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lindsyloo
Member
since
01-05-2012
420
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04-01-2013
11:00
Hi again
I had my operation just before Christmas but no clear margins so have to go back tomorrow to see if they can achieve them this time, trouble is it is very close to the sternum, the margins last time were less than a mm, and he wants at least 2 mm.
The tumour was 1.2 cm grade 3 (score 😎 no vascular invasion, as yet we do not have the status report so hopefully I will get that tomorrow.
The other problem is that as I had rads x 2 then the skin is not healing and I have a hole now so hopefully he can do something there, he says a skin graft will be needed
Oh joy
Linda xxxx
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04-01-2013
10:58
Am with you on that Ruby and Kath, it is getting tedious. I have had 4 Dx and 8 tumours in five years, chemo x 2 rads x 2 going for my fith op tomorrow as the they did not get clear margins last week.
Lets hope we get some good news soon xxx
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26-12-2012
11:11
Getting a bit tedious isn't it Kath we almost mirror each other here, getting a bit beyond a joke xxxx
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17-12-2012
12:53
Hi Rose, I was a nurse, the first time I was Dx I was a ward manager and therefore clinical I was advised by my onc not to work in clinical areas due to the obvious risk of infection, second time I was Dx I continued to work as I was governance manager by this time therefore non clinical, but was advised by OH and and once not to go into clinical areas.
Maybe DW with your line manager/HR/OH if there are any non clinical areas you can work for the period you are having chemo.
I actually did find it more beneficial to work through chemo as my life didnt revolve round cancer.
DDA says that employers should make resonable adjustments to conditions whilst on treatment, so I guess it depends on whether they think it is reasonable for you to work non clinical for a while.
Just dont put yourself at anymore risk than you need
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12-12-2012
03:57
I guess we have to dig deep because I am not for throwing the towel in just yet xxxxx
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12-12-2012
12:30
Hi
its only natural you will be scared.
If you have not had any scans yet he may arrange for you to have a bone scan liver scan etc to see if there is any distant spread as this could effect the treatment he gives you
My guess is he will discuss your treatment options which I would think will be chemo followed by radiotherapy, he will tell you which chemo he will give you, and how long it will take, and the possible side effects
Whether or not you have your bloods taken will depend on when he intends to start the chemo, if it is within the next day or two he will want the bloods doing, but I would imagine it will be in a couple of weeks in which case he will arrange for blood to be taken just prior to starting.
Different oncs vary to what statistics they give you, mine does not tell you of stats unless you ask him because he belives they are not useful, he says they are just numbers and anyone can be on either side of those numbers, so it depends on what you want to know.
Best of luck for tomorrow
Linda xxx
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11-12-2012
11:03
1 Hug
Well it is Christmas time again which in my case means another cancer diagnosis. for 4 of the last 5 Christmas's I have been diagnosed with another local recurrence, I am seeing the onc at 8-30 am for some sort of plan, I guess more scans etc.
Not sure how many local recurrences one can have, but so far I gave been fortunate that there has be been no distant spread
OH well back to the grind stone I guess
Linda
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29-06-2011
09:05
Sorry I have not been around for a while, been having holidays, and mooching.
I went to see onc last week, he said no evidence of disease currently, whoooo hoooo. He did also warn me that because of my history, i.e. 3Dx in 3 years, it is is still highly likely to return, but hey ho, its not showing its ugly head at the moment, and that is the best I can ask for. And like he says he has been proved wrong before he can be proved wrong again.
Hope you are all well, and we really must get a night out or lunch out or something arranged
Linda
xxxxx
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05-04-2011
09:29
Hi Saphy, welcome to our exclusive club. You are not too far from me I am in Billericay. Good luck with your treatment.
Jo Hope you are well and maybe meet for coffee today, I know Kath has emailed you.
Lily I have now finished rads at Romford, feeling ok, and things looking as good as can be expected, no evidence of spread but my ever optimistic onc still thinks it will come back but I intend to prove him wrong.
See you at 12-00 Joy x
Am looking forward to meeting up with everyone again soon
Linda
xxxx
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24-03-2011
10:55
Hi Jo
I think we are due a meeting soon so we will keep you informed when I know what is happening, and if you want I am meeting another lady from here in Chelmsford for lunch next Thursday and yo are more than welcome to meet up with us.
I have a complicated history, I was Dx over 3 years ago, had WLE chemo and rads, but it came back Nov 2009 and I had more Mx and more chemo. unfortunately for me it spread again last year so I had another lumpectomy and have just finished another course of rads, am getting over it now, and I feeling well.
Take care and will speak soon
Linda
xxxxx
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24-03-2011
06:36
Hi Jo
Sorry I have only just seen this message. You will have already started your chemo, and hope you are not feel too bad. Where are you having your treatment?
This is a lovely site and we occasionally meet.
Hope we heare from you soon xxxxxxx
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23-02-2011
03:54
Hi Ladies
sorry for being away for so long, treatment going ok but slowly, I loved meeting you all and looking forward to the next time.
My love to you all
xxx
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09-02-2011
12:33
sorry you are back on the treadmill again
I was first Dx 2007 and have just been Dx with local recurrance in the chest wall
I hope your staging results are positive for you
Take care
Linda
xxxxxxxxxx
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05-02-2011
04:10
Hi all
I am going to start radiotherapy for the 2nd time, but there have been problems with planning my treatment due to the previous course 3 years ago so as yet I have not started it. The problem is getting the areas of the tumour bed without damaging the good tissue. He did put forward that I could try Intensity-modulated radiation therapy (IMRT) but that would mean going into London 5 days a week for 5weeks, which would be 4-5 hours a day. And he would not be able to guarantee it would be any more effective than conventional RXT, and I would have to wait for more planning and to get the treatment authorised, as it is not standard treatment for BC, I have said I will go with conventional treatment but now I am not so sure. Has anyone any experience of IMRT or any thoughts of it. I know it is going to be my decision but I would like to know other opinions, I have until Monday if I change my mind
Thanks
Linda
xx
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01-02-2011
02:07
Hi Helen
thanks for your message, I hope things go well for you too, this is such an awful disease, and there is no such thing as cured which is hardest thing to cope with.
xxx
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26-01-2011
05:12
Hi ladies
today was wonderful, I met two lovely ladies Kath (again)and Oscar. We are all very different people joined together by this s****y disease.
The meeting was pretty surreal when we met outside M&S there was a lady singing for breast cancer and she was singing about climbing the highest mountain, we just stood there hugging and crying, I think the whole of Chelmsford must have thought we had gone crazy 🙂
Thank you ladies
As for me, I am about to start rads next Tues went for planning last week, and my onc is contacting Marsden to see if there is any other treatment in the way of chemo which may be helpful
I hope we can all meet up soon
Linda
xxxxxxx
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19-01-2011
07:19
Hi all
I have seen the oncologist, not as good a news as I had hoped for. Apparently the cancer is in the chest wall/muscle, and he has told me that I am no longer considered "curable". I have been advised to consider my work options and do all the things I wanted to do now before its too late.
I am going to have more radiotherapy 5 weeks, going to get measured on Friday. He does not want to give me any chemo at present as he wants to keep this option open for the future
My head is in a spin and not sure what to think, I am seeing him on Friday again for any questions I may have, does anyone have any idea of any other questions I should ask
Linda
x
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