Breast Cancer Now Forum

Oh It is such a lovely picture. I do hope you are feeling ok? and not too sad? ... View more

hi all, yes chillows are fab, I sleep on a normal pillow and have the chillow next to me on the other side and when I get too hot I just move onto it (so it stays always cool) and then when I get too cold I go back to the normal pillow. Just seems normal to me now to do this. WS ... View more

Lilacblue, What a great post, I am very pleased you are so happy with your recon. It' s fab you are thrilled with the result after all you have been through. I am also looking for a very 'natural' look and wil be stressing this. I like that you have given an honest account too; that there have been some ups and downs along the way. It helps to know what I will be facing. It is reassuring too for those of us awaiting the procedure. that the pain levels are copeable with as well. Mine is scheduled for late August/September, all being well. I am having the 1st of the consults with my lovely surgeon in April. WS ... View more

Hi Carmy, No Socks sadly never returned. I do hope he is with a lovely old lady somewhere!. I have however got another off a friend 'Cousin Horace' to give him his full title. He is very fat and lazy! I have recoverd from my mx, but I am still very stiff and numb around the area. But I guess that is to be expected. Are you do you feel on the road to recovery now? I am hoping for a recon in August - all being well. It is a strange time when treatment finishes isn't it. Kind of cast adrift to look back at what we have been through. I do hope you are still enjoying Spain, I know you are missing snow. We have rather a lot of it in The Pennines today. It is lovely, but I do worry about falling over as I have osteopenia (thining bones). It would be lovely for us all to meet you at some point. WSx ... View more

Carmy, How wonderful to hear from you!! WS ... View more

Wolsty, Done the same with my reading glasses - turned the place upside down only to find they were on my head! I do hope you manage to get on top of this latest bout of infections etc. It's so miserable when it's one thing after the other. Hope all our MM's are ok. WS ... View more

Christine P, Sorry to hear you are having to go for a bone scan. Did your onc suggest this or your GP? I think as you say it is difficult to know who to tell (I am seeing 2 consultants ) other than my breast team. I think as you say it is a good idea to raise stuff with the GP and keep checking in with the onc team if there are real worries. sometimes, I just get embarrassed at keeping returning to my doctors with issues, just before bc I has an abdo MRI scan because of bleeding, thankfully, only ovarian cysts seen. It would be nice to have just a year away from hospitals and doctors! But I suppose If I have pain I ought to tell someone....... WSx ... View more

Dear All, Thanks for your replies. My next Onc appointment is in April, so I guess it would be a good idea to bring it up. WS ... View more

Hiya ChristineP I did mention it to my breast surgeon when I was first diagnosed. But she did not seem concerned. I have not told my GP yet as we are tying to wade through my other issues, gynae stuff and gastro consultation to come. I have Coeliac disease and the malabsorption of calcium has resulted in thinning bones. I really don't feel like I can face any more investigations. I am not even sure who to tell! I think that is part of my problem! Where to start? It is all making me feel very down. What symptoms do you have? WS ... View more

I too would like more information on this. I was dx in Feb 12. I have pain in my lower back and buttocks, pain in the hip when walking too. I have had a CT which was clear and a DEXA scan that showed thinning bones. I am on calcium and vit D supplements. Letrozole too, started in Sept. I have not had a bone scan. I really don't want to keep having tests as have had many for years relating to other conditions, but would rather like to know if there is a pattern of pain or symptoms that would point toward bone mets. If so then I will get it investigated. Thanks WS ... View more

Our dear and lovely Dulcie, full of fun, kindness and love. Our precious Marchie. Rest in Peace. WSxx ... View more

Our lovely Dulcie, May she rest in peace. WSx ... View more

Hiya Caroline, Chemo really IS doable, try not to fret too much. It's normal to feel anxious but you will manage ok and others are here to support you. When are you starting? WSx ... View more

Hi Caroline, Good (Christmas) Morning. Boots do a wide range of thermometers the digital ones you stick under your arm are quite inexpensive. Whilst I was undergoing chemo I knew I was going to be using one a lot so I wanted it to be robust and accurate. I think was about £30. It is a stick- in - your ear type I am using it now as I have flu and high temperatures. When the doc visited me at home the other day he had exactly the same one. The hospital did tell me they do vary in their accuracy, and I wanted one i could trust. I think it is a good investment. You will probably get it cheaper online ebay or Amazon. WS ... View more

Happy Christmas to all Marchies, WS X ... View more

Parsnip, I so so recognise those feelings of not spending Christmas with my boys when I first separated and the boys were little. I remember at times I felt utterly distraught at not being with them. It got easier as the years went on his turn/my turn. I do hope you are able to have time with good friends and family. It will help to be around others, of course you might want time on your own too. Christmas will pass and you will be with him again cuddling up. These years when they are little are so precious that we so want to part of it all with them. I realise that more and more as mine get older. Tonight my 15yr old went to look for something in his bedroom and came across a box, with bits and pieces marbles, badges won for swimming, a toy car, his baby tooth, a drawing he had done. I too felt very sad as I will not be with him at Christmas. I went for a wee so he would not see me upset as he hates it. Please don't worry too much about crying in front of him, I too have done that and as you say it can end with having a giggle! I do think it is important for children to see our sadness at times, then they too can be sad - Our upset can give them permission to air their own feelings. Of course having breast cancer makes it so much harder to bear and all the 'what if's' creep in. I know you were having some counselling and I do hope it is helping? I too start this Friday. As you say it has been a long old year for us all, full of fear, pain, mental anguish ups/downs and for you still some ongoing treatment. You are a lovely lady and a wonderful Mum and next Christmas will be yours. WSx ... View more

Hiya I am being followed up every 3 months for a year! It seems to differ so much. Although it makes me feel very anxious before each appt I am glad it is so frequent as I am looked out for should there be any sign of recurrence. Jane, Barbados - how completely wonderful, some months away yet but I hope you have the best time. Ws ... View more

Hi Lindyloo, I have also got this problem and have had it since I was 28. I am now 51, interestingly I have Coeliac disease which is also an auto-immune condition. I have had multiple investigations over the years, bariums, endoscopy but all have drawn a blank. My GP insisted it was gLobus hystericus although I refute that. It is connected to my digestive problems for sure. I have now learned to live with it, along with other residual symptoms as a result of a 10 year misdiagnosis (Crohns, MS, ME) you are not alone in having this horrible symptom. WS ... View more

Hi Spookymoo, Agree with all you say, it is utterly shameful that these banks are allowed to get away with such immoral behaviour. I will look out for this programme on Iplayer. Unfortunately, my situation is not dissimilar to that women. Like you I am battling with the benefits situation. It is at times unfathamoble with endless form filling, getting money on the one hand from them and having it taken off on the other. Like you I have worked and was working right up to the point of dx - It's so unfair. Throw in an errant ex......to boot. WS ... View more