Breast Cancer Now Forum

2 bl00dy weeks to wait, for results 😒 The MDT meeting is on a Wednesday afternoon, so I will have to wait until the following Wednesday to see my Oncologist 😒 Seriously they like to drag things out! Xx ... View more

Thanks Tracy I really appreciate that 😃 seeing BCN today for a chat, hoping she might let me know when I am likely to get the results! Although she's not the most reliable person 😋 ... View more

Hi ladies, just back from my CT scan. So now just the wait for results.   patty I know exactly what you mean. Sadly I think the NHS is stretch to breaking point. Which is why we end up having to chase things up for ourselves. I've come to the conclusion that to them I am no longer a person, but a number on their system. Which is sad. But i think they do they're best under the circumstances. We just need to make sure we follow things up ourselves. I also find that these hospitals assume that we have nothing else going on in our lives, therefore we can arrange things at a drop of a hat. Hmmm not that easy!   sending lots of love to you both xx ... View more

Welcome back Tara, glad you had a lovely time!   i am back from scan bruised from cannula, but other than that okay! Now the wait begins! But if one more person says "it will be clear, don't worry" I will hit them! Let's face it no one knows that for certain, so I prefer to go along the lines of "I hope it's all clear, but there are no guarantees, so I will wait for the results"!! Let's face it everyone expected the bone scan to be clear!!    Right time to to watch some TV and try and forget about this for a bit! Off to old charges nativity tomorrow morning 😃 very excited xx ... View more

Thanks Jane and Sam, really appreciate the support. Feeling ridiculously nervous, but not really sure why! I suppose it's just that feeling of having no control over this. I'm just hoping this scan will show them what the hotspots on the breastbone were. So I hopefully don't have to do anymore scans, anytime soon!    Will pop back on later and let you know if I got through it without tears?! Not looking likely right now as I am feeling very emotional. But I'm sure by now they have a warning of HIGHLY EMOTIONAL written on all my files 😋   hope you you both have a nice afternoon xxxxx ... View more

Thanks Sam, thought you'd given up on my moaning all the time 😉 as I had seen your name appear on another post! 😋     sorry to hear about your mum, let's hope it's nothing serious......or she'll drive you nuts.    I am am trying to keep myself occupied today, so I haven't got too much time to worry. Need to pop out and get the last few Christmas cards. Then come back and wrap the last few presents, then in theory I am ready for Christmas!    Then I just need an 'all clear' from the Oncologist to give me the best Christmas present, ever 😃     Sending lots of love to everyone. Xxxxx ... View more

Hi ladies, can I join you? Have a CT scan tomorrow. Had a bone scan a few weeks ago, to check out back and hip pain. The back and hip were clear. BUT 2 hotspots showed up on my breastbone! Oncologist didn't seem overly worried and was going to redo the bone scan in 3 months. Since then it was discussed at the MDT meeting and decided that they should do a CT to check there's nothing else going on 😒     Since diagnosis in August 2013,  I just seem to of had one thing after another. I'm trying to stay positive. I had Chemo so in theory any rogue cells were blasted. But feeling very anxious and not sure when I will get the results!    I feel like this journey is never ending.    Good Luck to you both, let's hope we all get an early Christmas present of Good News 😉 xx ... View more

Wow talk about feeling like I've stepped back in time......remember all those early wakings during Chemo! Well here I am wide awake 😕 annoying as I was hoping that I might get a lie in today! But clearly the thought of this scan is really getting to me. I've tried so hard to put it to the back of my mind, but it's tough.    Anyway just got to get through one more day, then step one will be done! Then it's just waiting for the results 😒 Just hoping I get the results quickly!    Right lets see see if I can get back to sleep!    Sending love to you all. Jane and Jen thanks for the supportive texts, I really appreciated them. Starting to feel like I'm the only one who still comes on here. So am talking to myself, but it's better than bottling up 😉 xx ... View more

Thanks Tracy, just having a bad day, I'm sure I'll be back in positive mode soon! It doesn't help that I don't know when I'll get the results. If the BCN calls or emails and tells me Oncologist wants to see me, do I assume the worse?! Because surely good news could be given over the phone!    Also so with my luck my BCN will probably take a weeks holiday 😁 maybe I should ask her that 😉     Thanks for the hugs, much appreciated 😘 ... View more

It's always good to feel you aren't alone in how you are feeling. It's funny how during Chemo and Rads, people understand that you may feel rough and need some support. But once on the hormone stage, they assume everything is hunky dory....oh how I wish it was.    I'm having a CT scan next week, my bone scan showed 2 'hotspots' on my breastbone, so after telling me they weren't overly concerned as it could just be where I've had a bump......weird place to bump?! They've now decided they need to make certain they aren't missing anything 😕 so feeling very fed up!   But reading your post has helped, because I was feeling that I was the only person struggling with fatigue and everything else. Although interestingly like you I also HATE taking time off sick, it just doesn't go with the job. I worked through Chemo, because I was too stubborn to admit that it was touch 😋 But maybe this is the payback, my body telling me it needs a break!! I have slowed down a lot, so hopefully that will help. 😄     take ken card and let me know how your doc appt goes xxxxx ... View more

Hi all, hope you're having a good weekend.    I've just finished work for the day. Feeling a bit tearful. Had a letter today about CT scan appointment. Stupid I know, but suddenly seeing the information written down, takes me right back to the scan I had when they found my nodes were affected 😒     2 years on and I feel like my life has been turned upside down again 😥 I was thinking about things and I know that there's a really good chance that things will be clear, although I thought that before the bone scan. It's just part of me is thinking "what if" and I know that's stupid and I shouldn't think like that. But I can't help it. I don't think it helps that I don't know how long I will have to wait for results!    Just feeling a bit stressed and worried about the whole thing!    On a plus, I have something to look forward to. I'm going to watch my ex charges nativity play on Thursday 😀 he's a narrator, dressed as a cowboy?! Don't recall that being in the nativity play when I was at school. Although during my years as a nanny I have had to make numerous costumes, and none of them have ever been anything 'normal'. Think the weirdest was a condor!! I'll never forget that nativity play, it was the one where baby Jesus was played by a 3 year old, and he sat in the manger opening his gifts 😃 brilliant!    Sending love to you all, I must finish writing cards and wrapping presents. Keeping busy takes my mind off things. Xxxx ... View more

That is exactly how I felt! I started a new job a few months ago, but felt so rough that I was considering giving the job up, and heading home to my parents for a few months. To try and sort myself out. Thankfully I haven't. Good Luck with your appointment! Xx ... View more

Hi, I am or I was taking Tamoxifen, and felt exactly how you are feeling now! I had constant niggling side effects that really got me down. To the point where I would burst into tears over the smallest thing. Probably not helped by the fact I couldn't sleep either!   So I saw GP and then spoke to BCN and finally Oncologist. It was agreed that I could take a break from Tamoxifen, so that we could work out, which side effects it was causing and what is 'old age' I'm 40!! But was feeling 90 most days.    I'm not saying you should stop taking your Letrozole, but that it's worth talking with your GP or BCN and discuss the side effects. They may only sound minor, BUT when you are dealing with all of them, while trying to get back to a 'normal' life. It's tough! I ended up writing a list, and at that point they took me seriously.    Also have you tried different brands? I know with Tamoxifen different brands affect people in different ways! Something to do with the binding of the drug!?   Good Luck with things, hope they improve for you 😉 xx ... View more

Very true! Although not sure when I will get the results?! As I don't have a booked appointment until Jan. I asked BCN if they would be able to give results over the phone, and she said lets wait and see??? So of course now I will panic if they call me in to get results, as I will assume that means they have found something! Don't you just hate the way cancer plays with your mind!! Life used to be so much easier!!    Hope the pots are going well! Xx ... View more

CT scan is on Wednesday at 6pm 😔 xx ... View more

I don't mind having the scan Sam, IF it gives me peace of mind! But am a bit apprehensive after the bone scan, which everyone said should be fine, turned out to create more questions than answers! If it had been clear, then I would of been happy, like you! Sadly it wasn't. ... View more

Hope it sorts itself out soon 😉 sounds frustrating and painful xx   I am feeling fairly settled, although having all these appointments isn't helping. Z is lovely and her parents are great. So I hope it continues to work out. We did some Christmas cards, and salt dough Santa handprints this week, which her mum and dad will love, I am sure. I actually felt like a nanny again 😆     tomorrow I am collecting my old charges from school and taking them out for tea 😃 I am very excited, as are they 😃 ... View more

Thanks Jane, I know they are just covering all bases, and if they had mentioned it when I went to see them I wouldn't be so bothered. But to make out they weren't concerned, then to discuss and decide on a scan, makes me feel far more anxious! I've just had enough 😕     So thanks for the hug, it's much appreciated. 😘   How are you doing? How's your foot? Xxx ... View more

Well I didn't quite get my 3 months break away from scans and worries. After discussing things at their MDT meeting, they have decided they would like to do a full body CT scan, to check there's nothing else they are missing 😐     I am beyond fed up 😕 just as I was starting to feel a little more positive about things they throw a spanner in the works!    Anyway at least they are keeping a good eye, and hopefully this will give me the total all clear, so I can relax a bit! Just waiting for a date to come through xx ... View more

Sounds great Sam, enjoy it while it lasts 😃 He obviously missed you! Xx ... View more