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dennymac
Member
since
07-01-2015
137
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01-10-2015
02:21
Hi everyone! I'm from Scotland but live in London now and going to the event. Look forward to meeting you all xx
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12-08-2015
06:04
Hey jools! I'm still stuff when standing and I finished chemo in June too, I think herceptin can give u bone aches. Fergal in doing ok thanks... Had my mastectomy 3 weeks ago after finishing chemo and my pathology results showed NO cancer cells in lymph nodes (14 were taken and I had an enlarged one at diagnosis) and very little cancer cells in the boob itself. That alongside last CT which showed lung mets had disappeared I'm very happy! These drugs are doing their job!! Xx
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11-08-2015
11:03
Aww Helen try not to get too worked up, call them tomorrow and let them know you are getting really worried and anxious. Hopefully they will rush your X-ray then so you aren't kept waiting too long xx
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11-08-2015
10:11
I have lung Mets and never had any symptoms.. Dunno if that'll help or not! They giving u a CT scan or just a chest X-ray?
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11-08-2015
12:36
Nice to meet u mixy patsy I'm not on these injections myself but I'm sure someone will be able to answer your question soon! Helen_12 if you're feeling breathless there could be a few different things it could be, chemo and cancer can increase our chance of clots in lungs which can also cause breathlessness so u should inform your team and they can do the appropriate investigations xx
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11-08-2015
09:26
This group is fantastic! To anyone that's needing support, information or even a chuckle I strongly advise joining this group. I've met so many other younger women and I'm so happy I have them by my side xx hope to see you soon xx
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17-07-2015
09:27
I got really bad water retention in my ankles and feet at about 4th cycle... It will come and go, it's a bit of an inconvenience more than anything!
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28-06-2015
10:52
Tamoxifen definitely gives hot flushes! A lot of the girls I know had awful hot flushes on them, apparently some have had acupuncture and reflexology to help
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28-06-2015
10:02
Hey, I get hot flushes but I'm not sure if it's the h&p or the residual effects of the docetaxel as I only had my last one 6 weeks ago. My oncologist hasn't put me on tamoxifen which stops the ovaries so maybe the h&p does similar? Not sure! Keep meaning to ask my oncologist but forget
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16-06-2015
05:27
Thanks that helps a lot! I was a bit worried that I seemed to have more pain after stopping the tax and continuing on just H and P and was wondering how this could be?! Tax is the nasty one!
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16-06-2015
11:24
Hey Ellie I'm glad everything went well! I have to see my surgeon next week about surgery, I was secondary from the start so not sure what he is going to say... Hope they offer surgery as I think I'd rather know my primary has all been removed.. It's all so hard!! Had my first solo H and P last week without the dreaded docetaxel and my goodness I'm SO stiff!!! I never had the tax aches everyone talks about but since last week my legs are painful (especially my calves) anyone else have this? My calves feel the same as if I've had really bad cramp and have the residual ache that lasts a couple of days.. Oh and my feet/ankles keep swelling! Other than that it's great to know I'm finished tax now... Xxx
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09-06-2015
08:57
Hi mariecay! I have had weird pains in my chest after getting chemo, wasn't really painful but was odd twinges and I've had a cough too which comes and goes. Just finished chemo and continuing on herceptin and perjeta and got my ct scan results on Friday and my lung mets are gone (and a small pleural effusion I had was gone too) so was nothing sinister causing the twinges. I put it down to the chemo attacking the bad stuff. If u are worried though talk to your oncologist cause they really know best xxxx
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05-06-2015
11:57
Thanks everyone! So relieved it's working! I'd convinced myself it wasn't xx
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05-06-2015
03:13
Hey! Just back from clinic... My lung nodules are now gone! And the pleural effusion I had is also gone! They think the effusion was more due to infection rather than cancer so that's good! So I'm very happy! Chemo has done its job! Xxx
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04-06-2015
10:20
Thanks everyone!!!! Yeah Nicky I have packets of tissues everywhere!!! Hehe xx
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03-06-2015
05:41
Hey all! Jools I'm glad my post helped! There's no rhyme or reason to the side effects! Getting real scanxiety now as feeling twinges in my chest... Anyone with lung mets get twinges? Hopefully it's the chemo attacking the nodules.. Really hoping xx
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01-06-2015
05:20
Hey Sheila My side effects changed a little and have just got into a kind of routine now! First cycle I had a bad mouth ulcer, thrush and dodgy tummy. As I got further on in cycles I started getting swollen ankles with the steroids and really heavy and achey legs.. Got horrible tax mouth (losing taste of everything for about a week) from the second cycle and also tended to get constipated just after chemo then really bad diarrhoea about a week in. Also started on omeprazole for awful acid reflux and don't have any trouble now. Also at about cycle 4 started getting really streamy eyes and they'd get quite gunky overnight - that's quite a new side effect, more annoying than anything!!! Hope the side effects are kind to you!! It sounds like a lot but honestly it wasn't as bad as I was expecting.. Just have to make sure if I go out I know where the toilets are!! Xxx
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31-05-2015
05:34
Hey everyone! So that's me had my 6th cycle of docetaxel, herceptin and perjeta and had my CT scan to see how everything has reacted... My mid way scan showed shrinkage everywhere but a small pleural effusion so I'm hoping this scan shows more shrinkage and hoping that effusion has gone! Results on Friday... Fingers crossed xxx
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07-05-2015
02:12
We shall soon find out! I've suffered some phases of hot flushes while on chemo. Hopefully when I see my oncologist in a week prior to my final docetaxol I can ask her where we go from here xx
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