Breast Cancer Now Forum

How lovely Den.  You must be over the moon.  Px ... View more

Vics1972,   Ask for Emend. It's expensive but worked for me.  I heard ginger is also helpful.  How many more chemo do you have to go?   pam x ... View more

Hello Orange,   The time frame for surgery matches with the period I had to wait.     Pam x ... View more

Hello Orange,   Below are the platinum based chemo drugs that I've found on line.  I'm not sure what you are on at the moment but it's worth while discussing with your oncologist team if any of these would benefit you.  I'm no expert but it worth the discussion. Also you might want to see if there are any trails you could be part of.  That's  if you interested in this avenue.   I know my cancer had spread to the nodes and one was nearly as big as the main tumour and I'm here two years post surgery.  Wish you well....   Here is the list -  Pam x   cisplatin. Carboplatin. Oxaliplatin. ... View more

Hello Orange,   Mine was also 3.5 cm or thereabouts.  Grade three and in lymph nodes.  I had chemo first, then surgery and just passed two years since op.  Four nodes out of 24 had cancer.  I had good epresonse to chemo so slightly different to you.  I also had 20 rads.   If I were in your position I soils have the surgery and ask if after that there is any other chemotherapy that might help.  Also to ask about rads.   Its really hard for you at this time so also see if you can get some counselling.  Most hospitals offer this.     Wishing you well.   pam x   ps. I think I waited four weeks after last chemo for op. ... View more

Emend was the drug.  Typo.  You may need to ask for this a week or so before next chemo as you need to start before chemo is given.  I recall there were only three tablets per cycle.  This drug works differently as it stops the message from brain telling you feel sick unlike other drugs which just try to stop you being sick.   As Den says drinking helps and assists with flushing out chemo drugs.  The what yo eat books say eat what you can.  Plain stuff worked for me.  Some people have said ginger helps with sickness.   Do hope you are a little better.   Sending Love.   Pam x   ... View more

Embed are the best anti sickness tablets I had.  See if you can get for next chemo.   px ... View more

Sorry you find yourself here Ruth.  Seems so unfair to have cancer twice.  You're taking a positive approach and I wish you well.     I had to make own drug chart to keep on top of the meds.    Sending you hugs back.   pam x ... View more

https://www.change.org/p/nhs-england-and-nice-don-t-delay-funding-for-vital-drugs-and-treatments?recruiter=697096928&utm_source=share_petition&utm_medium=copylink   Its about NICE holing back approval for expensive drugs which some of us may need at some point.   please circulate to as many people you know,  we need some big numbers on this.    pam  ... View more

Hello Williams500,   some TNBC react well to chemo.  There are ladies here on this site who have been several years clear of TNBC.  Don't give up hope.  It's not so rare as one might think.  People here can support you and there is a helpline.  Plus counselling that most hospitals can provide.   stay in touch.   pam x ... View more

Hello Williams500,   some TNBC react well to chemo.  There are ladies here in this site who have been several years clear.  Don't give up hope.  It's not so rare as one might think.  People here can support you and there is helplines.  Plus counselling that most hospitals can provide.   stay in touch.   pam x ... View more

Many thanks D and A.  Infected cyst which is large.  Thing is it's where I have to do my MLD so is causing a problem.  I'm going to lymph ,clinic today.  At least it's just a cyst.  Will need to come oout when settled.  Third week on antibiotics 😒   pamx  ... View more

Many thanks D and A.  Infected cyst which is large.  Thing is it's where I have to do my MLD so is causing a problem.  I'm going to lump,clinic today.  At least it's just a cyst.   pamx  ... View more

Thanks for wishes everyone.  Today appt in late afternoon.  Hoping it's a cyst.   px ... View more

Lovely list Blue67.  What you say is so true.  Good your now on the high risk programme and actually see your oncologist yearly.  All I get is a mamogramme under the Marsden and my cancer had moved to my nodes.  That said, I did achieve a complete pathological response.  So I suppose they think I'm not high risk.   Cancer is a lot to deal with and as you say ...a day at a time.  I'm now two years clear but have new lump on other breast being investigated this coming Thursday.  Trying not to think about it until then as there is nothing I can do but wait for appoiment.   It breaks my hear to read about these very young ladies with small children.   It's hard enough dealing with the decease, let alone having small ones to think of and try to tell what's happening.   Wishing all of those visiting here health and happiness.   Pam x ... View more

Yes, some of us test negative for BRCA gene do you might not have it.  Thing is you can flip this as there are as yet unknown genes causing TNBC and some feel they would benefit from knowing if they have the,.  Knowledge is power and as Bel says if you have an identifiable gene it can help with decisions and monitoring.   good luck   pam x ... View more

Oh, Sutton has a big car park so ensure you ask for the free car parking pass which they give to rads appointments.   i had 20 and the team were lovely.  Just tiring doing that daily so try to get appointment that will suit you and any travel plans.   pam x ... View more

HappyB,   Yes, afraid so.  I had full node clearance due to spread and they really muck around with nerves under arm. If yours has not spread you should be okay.  My breast post lump removal does not really pain.   I. also,had chemo first, the surgery then rads.  Just to catch any cells that were on the move.   sending love.   pam x ... View more

Sounds like they had caught it in time.  Wishing you a good prognosis and treatment plan.  I was treated still Sutton RM and still attend now and then for pain management.   px ... View more