Breast Cancer Now Forum

HappyB,  wishing you good CT, and node results.  Stay in touch.   Which Marsden you attending?     Pam x  ... View more

Love you all.   pam x ... View more

Hello BouncingB,   Sorry you find yourself here.  It's good to make these ties and connections to others who have gone or undergoing treatment.  The FB page is good but I found it a little overwhelming, but you may not.     I was TNBC, stage 3, grade 3.   Things I found really useful were :   1.  Paintings nails dark colours to help keep them 2.  Water - A must 3.  Keeping on top of drugs as there may be a few and you may get brain fog causes by chemo.  So I made a home chart to keep on top of these.   4. Cut hair short before loosing.  This helped me very much as I had long list hair. 5.  Cotton caps for night time.  Bald head gets cold 6.  I asked for a PIC line as my veins collapsed and I needed 8 chemo so this seemed best for me.  You can enquire with BC nurse to ask if this would suit you. 7.  Don't just accept drugs if they're not working.  My initial anti sicknesses drugs didn't work.  There are a few types. 8.  But tempreture meaning devise.  A good one as you may need to keep an eye on your temp because you will be open to infection.  If it rises above what hospital say is the trigger don't wait and go to hospital.   9.  Parking at hospital.  Some offer discount to for cancer patients. 10.  Get on list if you can for counselling for you and family.  Macmillan offer this and some hospitals.   hope this is useful.   Pam. X   We are here and hearing you.          ... View more

Hope all of you are well and we have no reoccurrence.  It's so scary what with only yearly mamos.   px ... View more

Hi Den,   im also trying to loose weight.  Spring coming so it will be easier.  Sorry to hear shoulder not fully better.  Pain is a drag.   pxx ... View more

Hi Den,   Getting better and coming up to 2 yrs post chemo.  Will be theee year post op in March.     The usual stuff, hand still a problem but lady part now under control.  Had a biopsy of ladypart and diagnosed with a skin problem.   hand and u derarm still giving pain.   pam xx ... View more

You too Den.   pam xx ... View more

Just checking in with you all after some months and hoping you are all doing well.   Best wishes.   Pam x ... View more

Forgot to say hair back thick and curly but now salt and pepper colour.  I've decided not to dye anymore due to chemicals.  Trying to eat well, fresh fruit and veg.    Kale and broccoli are very good to eat.  Try to cut sugar down (this is hard) and do not drink alcohol.  That said, I might have a drink (one) Christmas.   Some pain under arm which I'm managing with help of pain management at hospital.   what we have to face is life is now different but there are still many joys.   pam x ... View more

Hello Nell,   like you grade 3 (which is normal for TNBC) and stage 3 something.  They didn't tell me stage but as four out of 24 nodes positive defo 3b or something.  8 chemos 4 EC then 4 Piciltaxol.  Surgery then 20 rads.  I'm doing well as diagnosed August 2014 and got a full PCR.  Burned skiing recovered also have full shoulder mobility as did exercises as prescribed.  Had issues with cording and lymphodeama but I'm still here.  It can be done.   Wishing you no reoccurrence.   Do keep an eye on those boobs and if like me you record on your own sheet you will know what is new.  I had to do this as the boobs at very lumpy and I have got some fat necrosis where the tumour was.   i do feel sometimes left in limbo as you say there is nothing further for TNCB post treatment, just yearly mamas.   pam x ... View more

I would agree with Gracie.  Throw everthing you have at it and then if you get reoccurrence you know you did all you could.  Chemo may be hard but it will also pick up and kill ofther cells that may have spread.  The doctors with all the stats are still ,earning so I would take everthing to killl the cancer.  But that's just my opinion.   Good Luck xx   pam x ... View more

Yes,I also burnt at collarbone. Drinking lots of water also helps.   How are you doing Neill?   pam x ... View more

Side Effects.  Will try to remember to use whole words.  Pam x ... View more

Yes, as co firmed SE is short for Side Effects.  Will try to remember to use whole words.   pamx ... View more

Depending on how many your having. All I would say is the SE are compinding and towards the end you may get pretty tired. So have a back up plan if driving oneself. also drink 3 Ltrs of water a day if you can. This helps the skin. good luck. pam x ... View more

Depending on how many your having.  All I would say is the SE are compinding and towards the end you may get pretty tired.  So have a back up plan if driving oneself.   also drink 3 Ltrs of water a day if you can.  This helps the skin.   good luck.   pam x ... View more

Hello KM123,   Hope treatment goes well.  Things I can tell are -   Drink a lot of water during whole of treatment including rads Dark Nail Varnish as chemo can make nails loose/fall off Keep on top of medication/do own chart if you can Remember immune system will be hit hard so keep away from people with colds/flu and wash hands regularly Eat what you can keep down during chemo then after keep to a good diet.  There is a booklet on this site about food and what to eat/. Discuss any Vits with team as some react against chemo.  After take what you feel is good plus Vit D3 Get some counselling booked in - very useful.  You can get some too at most Maggies Centres or hospitals Taxol is a good drug for TNBC so sometimes hard to take with side effects it can do good stuff against the cancer. Buy if you can / cotton skullcaps as it gets cold on head on head during winter if you loose your hair.  Most of us don't cover head when sleeping so it gets chilly.   Post op - if this applys   Do exercises as per hospital instructions.  This can be hard but if you put in the work you will see results.  Hopefully no cording.   Do come on site as others will give their advice and help.   Sending hugs.   Pam x       ... View more

Caz,  Someone should respond but just so you know there is a forum on this site for secondary suffers.  My thoughts are with you and wishing you good response to treatment. Pam x ... View more

Prayers for all.   still having a lot of pain under arm and breast, hand and now ear is back buzzing.  I'm so fed up with poor health.   not getting messages from here now so not see. Any recent posts.   hope all is doing well.   pam x ... View more