Breast Cancer Now Forum

Hi all Just popping over from the October 14 chemo forum. My rads were due to start today but they had real problems lining up the machine to my tattoos - they tried for ages shifting me here, there and everywhere. Back again tomorrow for another try. Just want to get the process started. Chemo was kind to me, am hoping radiotherapy will be as kind - despite this dodgy start. ... View more

Hi all Am catching up with all your posts - I had some time out because of poorly aged parents and also a lovely holiday in Portugal - back yesterday 😞 Big congratulations to all those finished treatment - I'm falling waaay behind - rads due to start today but they couldn't line up my tattoos so was sent home and told to come back tomorrow. Fed up. Will carry on reading your posts of the last few weeks - love to all. ... View more

Hello posse So so sorry I've been AWOL - my mum has been in hospital - dad was in, if you remember , end of Jan than mum went in early march. Shes home now but dad not great at looking after himself so what with hospital visits and sorting dad I've been running around like a blue arsed fly. Will now catchup on all your news and report in later today. Missed the posse xx ... View more

Jingo - to say thats pants is an understatement and PETA - hope yours doesn't develop. I was reading about operation of lymph node transfer, where unused lymph nodes from groin etc are transferred to upper arm creating new channels for the lymph to disperse. Look at the BMI Healthcare website. There is also a blog somewhere of someone in Singapore who has had same treatment - I'll try & find it. New procedure but these things become common practice quite quickly. Worth investigating for future?? Maidstone hospital - which you get to from Victoria station has a breast care support group every last Saturday of the month. The one at end of match is about lymphodema and dealing with it. Worth checking with your local hosp or getting the train down. I'm going along just for the info - happy to collect you from station. Got to go & get the boy from karate club - will dig out the blog when I'm home. Catch up with rest of you re picc and implants later tonight xx ... View more

Had picc line out today - feels like a real step forward. Yesterday had 100ml put into implant & in two weeks another 250ml going in. Think I'm going to be one of the last finishing treatment as rads not starting until April 21 and then exchange implant surgery not happening until after summer - date TBC as they want temp implant to 'do its job'. So end keeps moving further away !!!! ... View more

Lainie hope you feel better soon - so easy to forget meds - I'm awful at remembering ! Seeing Breast surgeon tomorrow - will ask her about the topping up of my implant - I already think boob is big enough but will see what she says - assuming some of the volume is swelling from the op as only 10 days ago. NEWSFLASH....... I HAVE EYELASHES!!! head still baldy as are brows but I HAVE EYELASHES!!! Love to all the posse xx ... View more

Great post GeeG - you have such a way with words ! Ticking along here, physically getting stronger but emotionally on a roller coaster. I went to a breast cancer support group run by breast care nurses at my treatment hospital, on Saturday, as saw on the agenda that there was a counsellor as a guest speaker. Was very interesting and i related to much being said. Thought that there would be a few women there but it was packed - 25+ women who have gone through treatment some finishing a few months ago, others finished years back. Was good to see & chat. Group meets once a monthwhich is perfect as its not too often to make it suffocating. Picc line coming out this week hopefully, dressings maybe on implant being removed as well so progression! Lainie you have expander implant i think, how often do they top up? Mine feels full already but think they can put in another 130ml if needed. I'm liking the shape of this implant, better than the last implant that was removed. Xx ... View more

Morning posse Op went well, have new expandable implant in - which already looks much fuller than last implant. Got to wear heavy strapping for two weeks so implant doesn't move as well as the gorgeous compression stockings. Also have blood thinning injections - they bloody sting don't they!!! This implant will take the brunt of rads and after rads finish in may new implant and left boob reduction. Still feels a way off but day at a time! Anyhow, home and feeling fine. Lainie hope SE are minimal. Are we all done with chemo except enzobenzo whose on her weeklies?? Xxx ... View more

Sorry fingers and toes - mine have taken a big hit since final chemo - try & get docs to prescribe high dose vit b - has helped a lot, nails no longer hurting and numbness practically gone - hth x ... View more

Lainie LAST ONE!!! hope SE are gentle xx Op went well - have a bigger implant than last time and will be topped up b4 rads start. Feeling better emotionally already, wonder if the thought of op was taking its toll? I sort of disappeared into myself recently. Thanks posse for the support as always xx ... View more

Hi all Catching up on all your posts. Took some time out as busy birthday celebrations, getting dad home from hosp and school hols. Am in hospital today for new expanded implant - scheduled to go down at 5ish. Last week or so have been a bit odd - emotional!! Keep getting teary random times. Was signing up 4 new car on a 3 year deal and got upset as thought i may not be here in 3 years - all very dark & grim. Hoping these moments will pass. Rads starting April 22 - so a little wait as going away for easter hols - need the change of scene! Hope everyone ticking along xx ... View more

Oh and sore hands and feet - dr has prescribed high dose vitamin B supplements as the ones in Lloyds and boots were too low - meant to really help - I'll keep you posted. Loving the udderly cream by the way !!! Love to all xx ... View more

Madam - good luck today xx ... View more

Bettypoppit - my hands and feet really playing up - tingles, aches, sore skin - couldn't use the ring pull on a tin of beans yesterday as nails hurt! Anyhow enough about me - onc has recommended high dosage vitamin B supplements, udderly cream and time! All this a common side effect of T. Will catch up with rest of posts today xx ... View more

Sue that does help - I've heard about udderly cream have have just ordered. My feet are like hot coals -feels really lovely when I walk on the cold tiles in the kitchen. Too late for reduced dose as had my last one but will be smothering myself in cream when it arrives on friday . Thanks so much for the tip - hope you're doing well xx ... View more

Jingo sounds like you had a great time and earnt a well deserved hangover! Yaay for cysts and mastectomy meetings, moving forward. Great news AM Driver xx I seem to be sprouting mainly salt at the mo but hubby says its pepper at the back - real peach fuzz. Eyebrows and eyelashes are sparse but one or two have clung on. Day 9 from D#3 and fog lifting but have got really sore soles of feet ? Am moisturising them but am hobbling a bit - using Dermol 500 - any other recommendations? I've got a post chemo shin dig planned for Saturday night - it's also a big birthday for me next week - so group of my girlfriends are getting together - Prosecco will be downed but as I've only drunk Guinness during chemo I may be a little bleugh on Sunday! Love to all xxx ... View more

PETA - understandable worry - our new way of thinking I'm afraid 😞 but I hope those docs have been around and reassured you. Hugs xx ... View more

Peta - thinking of you and sending you big hugs xxx ... View more

Murphy have a lovely time xx ... View more

Peta - pants - sorry you're in hospital - hugs heading your way. Xx Heavy Chemo fog yesterday so was out of it - on top of pain but feeling whacked spent day drifting. Cooked dinner but lost plot half way through with tiredness and frustration - stomped off cursing like a fish wife - pathetic! Talking of our missing posse members, I'm friends with enzobenzo outside the forum - treatment at same hosp - last i heard all ok with her. Hope GeeG and debtex all ok Will look at aloe juice. Whoever recommended the magnesium soak & oil thank you (jingo was it you??) really relaxes the old bones and skin feels lovely. Just getting the energy together to haul myself out of bed - my goal for today is to set up our new printer - i know its going to end in tears.... Hugs to all the posse, hope SE, worries are minimal and another hug for PETA - chin up kid. Day at a sodding time xx ... View more