Hi everyone
I was DX one year ago when I had a lumpectomy, sample lymph node removal (which were all clear) and radiotherapy. My oncologist said that chemo would only make a 2-3% difference to my prognosis so decided not to give me it.
I have since been seen by a geneticist due to family history, although am still waiting for the results which take several months.
I am so so scared of a recurrence that I have discussed a double MX with my surgeons both here, and in the hospital where I had my rads as an inpatient. After six months of discussion, they have agreed to this, and I am having a double MX with immediate reconstruction in seven weeks time (24th August). My consultant has told me that I will be in hospital for between one and two weeks.
I need some advice please on what type of things I should take into hospital with me, and how ‘mobile’ or otherwise I am likely to be after surgery. The recon they are doing is a fairly new procedure using Permacol (a type of pigskin) and expander implants (as seemingly I don’t have enough fat and tissue on my tummy or my back to use!) I have a lovely Tamoxifen roll of fat on my tummy which I thought would have been perfect but they don’t agree lol!
My gorgeous little boy will turn two the week before my op (I spent his first birthday in hospital having rads) and I have been told that I MUST NOT lift him for at least three months.
The way I see it, it’s going to be a really tough few months, but I will hopefully have some peace of mind afterwards. I have been told that the risk of a recurrence will still be 10% after the double MX but I think I can handle those kind of odds!
Sorry for rambling on – those on here who have met me already know that I can talk once I get started!
So, keen for any tips for hospital, and sending love and hugs to everyone else out there struggling with this horrible disease.
Shenagh xx
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