Breast Cancer Now Forum

Morning Flutterbys So glad to hear Phil is coming on nicely Janice it must be such a relief for you 😊 It's been a rough year all round reading some of the posts sitting here and recouperating myself which I don't do well.. Littlelady I hope the replies have helped you see through some of the fog this rotten Gremlin brings into our lives, it is as everyone says just time and not letting it bombard your head too much! X Hi Fluffs I hope things go well for you too honey xx Stella, Jane I hope things start to improve for you both soon and Spring will help lift the spirits, x I am now 10 days post op and very impatient with my poor old battered body, I hav,nt been able to do much at all, I didn't realize until this just how much stress our neck takes on in just menial everyday tasks, and I,ve had to give up doing most of them for the time being! My scar is coming on nicely from the outside the Consultant has done a fantastic job of concealing it in a crease... (That comes with old age 😳) but it feels horrendous.. I started the moisturising regime with Bio oil yesterday and it feels alien! It's still numb but really lumpy and nobbly... Also found one of the internal stitches poking through so that gave me the eebi jeebies! I have my follow up on April 7th which seems a long time to wait for biopsy results, I,m hoping I get them sooner 😞 I think it's left that long so the thyroid and calcium levels can be checked once everything has settled.. Still a rubbish time waiting though, I don't feel too brilliant as I know my calcium levels had dropped initially making my hands feet and face tingle, that's wearing off a bit but I still feel really low so I,m either going to be on meds for the rest of my natural or it will eventually stabilise? It's certainly knocked the stuffing out of me, and I will NOT be rushing back to work! I,ve spent a fortune on unusual pots and planters for my garden while I,ve been off ready to revamp part of it, just need to be well enough to do it all 😊 and its soooooo frustrating!!! Thank god for online shopping!! I,ve also booked my summer holiday back to Mallorca to see my friend again... I will be bankrupt at this rate! Ha ha! Must tell you one of the nicest happenings last week.... With having no voice I,ve spent a while contacting people on facebook as I,ve not been able to chat... Last Thursday I got a friend request which gave me the biggest lift ever 😀😀😀 When I was in my 20's I met a band from Sweden and became very good pen pals with 2 of the girls.. One of them left the band and came to live in the UK.. I gave her a home for the first 6 months and we had an absolute ball, she then joined an English band and went off to America with them, we kept in touch for a couple of yrs but I married and had a family and as happens we lost touch! This friend request was from Zanna!!!!! It turns out she came back to our Area 10 yrs ago bought a house with her 2 daughters and settled here, she now is running a music school 5 minuites from where I work 10 miles from where I live 😳 she has tried on numerous occasions to contact me but not knowing my surname hit a brick wall! Last week I sent a birthday greeting to what turns out to be a mutual friend and she contacted him to see if this Doz was her Doz and of course it was 😀 we are planning a reunion next week..... In the hope my voice has returned, I,m so over the moon I,ve got contact again! The story does,nt end there though, we were sending each other messages on F/B and my son put a little message on saying I know her daughter Charlotte??!!!? Can you believe how small this world is and how missed opportunities arise! He,s known her for about 8 yrs and never dreamt that her mother would turn out to be one of my dearest long lost friends! I can't wait for the 40 yr catch up! If my voice is back by then I think I may just loose it again 😊 Well the sun is out its a bit nippy but I think Ben will be happy to go for a stroll so take care everyone time to wrap up warm and get some fresh air ☺️ Love and hugs to you all, as alwayz xxxxxhugxxxxx ... View more

Hi Littlelady What you are experiencing is what we have all gone through bless you.. Unfortunately it does take time to get some kind of quality of life back, but be assured it does come back albeit a bit different! Sadly the meds we are all on to keep the little beggar away don't help much either 😔 though again after a while and it's different in all cases our body's get used to them too, the tears and feeling lost are all really common, and I think getting it of your chest with people who do understand is your first step to getting some normality back... Just knowing it's not just you honey! We're all always here to chat with and without that I,d have gone bananas! So your more than welcome to join the butterflies.. Some have shed the chrysalis and come out glowing a lot of us are still finding our beautiful wings! Hope this has helped you to know what your feeling is just the rotten side effects of this dreadful mind destroying Gremlin.. And it does get better sweetie! Love and hugs xxxxhugsxxxx ... View more

Oh bless you I know how your feeling and it is all a worry but you take time off if you need too... It's debilitating when things are looming! Especially having been through what we have! Xxx My voice still leaves a lot to be desired it just breaks all the time and is very weak 😟 can't sing can't raise it and it's soooo frustrating! I am resting as much as possible but to be honest it's knocked the stuffing out of me, i only noticed on Monday on my discharge letter that the hospital should have given me a weeks supply of strong painkillers.... They must have forgotten so I,ve managed with just the odd paracetamol which was,nt very effective 😳 I had 8 staples removed on Monday but one would not come out and when it did it started bleeding again so had to keep dressing on till yesterday, it's a relief to get it off but it's still quite sore and swollen, that... I,m told is normal! 😟 I think the tiredness is thyroid levels dropping but I don't have an app, till April 7th to see the thyroid clinic, so I won't get results of biopsy till then either 😞 It's not been a brilliant week as I hate being restricted... Feel like a caged animal! Can't see me returning to work for at least a couple of weeks! I think the general anaesthetic took it out of me, and the trachea tube they use has bruised my windpipe and throat, still very sore and painful to swallow tho that is starting to ease a bit! Not a happy bunny but it's done now... Hope everyone has survived the winter with few or no problems, it's officially spring 🌹🌻🌺🌾 And the Davies Cup starts today so that,lol keep me in my chair 😉 Love and hugs to all flutter gently xxxxhugxxxxx ... View more

😃😃😃 IT went very well... Quite a long time in recovery due to breathing tubes to restrict breathing or swallowing due to op site, but apart from being a bit sore and a very er... Sexy hoarse voice I recovered so quickly once I was back in my bed 😊 so much so I begged the consultant to let me go home...... He was laughing and said that's the Morphine talking!! (I love Morphine) long and short of it is he came back to see me after I,d wolfed down sausage and mash and a litre of Manuka honey mixed with lemon and ginger that Vikki had made up for me.... And.............. Discharged me!! 😀😀😀😀😀 he said it went very well and as I was aware of risks and knew what to look for he was happy for me to go home under very strict instructions to rest 😊 it took me 3 mins to bounce out of bed and pack my bag ha ha! So I,m home and chilling... Walked into more beautiful flowers from Vikki she was an absolute rock yesterday and stayed with me nearly all day 😊 I will eventually get my voice back.... With avengence I reckon after having to rest it now! Thankyou so much for your support and well wishes butterflies it meant a lot 😘😘😘 Love and hugs as alwayz xxxhugsxxx ... View more

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Morning Butterflies Hope all goes well with the D&C honey the things we have to go through 😔 Starting to feel very nervous now with my op being tomorrow eeeeeek! Though I have a very busy day ahead of me... House is a tip after working lots of extra shifts ( my choice) so that in itself will be a full day's work! Then treating myself to a hair cut and colour at 3 so best put the coffe down and get into gear! Work and staffing is dire at the moment with 3 already on long term sick and now I,ll be off for about a month but I did my bit for them over the past couple of weeks so I can now get through this and have some me time without a guilty conscience! Hope everyone is well and taking care of yourselves flutter gently and much love to you all xxxxhugxxxx ... View more

Hi Francine welcome to the Butterflies 😃 I live in Humberside and I think from experience here you just have to keep leaving messages and hopefully they will get back to you! Not very helpful If you need to chat though, tho i,m sure if it's something general one of the girlies on here can always lend an ear and give very sound advice xxxxhugxxx ... View more

Good luck for Friday Jane keeping fingers crossed! Love to everyone xxxhugxxx ... View more

Oh bless you 😔 what a messing around your having, I do hope it all comes back ok xxx Yes I got a date 27th Feb eeeeeeeeeeeeeeeeeek! I,m very quietly pooping my pants 😳 really trying hard not to think about it but I,m not doing so well! Got my pre op on Thursday so it's making it all very real! I love the Chase I will watch out for you 😊 Hope everyone is ok and your keeping well love as alwayz xxxxhugsxxxx ... View more

Just a quickie girls.. An employer cannot disclose personal data to other people it's data protection! Nor can they discriminate due to major ill health.. I do hope that helps you bless Ya xxxxhugxxxx ... View more

Hi Jane Sorry to hear your symptoms are back.. But I,m sure if it was something they would have found it last time? Could it be a side effect of any meds your on? I know some can give you small bleeds! Tho yes best thing is to get it checked out to be sure.... Good luck with you results for mammo, always a tense time as we all know xx I,m not sure how long I,m going to be waiting but the surgeon put urgent on it and when I asked how long it would be he said within 3/4 weeks perhaps sooner.... And yup... I was awake all night too! As much as I,m trying not to stress my heads all over the place! I rang work to forewarn them that I,d be off and asked if I not be moved until I,m sorted... As I,m always put onto Oncology and I don't want to be on there... I was told by our senior nurse its out of their hands its up to 500 bleep! So this morning I,m calling occupational health, I,ve enough going on without the stress of that! Watched the slightest of coverings of snow fall about 5 this morning... Since then nothing! I,d like to have a couple of days of the White fluffy stuff but it's only settled once for a day then went as quick as it came😔 Stay warm all you lovely Flutterbys and stay well xxxxxhugxxxxx ... View more

Hi I don't think it's fair either as it seems different parts of the country get different quality of treatments and after care....tho perhaps we are to blame as maybe we should ask? I know personally I just wrapped myself in cotton wool and went quiet... Till I started writing on here.. Now you can't shut me up 😊 But I do think if we enquired about after care it just might be there?? Tho why we should have to ask baffles me! Good to here your daughter is doing well, as for other people having more energy etc! I think we touched on this on here a while back? Of all the girls who have written on this post we found we were all different in energy levels speed of recovery etc! Which made me feel better as sometimes I can't even bother to get dressed... Hence a PJ kind of day 😊 but that's ok if it makes you feel comfy then fine! If you can't be bothered to do anything that's also fine as long as your content with it hon... We are all different and we progress at different levels xxxx Bad news for me today... The test I had on the suspect nodule in my thyroid gland is still inconclusive... So... They are removing half of the gland asap! Still in shock as us nurses are the worst patients and I am such a wuss 😔 Hope all you lovely butterflies are keeping warm and taking good care of yourselves xxxhugxxx ... View more

Bless you we all know how you feel once treatment is finished and the deed is done we "are" left to adapt and it's not easy... Whether you have lost a Breast or had half of it taken away as I have, it is,nt easy coming to terms with the loss and it does leave psychological scars in more way than one! It's an unseen legacy that sadly we do have to come to terms with 😔 and I think we all would like to be treated with a bit of caring for what we have been through... So yes of course you can join in you already have honey 😊 xxxxhugsxxxx ... View more

Hi Jomar It is a very daunting time lots of info is,nt passed on whether your private or not but McMillan nurses are always in attendance at our clinic to talk to and advise.. The day you finish treatment the world becomes a very large place and your umberella has seemingly disappeared 😔 but it has,nt really if you need advise or just someone to listen just ask honey there,s always help... Here is a good place to start 😊 but your BC nurses can put you through to the right people! It is a very lonely and at times scarey place to be when you walk out of the door for the last time... We can all relate to that, but the girls on here are all at different stages in the long road to recovery and we are all of the same mind.. No matter what stage your at it is still daunting but with help and support you will get through it! We're all still here offloading and if truth be known I don't know where I,d have been 4 yrs on without this site and the lovely butterflies! Spread your wings sweetie and join us in getting there 😊 xxxhugxxx ... View more

Jomar glad your post finally got put on here... I thought something strange was happening I kept getting notifications that you had posted at 03.36 03.49 and 03.58 but nothing had appeared on the forum until now 17.15? You blast away girl as we all have done and will carry on doing... Been there done it and unless you,ve experienced it no.one will ever understand the physical and emotional roller coaster it puts us on! Must dash as I,m out with my family but just wanted you to know your not on your own and we all know exactly where your coming from sweetie! The gift that keeps on giving (B*****d) Sorry it's so short but I could,nt not send a quick reply for now to let you know we're here for you xxxxhugsxxxx ... View more

Wierd your showing now 😀 xx ... View more

Is anyone getting notifications that someone called Jomar has posted on here? It's really odd I,ve had 3 notifications but there is nothing here? Xxxx ... View more

Hi Butterflies Hope everyone is well and not being too affected by the weather,, tho to be honest it's quite calm here at the moment.. Had a few snow flurries and a lot of frost but nothing major 😊 Finally got my letter through, follow up from having fine needle aspirate on my thyroid gland.. Results so far inconclusive? So next step is appointment with Cardiovascular Surgeon which is this coming Wednesday 😳 Really trying to not get wound up but the minuite the app, came through the dread started 😔 Going out with my family and a few friends tonight for Vikki's birthday... Sister came through from Norfolk so it will be a proper family gathering 😌 it,ll sure take my mind of things!! Work is dreadful at the moment we are being put onto wards where there are shortfalls in staff leaving our own ward on minimum staffing.. Things are really not good at the moment so as soon as I find out what's happening neck wise! My application to drop hours is going in! Drastically! I just don't like being taken out of my comfort zone patient wise 😔 and especially how I seem to get put on Oncology ever time I,m moved 😔 it's not a speciality I would choose so my mind is made up! Hope all is going well for you all and your keeping those wings dry flutterbys Love and hugs as alwayz xxxxhugxxxx ... View more

I just posted wrong! Sorry girls it went as a reply to Janice's post I think? Doh!!! X ... View more