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AnneS
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since
01-01-2010
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25-02-2012
11:17
Just had the amazing news that I've had my 9th consecutive NED scan since finishing Taxol and Avastin in November 08. I had really convinced myself it wouldn't be good news this time as my immune system hasn't been great over the past year so I'm just coming round to believing it myself!
I had to laugh when discussing with my onc. how hard emotionally it is in the run-up to the 6monthly scans and he said "Well at least it's only twice a year you have to worry!!" I think he was half-joking but I thought to myself you have no clue what us ladies go through every day thinking any twinge might be the cancer and wondering how much time we have left.
Anyway my joie de vivre is gradually coming back as I just booked a holiday to Sardinia in July and lots of exciting things prior to that. I don't know where I'd be if it wasn't for this site though over the past 9 years with BC even though I don't post a lot these days.
Hope this can give hope to others. It's tough but I know I'm so much happier and true to myself these days and really try and live for every day and enjoy the simple pleasures of friends and sharing.
Love and best wishes to all,
Anne xx
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25-02-2012
11:06
just seen this - that's wonderful news Dawn. It's now coming up to 4 years since I met you at that meet-up in Surrey and things were very different for both of us then - am so glad things are better at the moment and long may it last. I completely agree that the worry doesn't go away though!
Take care and enjoy those lovely "muppets" of yours.
Anne xx
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25-02-2012
10:59
Just realised I didn't put the date in my message but it's in the heading!! Anyway it's Friday 2nd March from 11.30am!
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25-02-2012
10:58
We're having an informal lunch/coffee/chat meetup in Trenchers Deil Cafe,Windsor Place,Cardiff (just off Queen Street- the turn-off just after the Capitol Centre)from 11.30am,
All are very welcome. Just let me know on here if you're planning to come so I can look out for you.
Looking forward to it.
Anne x
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25-02-2012
10:55
Hi,really looking forward to the meet-up at Trenchers,Windsor Place,(just off Queen Street and is the first turning left after the Capitol Centre if walking down Queen Street from St Davids Centre direction)next Friday 2nd March from 11.30am.
Looking forward to seeing as many of you as possible. All are welcome.
Had the wonderful news this week that my latest PET scan is still clear which is such a relief as I was getting very worked up about it.
Take care all,
Anne xx
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21-02-2012
11:22
That's wonderful news Blondie. I met you at Dawn's in Surrey in 2008 and am so pleased to hear that you're still doing so well.
Very best wishes x
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13-02-2012
11:24
Looking forward to the next meet-up on Friday 2nd March at Trenchers Deli-Cafe on Windsor Place from 11.30am,just off Queens Street (Queen street station end)turning on the left just after the Capitol Centre if coming from St Davids Centre direction.
All welcome and we're trying to get a regular informal meet-up going on the first Friday of each month for a get together and eating and drinking! Looking forward to welcoming new faces especially some of those I met last week at the Haven Introduction day in Cardiff.
Anne x
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28-01-2012
01:44
Hi all,
Just realised that the first Friday in Feb is next Friday! Don't know where the time goes! Am really sorry to be a party pooper again but am going to be in Swansea for a music festival that day so can't make it and am still sporting this cold and cough which doesn't seem to want to completely shift!
It's so tricky to get a mutually suitable date but am sure it will happen eventually!
Am currently fine for Friday 2nd March which would be great for a meetup if others are interested.
How are you doing Starryskies and how were your scan results?
Hope everybody's doing ok?
very warm wishes to you all
Anne xxx
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17-01-2012
11:08
Lovely to hear from you Starryskies. I had been wondering if you were ok.
I hope your cough will go soon and that all is ok with your CT and brain scan. I have twice(2years apart)had to have a brain scan after constant migraines etc but both have been clear and the sereis of migraines and bad headaches I was having over the summer have disappeared now. I've not been without some sort of cough for 13 months now (scans have shown nothing new)but it's been particularly bad with this bug since mid November. Just finished my 3rd lot of antibiotics and feeling a lot better in myself but the cough still remains!!
Have a lovely time in Tenerife and hope to see you in March.
Anne xx
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10-01-2012
11:01
Hi all,
Welcome Marina.Hope to meet up with you soon. Thanks for the Haven reminder - I had seen something about it a while back for forgot about it so will book on if there's still places.
My cold and bad chesty cough are still hanging on but my chest xray last week was thankfully clear. I started on a new and my 3rd anitbiotics since before Christmas today so am hoping by the end of the 7 day course I will finally be cold-free!!
So I think it best if I don't come on Friday as I don't want to pass on any germs as am still full of cold.
I know a lovely lady offline who is keen to come and free on Friday.If there are other takers you're welcome to meet up at Trenchers anyway. Just let people know via this thread and I'll let my friend know too.
Looking forward to seeing whoever can come on Friday 3rd Feb. I better be cold-free by then or I'll go stir-crazy!!
Anne x
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06-01-2012
06:55
Hi all,
great to hear from a few of you and glad you're all still keen to meet up.
Still full of cold despite being on my second lot of antibiotics - I'll have days where it seems to be on the way out and then the next day is back with a vengeance!
Still hoping to meet next Friday 13th at Trenchers Cafe from 11.30am and have one offline taker already but I won't come if still have the cold as it's just not fair on anyone.
Hope your cold clears up soon too LoupyLou and really hope the pain you've been having gets sorted out and that your scans are ok. Looking forward to meeting you when you're able.
Shame you can't make the next meets Annys but look forward to seeing you in March hopefully.
Anne x
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04-01-2012
11:00
Hi all,
Not heard from anyone yet- probably still recovering after all the festivities! Hope everyone is doing as well as they can.
I'm afraid I'm not going to be able to make it on Friday as I've been struggling with my immune system for a while now and have just had a continuous cold,chesty cough,bad throat,lethargy since September and the cough has come back with a vengeance after Christmas and am back on my 2nd lot of antibiotics. I'm getting used to but highly fed up of having a perpetual bad cold and was sent for a chest xray yesterday but I don't want to pass on any germs to others especially those on treatment. Do go ahead and meet without me if there are those that would like to or we could postpone this month's meet-up to next Friday Jan 13th for all who can make it and I just hope these antibiotics will have got rid of these germs by then!Otherwise the next meet-up will be Friday 3rd Feb at Trenchers Cafe,Windsor Place from 11.30am if there are enough takers.
Take care all,
Anne x
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03-01-2012
11:10
bump!
Really hope I'm not going to be Billy no mates on Friday!!
Hoping to get the New Year started with a good chat.
x
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02-01-2012
08:31
bump! Hoping to see as many as possible this Friday Jan 6th in Trenchers Deli Cafe,Windsor Place,Cardiff from 11.30am.
Let me know if you are hoping to come so I know who to look out for.
Happy New Year everybody!
xx
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28-12-2011
06:40
Hi all,
Hope you all managed to have as good a Christmas as possible. I wnet away to the Isle of Wight and had a lovely time despite my persistent cough - Covonia and Benylin are marvellous but still it persists!
Just a reminder that there will be a meetup in Trenchers Deli-cafe,Windsor Place,Cardiff (off Queen Street near the Capitol Centre end)from 11.30am on Friday January 6th and on every first Friday of every month thereafter for any primary or secondary ladies who would like a natter,coffee,lunch,whatever in understanding company.
It would be great to see as many as possible and to establish this as a regular meetup.
Very best wishes to you all,
Anne xx
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22-12-2011
10:51
Very sad news. I remember "Poannie's" posts from back in 2007 and I have a feeling she was diagnosed with secondaries at a similar time as me (early 2008)as we were posting on the same threads and she always came across as a very determined young woman and I know was very keen to campaign for more support and awareness of women with secondaries.
Another young life taken but what amazing things she obviously achieved.
My thoughts are with her family and friends. She will be very missed on here.
Anne xx
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