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dennymac
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since
07-01-2015
137
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07-05-2015
12:54
I'm hormone positive too so I think they may put me on tamoxifen or something else to shut off my ovaries.. Joy!
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07-05-2015
12:30
Nicky great about your results!! I have one chemo left then not sure what the plan is just yet... Did they just continue u on H and P or did they put u on anything else??
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29-04-2015
03:10
Hey! For the first treatment I was told I had to stagger the days, so instead in being in on Tuesday I was in both Monday and Tuesday. Had herceptin first and they had to monitor me for 6hrs post as apparently some people can have reactions and that's why they do it over 2 days - so they know what u have a reaction to if u have a reaction at all! Just safety I guess! Givin three potent drugs at the same time probably isn't wise really! I have used the cold cap yes and had a really good result! I have most of my hair, got it cut into a oixie cut before chemo and done cold cap... It is very sore for the first 15 mins then your head goes numb. Try it and if u decide it's not for u at least u have it a go! I had a lady near me yesterday who couldn't keep it on for a few mins. Take a couple of painkillers an hour before hand and have it in your head to persevere for 15 mins! I don't look like I'm going through chemo it's worked so well! Good luck xxx
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28-04-2015
10:36
Hi Sheila! Yeah I totally understand what u mean! My boob lump was so large I knew the chemo was working but was terrified it hasn't worked on my lungs! I guess until u start and get that first scan under your belt it is really hard to relax. Unfortunately we are now all in a life where we go from scan to scan hoping for the best but imagining the worst. I've heard people get used to this new life but at this moment I'm not there yet! I mean my breast lump was huge (out of nowhere) 10cm and I can barely feel it now and my onc said there's shrinkage in my lung mets, which by comparison were 1.2cm and 0.6mm so why haven't they gone gone? Argh u can send yourself crazy with what ifs and maybes I guess u just have to get on with it eh? Fingers crossed u have a good result too hun! This combo is pretty good and my onc was very keen for me to get it xx
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28-04-2015
10:27
Hey! I've not had any symptoms from my lung mets and I was diagnosed in January at same time as primary. I did have a cough at the time but I was getting over a bad chest infection I picked up over Xmas. I have the odd twinge in my chest but I dunno if that's muscle issues or me imagining it. Other people I have talked to have said they have minimal or no symptoms from their lung mets xx
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27-04-2015
11:30
I'm going ok thanks! Had my midway ct and all the tumours have shrunk but apparently I have a little fluid on one lung but they are just gonna keep an eye on it! Due chemo #5 tomorrow! Legs and ankles have swollen and are heavy but it's all doable! I'm told the effects are cumulative so makes sense for the legs to be trouble now! One more after tomorrow then another ct! Xx
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25-04-2015
12:10
Hey everyone I hope you're well! Wee update from me! Had my pre chemo appt today and got my mid way scan results.. My lung nodules have decreased in size and my onc examined me and found it difficult to determine the primary lump much at all (it was 10cm at diagnosis) the only thing is I have a little fluid on one lung but she's not concerned, says it could be from an infection but they are gonna keep a close eye on it. So good news! So happy! That fluid just need to bugger off though and I'd be over the moon! Xx
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19-04-2015
12:25
Always have a minimum of 4+ hours between paracetamol doses xx
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19-04-2015
12:24
Sorry I co fused myself with the staggering lol ibuprofen/paracetamol/ibuprofen/paracetamol xx
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19-04-2015
12:23
Worried sick be careful with paracetamol, only take 2 tablets (they are 500mg each). Also paracetamol can mask a fever so make sure you take your temp before u take paracetamol. If you feel generally unwell don't take paracetamol, just take ibuprofen as again paracetamol can mask a temperature. Staggering the tablets is best, 2x ibuprofen then after a couple of hours 2x paracetamol then 2 hours later paracetamol again. Also take the pain relief regularly and don't go long periods without as it's easier to nip it in the bud rather than wait until it's really painful then get on top of it. If the paracetamol and ibuprofen isn't enough and you're following all these guidelines call the unit as they can prescribe u something stronger xx
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18-04-2015
10:39
I normally start feeling better about a week after my tax xx
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15-04-2015
03:19
the waiting is the worst ... Unfortunately some of the tests they do to see hormone status take a while to come back so we are kept in limbo! I'm over half way through my chemo regimen (docetaxel) and having hormone treatment of pertuzemaub and herceptin every 3 weeks also which will continue for as long as it works. My cancer is completely hormone and herceptin positive so I am getting the triple whammy treatment. Depending on your mums test results (hormone receptor status) they will choose the best treatment tailored to your mums specific cancer Let us know how u get on 🙂
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15-04-2015
01:51
Hi formymum I'm sorry to hear both your mother and you are going through this awful time 😞 I'm 32 and in January was diagnosed with breast cancer (primary) then a few days later was told scans showed spread to my lungs... Shock and disbelief followed and I know how she must be feeling. Has she he scans to pinpoint exactly what's going on or have they just said they think it's spread? There are a lot of treatments out there for people with secondary breast cancer and once she gets a treatment plan she will feel much more in control. The first few weeks are the hardest as u feel completely sidelined and don't feel like you're attacking this thing but likely they will get a treatment plan in place pretty quickly - I started chemo 3 weeks after diagnosis. There are a lot of support structures out there that she can talk to... Maybe get her to join here so she can ask questions and vent to people who understand what she's going through. Sometimes it's hard for us to talk to loved ones through fear of voicing our innermost concerns and upsetting those closest to us - I've found this place a great comfort and the ladies here amazing to help answer my questions and calm my fears xx
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15-04-2015
10:09
Hey Tina 🙂 my side effects normally kick in day 4-6 after tax, hopefully the side effects are minimal for u xxx
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13-04-2015
07:47
Wow ellie great that u only need to see your onc once a year ☺️ Good luck with it xxx
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11-04-2015
10:11
Hey! That's me just had my 4th chemo plus perjeta and herceptin and just after my last dose I started to feel a real lack of energy... My ankles and legs have started to swell a bit and I get really sore legs just walking on a straight path (for 5 mins). I've been told by my team this is standard - the heavy and tired legs is let of it. Keep an eye and if u feel it's too much just contact the team as there could be other things at play.. Maybe bloods are low as that can also cause these symptoms xxx
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11-04-2015
11:31
Great to see you guys checking in! It's so nice to see you talking about living with it rather than it ruling you! Everyone is so different it's so hard! Xx
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10-04-2015
04:43
It'd be brilliant if the H and P have kept u stable! Heard the combo is good and can work a long time! Let me know how u get on hun xx
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