Breast Cancer Now Forum

Hi geordiex and belinda Belinda. - I will check these out thank you for your advice. Geordiex - that's interesting about the milk thistle. I've also read about the q10. There us so much do's and don'ts regarding supplements! I have just started using silver needle tea and green tea! Janet - thank you I will check this link out Many thanks Jo x ... View more

Hi belinda I know. It's supposed to be well tolerated which i am doing ok on it just like you say shattered! Also, I don't know about you but I have my treatment on a wed and in the Friday and Saturday am soooo down. I know the steroids gave a lot to do with it but that doesn't seem to stop me feeling rubbish! Hope all are well Jo x ... View more

Hi sianie I have PM'd you. Hope that's ok I have been dealing with this fir two years now. And I've had liver mets since last May. Been on the horrible roller coaster of treatments not working and having to change. It's a horrible process. You're mum is lucky to have you and your support. Much love jo x ... View more

hi sianie im so sorry about your mum. Its very hard for our loved ones to know what to say or do. I know that I was a serious mess when I found out I had cancer. My husband had to take all the crying and worry. I now have counselling which lightens the burden on him. I go to my counsellor and just let it all out. Also, has your mum thought of taking anti-depressants? i know a lot of people who dont want to take them but they can really help. also, sleeping tablets. I know it sound like a lot but if  you sleep and have a level head it helps.  I go to the marsden. I live in essex and travel into london. it is a bit of a trek but worth it i think. My local hospital is just really bad and i couldnt stand it anymore so i transferred I also go privately which helps. My children both know. My son (16) knows more than my daughter but he realises this is serious stuff she doesnt really and shes a very optimistic 11 year old. She actually came with me to the marsden yesterday and sat all day . Nothing fazes her. im 46 so its tough. I just try to think that there is worse stuff going out there to much younger people than me. I would love to see my chikdren grow up. Thats what i hanging onto! well thats enough ranting from me! if you want to PM me i dont mind. hugs jo xxx ... View more

Hi sianie Yes they do seem to have different ways of working. Which hospital is your mam at? Is she doing ok? How are you holding up and how old are you? I have two children 11 and 16 it's tough in everyone. Nobody gets spared. Hopefully they find the right treatment for us all. I've had no pain in my liver area with this. When I was on the capecitabine it worked initially then after six months it had grown again so changed to taxol. I had Pain in my liver area and felt really rough. After the first taxol felt much better - no liver pain. I can't work out if I'm imagining this pain as I have really low volume mets and they shouldn't be causing me pain. I think I make pain happen! Hugs to all Jo xx ... View more

Hi Thanks ladies for your replies. Just had third one today. Don't have any symptoms apart from SE's from taxol. It's really interesting about the tumour markers. I know that my hospital does take these readings but they never tell me what they are apart from saying that they are normal and have said that they never would use them to judge the disease as they are so unpredictable yet a lot of oncs seem to do this. Sheila. - thank you. I'm hoping there's lots of treatments need to stay around for a few years yet! Hugs jo xx ... View more

Hi geordiex Yes I know the freeman well! Have been in it quite a few times! Hope they are looking after you well Hugs jo x ... View more

Hi geordiex I watched it and i go to the marsden. I don't know why but I felt really down after watching it. I think I should have taken more positive things from it. It's so difficult to watch though at least I find it difficult. Apwhere are you from ? I'm originally from newcastle but have lived in essex for 11yrs. Love going back though! Hugs jo x ... View more

Hi all Does anyone taking this taxol feel as if they can't quench their thirst? I know it affects your taste buds (which it is) and I feel as if I have a coating of something inside my mouth! Not nice. I don't know about anyone else but I've only had two sessions and I feel soooo tired. Also, very down. I try to keep 'positive' but it's dragging me back in. I go to the marsden and watched that programme on the bbc about the work they are doing. I don't know why but it's made me feel worse when I think I should have been taking something positive from it! What a Nitemare this is! Anyway, hope everyone is doing as well as they can Hugs jo x ... View more

Hi all Just signed the petition! Hugs jo x ... View more