Breast Cancer Now Forum

Hi sumica don't be surprised about starting a little worrying now, I think we all do once treatment has finished, when it hits us what we have gone through and there is no longer a diary full of all these planned bits of treatment. it feels a bit as if we have been spat out by the system, and our safety blanket has been removed - now we are on our own. Planning a few nice things will help, and keep in touch with fiends and family too. And remember that your BCN is always there for any little niggle that may worry you, and so is your gp, and all the lovely ladies on this site. You are not on your own. Wishing you the very best with the last few radio sessions, christine ... View more

Hi sumica dont worry about the bone scan being sooner than planned - it may have been that they had an earlier slot available, and nothing to do with any urgency at all. As for results - you should not have to wait so long for hearing about them. I would suggest you ring your BCN and ask her to call you when the results are ready. Or ring her the day after the scan (sometimes they can have them ready the next day, depends on how often the radiologist is available to look at the scans) And check whether she knows something already. I hope all is well. Odd pains are worth having checked out - happily often enough they are just side effects from treatment and nothing to worry about. I hope your pains fall in that category too. 🙂 You have gone through a lot so far. Well done for persevering. You say should are still going through radiotherapy - I hope you are not too tired. The radiotherapy works on for some time after finishing, you may find that you are most tired about ten or fourteen days after the last sessions. After that your energy levels should slowly get better, good timing too as the days are getting longer and the weather moves into spring 🙂 something to look forward too. warmest wishes ... View more

Hi spud girl, rubbish indeed! like you I had a second primary on the other side while on tamoxifen. And both were oestrogen positive. I was diagnosed with the second one within six months of finishing the first lot of treatment. is your new BC er+? christine ... View more

Hi there, if your pain has been ongoing for a while, and you cannot lift a cup easily and it keeps you up at night when you roll over... then you do need to investigate further. There are other non-BC reasons for arm and shoulder pains. I would suggest you to go back to your gp. Tell him/her that it wakes you up at night, and that it worries you. Don't feel that you are a drama queen - you don't sound like one to me 🙂 . ... View more

well done! wishing you the very best with your treatment. Hoping the thought that someone else will benefit from your hair will bring lots of happiness to you too. christine ... View more

Well done! That's fantastic news . Thank you so much for sharing this. Would love to hear more good stories like these 🙂 christine ... View more

Hi Suzy i hope the results have come through for you, and that that are good .... christine ... View more

Bump ... View more

Bump ... View more

Bump ... View more

Bump ... View more

Hi Sue, the information that Leah refers to above is very good. Also, you may be able to get more information from your hospital team on this - where I am there is a family worker in the hospital specifically for people with cancer and their children, who has given me some excellent advice at tough times. Perhaps worth checking what support they offer where you are? all the best christine ... View more

Ps movicol is available on prescription only - so you need to ask your gp or chemo nurse or oncologist. ... View more

Hi fighting lady, i am so sorry you have been caught by IBC too. It is a tough one, and you will go through a tough regime of chemo and surgery and radiotherapy. But it is doable, and you will get through. It sounds like you have a great bunch of friends where you are - that is fantastic. Make sure you don't feel shy in relying on them lts. They will thank you for that too. And there are lots of very lovely ladies here to help you through. I was diagnosed with ibc two years ago. Still here and no evidence of disease 🙂 I had chemo, surgery and radiotherapy too - a long haul. please stay clear of dr google. There is lots of stuff on ibc on google which is way out of date and scary. Macmillan and this site are very good. I hope your ECG goes well and your treatment can start soon. please keep in touch. Check out the ibc part of this forum too. There are a few more ibc ladies here. Warmest wishes christine ... View more

I love the oncologist who filled you with confidence - that's just fantastic - you are in good hands 🙂 ... View more

Butterfly totally agree with the other replies. Don't suffer. Constipation is a common side effect of chemo. It can be sooooooo painful. mention it to your medical team. Movicol is fantastic. It is just a powder that you dissolve in water and drink. Easy. And such an amazing effect - you will feel so much better!!! No need to suffer. 🙂 i suffered constipation very badly too - movicol provided so much comfort :-). I still feel better just thinking about it. as with the gcsf injection - is there someone else who can give it to you? I had my community nurse (associated with the gp) give it to me. She came to my home. My chemo nurses in the hospital faxed her a request to come. So that may be something that could work for you? You may also be able to ask your gp surgery direct. The nurses are used to give injections, so no worries. Chemo is hard, but there are lots of people to help you, and ways to deal with the side effects which will make life easier for you and hubbie too. You just need to keep asking. with the very best wishes christine ... View more

Congratulations. Fantastic feeling when another lot of treatment has been completed succefully . Well done You 🙂 ... View more

since sometime early December ... View more

Bump - for January 2013 questions 🙂 ... View more

Hi Katy, yes, I have rib pains too, and am 12 months past radiotherapy on that side. Just had a bine scan to check and all was clear. My nurse specialist said bone pain in your ribs can happen even more than a year after radiotherapy. See also the thread 'what does bone mets feel like' which is current at the moment. Plus around 2009 there was a thread about rib pain and radiotherapy which I have just discovered, with other ladies stories which may help. I will try and find it and bump it up 🙂 hope this helps. christine ... View more