FEC x6 cycle 1 day 14
had a bit of a wobble after all the brashness and high of the shave party, my main asd boy keeps touching my head and asking when is it growing back, so sat down with a year planner and wrote down all hospital visits and tried to guess when we might see some regrowth - anyone any idea? A friend offered to take the other one to scouts for me and I nearly said yes not cos I felt poorly but because of going out the front door with my new look! I did take my boy to scouts everyone was very kind and said I looked good etc but I know I really look like one of the Sontarans from Dr Who. Came home and kicked the rubbish bin around the kitchen a few times.
Elizabeth, if you don't like annabandanna there are liots of others and it is worth looking at the American sites too as some have very different things, also there are some that do hats etc with hair which I am quite tempted by, The headstrong thing sounds reaaly good, not sure where my nearest one would be in deepest darkest shropshire, any idea Cassie? Don't rule out buying some soft hats or scarves completely until youve experienced the hair loss. My scalp is very itchy and sore so my wig is really uncomfortable at the moment even with a soft cap thing underneath. As you may have read if there is an SE I will get it, so hopefully you may not lots don't. but just be prepared. The bandanas etc look very different when the hair has gone, but my real gripe is that I already have a chunky body and the lack of hair seems to exaggerate that. The American headware sites talk about padded and pattern scarves etc to try and draw attention away from body size !!!! Might give it ago.
chelle just looked properly at your picture, perfect!
On the lecturing front and tell me if I am coming across as a bossy know it all,
dont be too hard on yourselves - its ok to feel down about all of this, sometimes you just have to let yourself have a bad day. After 14 years of living with Autism I am getting used to the well meaning but a bit dim things some people can say. I get overwhelmed by the why me feelings and sometimes get really angry or just have a really good cry aided by my favourite feel bad songs such as Coldplays Fix You. I don't think I have done anything so bad in my life to deserve all this. One phrase I get a lot from people worried about their child's development is "course it is not as bad for me as it is for you". Comparing isn't really helpful, whatever concerns, problems, side effects you have are valid and are hurting you just as much as my problems are hurting me. It is what you are having to cope with at the time and how far off your current lifestyle, expectations and aspirations you get thrown that hurts and why wouldn't it. Years ago someone said that her attitude was "why not me?" and for years I didn't get what she meant I do now.
My mother is 82, has very recently lost my dad after 61 years of marriage, has a son with one leg, a daughter with breast cancer, is undergoing bladder cancer treatment and she feels guilty about having weepy days cos she thinks I've got it worse than she has!!!!
It is ok to feel bad so times you have to and have a good rant or cry to relieve the pressure otherwise we might explode. Also if we didn't have bad days how would we know when we are happy, or as I used to be told many times when I lived in North Yorkshire No Peaks Without Valleys.
my main way of picking myself up again is also through music either the cliched anthems like I Will Survive, or stuff like One Day - Elbow. Favourite feel good song at the moment - 'Come up and See Me, Make me Smile' Cockney Rebel.
Thank you for all your hair removing songs suggest, we used many of them while the kids were piling into set the scene. my friend chose
I'll be there for you (friends theme)
oops upside your head
lets get it started - black eyed peas
Wihile having my head shaved the music was
shiney happy people - REM
here comes the sun - Steve Harley
Poison - Alice Cooper (play it and I think you'll understand why)
then when they we all leaving we had 'Always Look On the Bright Side Of Life'- Monty Python.
i will shut up now and go and let the hens out.
Love n Hugs to all and
hope everyone has a good day today
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