Breast Cancer Now Forum

Hi girls I,ve been having problems with aching joints and muscles.. thinking it was Statins as that is a side effect of them(cholestorol levels went thro the roof after going on Letrozole)I went to see my Dr who agreed to try me on a different one.. Tho she did tell me it was more likely to be the Letrozole..its also a side effect of that too so I guess I might be stuck with it??? Has anyone else had this problem whilst taking it?? I feel 100 sometimes when I try to stand up after sitting for a while and when I get out of bed in a morning it takes ages to straighten up... Sob!! Love to you all Doz xx ... View more

Oh hell I put thongs instead of things!!! could have been embarrassing 🙂 xxx ... View more

Ha ha ha!!! you poppet.. I,ve just been upstairs finishing off the ironong from hols.. had about 4 hot flushes doing it! mind you there was my delighful offsprings too she unlike me went into work and got it right! She,s a chef who hates ironong! Was glad of the gale force winds blowing thro the window! Needless to say once finished jimjams on 🙂 I would have throttled the silly woman. what kind of Cancer is the best kind???? does it exist??? dear oh dear how insensitive SMACK HER FOR ME!!!!or better still poke her other eye out.. the one you missed!!! It happens tho sadly until your in it you dont have a clue so best give her her eyes back!! and give her another grating teeth bared smile :0 Everyday should be a mega hug day Em.. "HUG" I,m also under the Lymph/nurse thankfully fingers crossed its settled, I have a skeeve and glove but due to infection control I cant wear it for work so it goes on when I get home for the night.. dont like it but it works, I did use it on the plane but got sick of people staring and after spilling my brandy and coke down my white trousers cos I could,nt pick the silly plastic cup up (Jet2 crystal)it came off and so far its been fine.. bless you its not nice Em, I think taking up Badminton again has really helped it, tho i,m not as good anymore but I so enjoy it! I,m at physio in morning as i,ve had a lot of trouble with my shoulder since op, It started the day after with a sharp pain between my shoulder blades Aneathetist said its from the injections from aneasthetic (bit like Epidural)should have been before now but its been one of those thongs you just put off with so much other stuff going on and it has,nt been too bad but fed up with the niggle now! I really like your hair... wear it with pride honey its your medal and it does suit you.. My son popped in for lunch as he,s working in the area this week I made him some lunch and a cuppa but forgot to take the tea bag out so when he started to drink it he got a mouth full of bag!!! He laughed and called me a DOUGHNUT to!!! What are you all trying to tell me???? Ha ha ha!! 🙂 The one thing I love about this site is you can rant, cry (often) laugh and you all empathize not criticize.. Strangers you may be but right now at this point in my life when everyone expects you to be fine there is this little pocket of beautiful people who have shown such compassion.. even thro the throws of madness (often) you still want to dance around the hat rack with me.. even if I lick windows 🙂 hope you know hat joke otherwise I just lost the plot ... again! Glad you didnt go shopping in your JJs and DG even I would have walked past you Em 🙂 Bless you have a peaceful night a sweat free hour or 4 and a wonderful day tomorrow.. You should have used the ....off word you,d have scored 10 points in my estimation.. GO ON GIRL TELL IT LIKE IT IS!!!! xxxxxxxxhugxxxxxxx Doz ... View more

Are you still in your jimjams Em 🙂 Hi Poppy and welcome with open arms into our exclusive little club The ladies who play hide and seek with themselves.... Where did I go? I,m due my first check up since active treatment stopped and I dont mind telling you i,m getting the jitters... A. It,ll be the first time i,ve been back to the Breast Unit since R/therapy B. My boob is still really tender as my scar is right round my nipple and still very tender. Hav,nt slept on my stomach in 10 months! Ha ha joke there I hav,nt really slept in 10 months! So the thought of having it squashed in the dreaded pancake clamps fills me with absolute sweats... as if I dont already get enough! I think one of the hardest things to cope with through all this is the waiting.. its too long especially when you,ve had a positive diagnosis as we all have. I think you will see from all the gang on here that non of us have come through this the same person so perhaps we,ll come out a stronger person at the end of it all... can only hope eh! When Em replied to my initial post I could have cried with relief we could have almost written each others posts and not known the difference then in the last 3 days there are more relating to the loss of our old self its such a relief to know whats going on in our lives is,nt unique. I have gained so much from reading that were not as alone as we thought.. and the mask! well we all wear one if you read the previous replys. I actually want to stand up and shout when people say well its all over now you can get on with your life.. Aaaaaargh this is ME ME ME!! OY I,VE HAD BC AND I,M STRUGGLING SO PLEASE DONT SAY WELL ITS ALL IN THE PAST DONT FORGET I Just had a nice (not) flush God I hate them. Love to you all.. xxxxxxxxhugsxxxxxxxxx Doz Think this turned into one of those angry rants soooo sorry x ... View more

Hi Em Drove back in what seems the start to the predicted wind... not bodily one might I add 🙂 glad to be home after dodging high sided lorries that seemed with all intent and purpose as if they were trying to send me into a different lane!!!! Have you battened down the hatches and garden furniture?? I did it last night thinking I was back at work today at 12 WRONG... the head thinks what it wants nowadays its tomorrow i,m back.. oh dear dancing round the hat rack away with the fairies again!!! After reading so many posts pre and post diagnosis the one thing I,ve realized since coming on here (3 days now) non of us really loose ourselves i,ve smiled laughed and yes cos of the hormone killer i,m on cried buckets. But your all such amazing girlies I cant thank you enough. I thought I was loosing my marbles too not so.. just a nasty side effect of all that blessed treatment and guess what... were getting there! Love and big xxxxhugsxxxx Doz ... View more

Hi screenchicken and Jane welcome to where did I go?? Emmy and myself are glad to have you on board 🙂 along with anyone else who lost "the old you" I can only say its still there somewhere but a bit hard to find at times and when you think you found it it disappears again... bit like hide and seek 🙂 Emmy summed it up for me The gift that keeps on giving!! But its so good to know your all out there and i,m not loosing my marbles just yet! I think I read that Jane is tottering over Letrozole Lake?? Just been for a swim and have an appointment soon so better get my sorry asse out my jimjams.... again and go get a shower.. Love to you all and remember your not alone all us ladies are dancing round the hat rack too. Keep smiling girlies xxxxx Doz ... View more

Morning Emmy Still in the beloved jimjams ha ha!!! I replied thro your big hug mail instead of on here.... What a novice!!!!! Our stories are so similar its uncanny. My parents both died over xmas too Dec 17/19 then my daughter had a car crash! its a couple of years back now but still feels like yesterday in many respects. Also I had a birthday Dec 13 just after my op and just before my R/Therapy started. Really dont remember the day at all GONE!! I,m sure everyone on here has the same emotional mand banging that follows the end of active treatment so no honeybunch your not loosing it and coming on here is such a revelation for me also.. "Its not me its everyone else" comes to mind when your expected to be fit and well... cos its all over now is all you hear! WE are i,ve come to realize a very exclusive club and instead of feeling low and despondant when outsiders expect you to just get on with life.. say to yourself Oh I am but it takes time.. quite a long time and if I feel rubbish then I feel rubbish! i,ll be popping in and out of here also so ditto young lady (by 3 yrs 🙂 anytime the head gremlins get the better of you bounce it off me anytime my window is always open xxxxxxxxxxxxhugs backxxxxxxxxxxxx Doz ... View more

Hi Emmy It was good to read your reply and hear your story, we could have written each others and not known the difference 🙂 It is,nt the cancer thats the problem its everything that comes with it.. I,ve put nearly 2 stone on too and even tho I know its a side effect of the Letrozole it still adds to feeling rubbish about everything. I,ve spent hours on here today and at 2.00pm still reading stories from memebers, I was still in my jimjams!! (terrible) I cant believe how I can relate to you all and didnt know the site existed till today I dont know how i,ve missed it? tho I hav,nt really looked for one till now..I'd just got to the point were I was so fed up with myself and sick of people saying.. its all in the past now move on (in the nicest possible way... I hope?) but when you feel so rotten all the time its not easy.. as i,ve been seeing today from you all. I,ve lost my get up and go which was always my friend!Life and soul of any party.. I just was,nt prepared to feel so bad for so long with my emotions bouncing from every wall in sight.. no.one warns you that it will/could happen and I think once your left to your own devices when your active treatment finishes your left with your life in tatters.. well it is compared to the way it once was!!its hard to stay positive when you feel so rubbish. Thanks for getting back to me so quickly it does help when you know your not on your own.. Bless you and thankyou I hope you turn the corner one day soon and bump into yourself again 🙂 Take good care xxhugxx Doz ... View more