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Brewster
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since
19-10-2014
182
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04-11-2014
11:26
Went to get my sentinel node result today 10 days after the op. Was told results are not ready and have been sent for further tests. I have TNBC and am now assuming this must mean the nodes are positive? Has anyone else been in this position 😥 😥
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03-11-2014
08:11
Daffodilli, thinking of you today and hope first chemo goes as well as possible for you xxxxxxxx
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01-11-2014
10:30
Bel, that is so so good to hear. I was diagnosed with triple negative in oct 9th. Am still waiting for node results and for them to decide if surgery or chemo comes first. Should know next Wednesday. Filled myself with the horror on TNBC on the Internet and am so scared. So good to hear positive stories and to know that together we can beat TNBC and it's not always the prognosis we read about . Thank you for giving us all the hope and positivity we need xxx
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29-10-2014
10:28
Thinking of you Dmcf and hope all goes as well as it can. I am still treading water and although triple negative like you I still don't have a plan. Waiting for node results and then they will decide whether surgery or chemo first.mhas to go back to MDT but not until nov 10th. All this time is passing and am so anxious to get started . Thinking if you and hope tests are ok xxxx
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28-10-2014
10:19
Thanks for your reply Em. Going to change the dressing tomorrow. Once I get the sentinel node results next week i then hope to get a clear plan at last. Just need something to happen xxx
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28-10-2014
06:11
I have Grade 2/3 TNBC. Diagnosed 9 October . Planned for surgery followed by chemo. Then plan changed to chemo first and then double mastectomy. Now had sentinel lymph nodes done yesterday and they are now saying if lymph node negative back to surgery first!! Can anyone else talk me through rationale for this and why surgery first when it's TNBC ?? Thnaks. Also can anyone advise when they changed their dressing from the node biopsies, my have obvioulsy bled a lot and dressing fully soaked, can I change it .. ? Thanks xxx
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26-10-2014
10:13
Me too xxx lymph node biopsies tomorrow and plan was then chemo but had phone call today to say they have changed their mind and want to do mastectomies first now. Am very confused and scared . Thought I was starting chemo and now waiting for surgery ??
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25-10-2014
09:29
Hey Kf, great you have started already AND feeling okish!! That's good news. What chemo did you have ? I am having Taxol and Carboplatin. Can't wait to crack on as waiting is awful. Hope I am like you and don't feel the effects too much (who am I kidding 😄 😄 )
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24-10-2014
09:41
So sorry to hear this Tanz. I am newly diagnosed TNBC but have not had any scans but having sentinel nodes removed next Monday and start chemo on Nov 7th I am sure if you search around you will be able to find others in similar positions and everyone on here is incredibly supportive. You can also contact the helpline for a chat. I hope all goes well for you and everyone on here will offer you support along the way. Xxx
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24-10-2014
09:36
Hi Daffodilli Same boat I think. I am newly diagnosed, TNBC and also a nurse ! I start chemo on nov 7th. Hope we can all support each other on here . Love and best wishes to all xx
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24-10-2014
12:54
Thanks for info. I haven't had choice re weekly or 3 weekly so am hoping my body doesn't cave at the first month. How have you found having carboplatin ??
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24-10-2014
12:52
Hi silver flute I was diagnosed on October 9th. My sentinel node biopsies are next Monday and start chemo on 7th. The first few days after diagnosis are unreal. I chose to ask GP for sleeping tablets. Know this is not everyone's cuppa but it has helped me enormously and sleeping so important for physical and mental strength. Hope all goes well over coming weeks and that your chemo starts asap. Seems to take for ever whn you are waiting to start xxx
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23-10-2014
07:45
My HD was 1988 so 26 years ago when I was 20 x
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23-10-2014
09:06
Is anyone else out there having taxol and carboplatin before EC/FEC ?? I am due to start and have been warned that the weekly regime is pretty grim and wondered how others have coped with this and what I might expect. Think my regime is a new trail ie weekly rather than 3 weekly Thanks for any info
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23-10-2014
09:03
Thanks for sharing Linros. Amazing to see positive stories with TNBC when the Internet fills you with doom and gloom. I am not reading anymore now on Internet and just going to focus on coping with the chemo ahead. So great you are doing so well, 8 years woop woop 😄 😄 😄
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23-10-2014
08:54
Hi Mrs Richy Good to be here with other folk. Am so terrified. Have lymph node biopsies next Monday and praying for clear nodes or as good as. Having line in wednesday and start chemo on nov 7th so we can keep each other positive and moving along ! Having taxol and carboplatin first and then EC. What about you? Xx
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23-10-2014
08:52
Hi there. Wow you were lucky to get picked up, as I was. Can't believe I have to go through chemo again and this lot is much more toxic.mhaving chemo first then bilateral . I think there are more of us post HD than first thought. I know now that at least50% are getting BC and they are moving towards prophylactic mastectomys but we both missed that boat. Xx
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22-10-2014
09:18
Hi. About to start chemo next week. Seeing oncologist today to find out the plan. Has anyone had a prtacath rather than a Picc line for their chemo and how have you found it ??
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22-10-2014
09:02
Just wanted to introduce myself here as also newly diagnosed. Mammogram end of July and it's taken u til now to get core biopsies and diagnosis. It am grade 2 triple negative . Need chemo and surgery but can't have radiotherapy as I had this for lymphoma in my twenties (which ironically has caused this) Seeing oncologist today and I think plan is chemo first and then surgery xx
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20-10-2014
11:56
Not sure how to do PM . can you tell me what your accelerated chemo is Pam ?
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