Hi all Stresshead - I'm sorry you are worrying so much about leptomingeal spread - I feel a little responsible for putting that extra worry on you by telling you about my mum etc. It really may not be that. Do you have any other symptoms - vague headache that never really clears (although could be stress also), leg weakness, foot numbness? If you can, try not to assume it's anything until you know - otherwise you're using days worrying when you could be enjoying - as far as that is possible for you. I had an appt with mums oncologist today. She was very nice. I asked about how they can be sure it is breast cancer in the skin seeing as it lost it's receptors, confirmed that her symptoms at the end were infact the spread and not peripheral neuropathy, discussed it's agressiveness - she told me that she had not even seen a burden of cancer like my mums on the CT scan. I know the largest tumour on there was 5mm but there were many nodules in lung, kidney, skin and adrenal - must have been so many for her to say that. She said she had no idea why it became so aggressive. I told her that they said 12-18 months and that mum only had 6 weeks - therefore I hope some other woman gets that time that my mum never and goes way beyond that 18 months. She told me to get in touch should I have any other questions. I did cry a bit - it was a little overwhelming being in the clinic without my mum as in all the previous times, and talking about her rapid deterioration. Again though, like the funeral speech, it was something I needed to do. Hope youre all having quality time in whatever you are doing and are not stressing too much. I know that sounds a bit silly - but it's just that stressing until the end, even if thats years away, is not making the most of time. But again, easier said than done, I know. lots of love xxx
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