided to attend, as I thought its one way of checking it's all worked? Will proberly get told off, but would like a bit of closure on this whole episode and this is really the only way at present. Nice to catch up with you all and apologise to everyone I have missed, but have read all your posts religiously. Xx ... View more

Good evening Angels, Sandy , sorry to here your having a rough time of it, but agree with the others about seeing the optician, but would also get an appointment with your GP. I know that chemo does have an affect on the eyes but think it is transient rather than permanent xox I had to laugh at Angie and my trip to Oz, as you can see I am still down under lol. Well I have spent the afternoon having a total meltdown with the new GP! They were sent a request from ATOS for medical info about my condition! I went to see the letter before it was sent off. Well he did all of 3 lines with the date of diagnosi, my diagnosis and the date I started chemo!!!!! So I have asked him to do it again and properly this time, and stated he should have a good look at the notes this time. Will proberbly be put on the hit list now. Other than that had some friends from work around for the afternoon, which was really lovely and now have jaw ache from talking and laughing so much. Debra, glad to here your chemo has finally finished, you will soon be feeling better now it starts getting out the system. To all who have finished rads well done, and good luck to those about to finish and those about to start. Judy, I was talking to my pharmacist at the weekend about my arm, it's still really painful and for the last week it has been worse. She recommended rubbing tiger balm in it and it has eased it, also Lush do a massaging oil with cinnamon which is also good. Well I'm now going to have a vodka and tonic and prepare my self for looking after my grandson Luca tomorrow. Goodnight angels xx ... View more

Cheers Judy for the help, but seem to have some how uploaded it upside down! Thought I would show you a picture of my hair and eyebrows. They are really coming along now. I have been going topless for months and will find it really strange when the hair grows long again. I love just showering and go. I popped into work today to give in my latest sick note, it's the first time in work without a scarf, but they all thought it suited me. Iam being put on pensionable pay as of next month, and am waiting to find out when I will be leaving officially. Will miss my colleagues, but not my managers. Congratulations to all those completing rads today, and very have a great weekend. Xx ... View more

Hi angels, I have been trying to upload a photo from my iPad but it won't let me? Any ideas??? Xxx ... View more

Hi Sandy, just reading about your eyesight! Before I started my chemo I had full health checks including the optician.he said don't do anything until a few months after chemo as it can affect your eyes temporarily. Also finished my chemo end of July , you should see my eyebrows now after having them tinted and waxed. Will try and take a photo. Lots of love xx ... View more

Good afternoon Angels, nice to see there is plenty of energy out there, I'm still with the relaxing crew, snoring every where. Had some great news this morning, my niece gave birth to a baby boy, so I am off down town to buy some baby clothes. Also going to have my eyebrows waxed and dyed as they are now back to prechemo as are my eyelashes. Had a great time yesterday celebrating our Niamh's 13th birthday. We had a typical child's tea party with sausages on a stick, cheese and pineapple hedge hogs and lots of lovely sandwiches with the crusts cut of ( cos were posh ), washed down with Proscecco and red wine. So nice to be able to drink wine again after it tasting like poison for so long. Forecast here for later is horrible rain..... So better go shopping. Lovely to here you all getting better by the day. Angie so admire you, you really are a star xx ... View more

I too took Emend on my second cycle and had no more problems with nausea whilst on it for the first 3 days but still had problems when the Emend stopped! I was also put on what are known as Nozies,, great combination.:) ... View more

I too had to have these after my first chemo as I had neutropenia sepsis, and my bloods could not recover without them. I found the s/e pretty well floored me but kept with it as no other choice. I would mention to the ONC about the breathlessness though. But it is better than the sepsis, good luck xx ... View more

Afternoon Angels, Sorry to here some of you are still getting s/e from the the chemo, as I've always said it is really nasty stuff. All you angels back at work are an inspiration. Thanks for the support for chemo nursing! Fortunetly I have always been good at cannulation, but think I would suggest that all chemo patients should have a PICC line to prevent the mess that is now my right arm, I had the ct angiogram this morning and will now have to wait for it tobe reported on then for my cardiologist to call me up with the results, so the wait continues. Very impressed Judy with your starting on your fitness regime . I was going to start when I got my results but think I will take a leaf out of your book and start now. We have got a brand new power trainer that my neighbour was through ing out. I will just stop if the pain comes back. Also very impressed about your rosehip syrup. It's amazing that these hard red seeds can produce such a lovely taste. I am now constantly on the lookout. Also looking out for sloes to make some gin for Xmas. With this endless supply of fruits I could almost turn this into a small cottage industry and wouldn't have to go back to work. Now off to pick youngest up from basketball practice, she will be thirteen on Wednesday ! Where did the time go!!!!! We have got the day off tomorrow as the schools are on strike, so she will be putting in her order for birthday cake, let's hope it's not too complicated! Have a good week angels xx ... View more

Evening Angels, lovely to here from Lori and Angie, glad your both ok. Mel, I am 18 days post rads now, and it was painful until about 5 days ago. Although multicoloured and peeling, fortunately the skin didn't break down. I know what you mean about the lumps, I thought the same but not due to see my ONC now until November but think I will also get her to check. I've got my angiogram on Monday and not allowed any tea or coffee ( or anything with caffeine ) until after the test! God only knows what I will be like by tomorrow evening as I drink about 8 cups of tea a day. May have total melt down.....but at least I will have an idea what's gone wrong. If the damage to my heart is anything like what it's done to the veins in my arm I'm in deep do dos. Sure it's not as I would have been carted off weeks ago. The Delrosa seems to have brought back happy memories of youth, I can say that it really does taste just like it, hope your all in the hedgerows tomorrow picking those rose hips. Happy weekend girls xox ... View more