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Marirose
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28-01-2015
814
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02-11-2016
06:09
Dear Sharon I can only say I agree with Carolyn she has put it so nicley. So many have found the hospices so helpful at least they have your interest at heart. Sending loads of cyber ((((((((((((((hugs)))))))))))))) and love xxx
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02-11-2016
06:03
Hi all I went for my review with the onc this time it was another consultant who is standing in for mine. She was lovely and very helpful but she said she was sorry she didn/t have the results from the CT scan. She said they were having trouble with the radiologist's there is a shortage and they have had alot of mistakes and errors so now it is taking 2 weeks for a proper analisis of the scans. So I suppose that I will have to settle for that you never know if they are fobbing you off. So I have to wait for 2 more weeks now still getting the treatment that is making my hair go very thin but also making me feel quite well. Love and ((((hugs)))) xxx Stresshead good luck for Friday Good luck to others awaiting results
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31-10-2016
06:25
Hi Skinny friends Jan I agree with stresshead get your feet up enjoy snuggling up in pj's through these dark nights. I am doing quite well with paclitaxel infact I have not felt this good for ages. The head has still got a covering of hair although it is starting to get very thin and dropping out now. I am on cycle 7 this Wednesday and I also get results for my CT scan hopefully.So we will see how good it has been for me. stresshead I have been able to get my expensive dressings I saw the GP today and he prescribed them for me.So at least I can now use the right things I really don't have much time to be going to see the nurse twice a week with the taxol being every Wednesday. Mo are you alright we have not heard from you for a while please get in touch. DBNO thinking of you also Love and ((((hugs))))) xxx
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31-10-2016
05:53
Hi Carabel and Tat So sorry to hear you are still in hospital Carabel lets hope they get you sorted out soon.I know it must be annoying to miss a cycle especially when it was doing it's job. To be in for a week is bad enough but to go on to another week is awful. Sending you loads of ((((((hugs))))))) Tat sorry to hear your bloods are down I know how you feel when you have to miss chemo I had it on my last one.But if thats what it takes I do hope they can get your bloods back up.It was nice to see the grandchildren I miss them alot.The granchildren in France I am not sure if it will be possible to see them at Christmas and they cannot come to England because they cannot leave their dog as it has trouble with her legs and no-one seems to look after her like they can she goes down hill very quickly when they are not there. The hair is still covering my head it's getting thin and is coming out more now so this next chemo will hurry it along I think.Hoping CT scan results will be ok on Wednesday. Love and ((((hugs)))) xxx
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31-10-2016
02:20
Hi Lynn I am so pleased to hear from you I have been thinking about you alot as we have not heard from you for such a long time. You sound as though you could do with a few more hours with the grandchildren if they help you to sleep. I am having trouble staying asleep I drop off then wake up and start thinking sometimes I get up and take 2 paracetamol and go back it seems to help because sometimes I may have a leg ache. Last night my first wakeup was 12.00 am but I resisted getting up and using phone or laptop then the second was 2.30 am and 5.40 am. Why can't I sleep I cannot remember a full nights sleep and when I have my chemo that is bad for sleep. Even the alphabet girl and boys names doesn't work anymore. Well love and (((hugs))) xxx
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30-10-2016
10:15
Moijan come and join us we are skinny dipping in the moonlight Carolyn's punch has really gone to everyones head The water has been warmed up and its's lovely I think FF is racing Carolyn to the pontoon. Even Julie has arrived back in her pumpkin carriage such fun
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30-10-2016
05:32
Ok I own up to drinking a bottle of Baileys I got all twistered with Micheals moon walk. Has anybody found my Medusa wig the snakes will be getting hungry. It is getting wild in here the pontoon is wobbly and the fireworks are ready to be set off. Think I will sneek off for a while
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30-10-2016
05:18
Hi all Carabel sorry you have found yourself in hospital this week lets hope they let you home tomorrow. Will you have to inject to get your blood clots sorted. It must be scary when your breathing becomes bad I do hope they have been able to help you with this. Sending you loads of ((((((((((hugs)))))))))))) Tat I do hope your wbc has gone up now and you will be able to have your chemo. I know what you mean about the waiting in the hospital it seems as though we spend most of our time sitting around waiting for this and then waiting for that. Glad you had time with your family during this half term I was lucky to have my Wetherby family visit it was lovely to see the grandchildren. Love and (((((hugs))))) xxx
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29-10-2016
02:29
No it was FF that naughty girl gets up to all sorts
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29-10-2016
02:28
Wow it is looking great here should be a great weekend. Not me Carolyn I have given up chocolate for a while. Punch has nearly all gone though Moijan was the last one here. xx
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29-10-2016
09:14
Morning Smartie Glad your rads are over now I do hope you are not too sore and I hope they have given back your sight when will you know if they have worked. You have been in my thoughts this week. Sending you lots of ((((((((((hugs))))))))))) and Love xxx
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27-10-2016
07:42
Hello Suskak I have got a tumour on my spine on the sacrum then the bone mets went to my ribs left pelvis left femur left tibia right femur I also have MS mainly down my right side. I was always very active until the MS came on which I blame my first primary cancer in1996. I used to walk sometimes 2 miles home from work but when I got to the bottom of our drive I would start really flagging.I finnished work and now I don't walk far but need help with aids to get me around. But a few weeks ago I went to a wedding reception and I managed to get up and dance with my old work mates.I am a big believer in if you don't use it you lose it so keep trying to be as fit as you can and don't give in. It's up to you. Do go onto the bone mets thread you will really like it there and you will find Bernie who has just started her bone journey too. Love and (((hugs))) xxx
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27-10-2016
07:04
Hi Moijan You are always welcome on this thread we used to have 2 other ladies on Eribulin who prefered to join us sadly they both are no longer with us I certainly hope it's not bad luck on here for our Eribuliners. It is my own fault for trying to manage my ulcers on my own I know I need to see the nurses again at our local surgery and I need to go through the proccess of seeing the Dr who is on holiday until next week. Last time I saw a lady Dr and she rushed out of the room when I told her I had ulcerated skin mets she came back said come on and took me to the nurses room. When I asked them why had I got that reception from this Dr they said it was because she doesn't like open wounds.So you see I am relunctant to go there but I know I should. I practically healed my own wounds last time all the nurses did was get me the dressings and just check the wounds. But I am watching your progress with Eribulin I was hoping I could get on to it. I was on E/E combo and found myself on my own as everyone didn't manage the drug for long and I went on for 16 months. Well love and (((hugs))) xxx
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27-10-2016
04:17
Dear Suskat Sorry you have found yourself here but welcome to the forum.Please don't get yoursef into a paniky state. Bone mets are scary but many ladies live a long time with just a bone injection to strengthen your bones and an hormone drug to control the tumour.When you have your treatment plan from the onc you will feel a lot better. As for bone pain I find it comes and goes but try not to let it get you down there will always be good days and bad days. You are in a very scary place right now but it does get better go onto the bone met thread you will find lots of ladies to help you there and make you laugh Love and (((hugs))) xxx
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27-10-2016
04:02
Hi stresshead Good news and puzzling news I have posted on our skinny thread. At least you can have a little celebration tonight. The chemo break may do you good the treatment stays in the body a long time I still got cape reacting on my hands and feet for a while and those TM's are pretty good. Love and ((((hugs)))) xxx
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27-10-2016
03:37
stresshead I am so pleased you had some good results now lets hold out for your MRI being good at least you will find out if there is anything to worry about. I am glad you didn't let your hubby talk you out of it.Your Tm's sound good also. As far as your groin goes it sounds as though it is something not to worry about do you ask for a copy of the results? I have started to ask for mine I tend to read more into them but at least I know what is happening with my body and it gives me some ammunition to write questions to ask the onc like the spine scan does not mention my tumour on the sacrum which I have had since first dx. Well Christmas will soon be here and you can make plans to enjoy it fingers crossed. Love and ((((hugs)))) xxx
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27-10-2016
09:18
2 Hugs
Hello Bernie Sorry you have had to join us but welcome. This is the best thread to be on as it is the most active. Everyone will be along to give you support. We all mainly take Denosumab with calcium tablets along with treatment for the tumours. I have had bone mets in many places and manage them quite well I am nearly 4 years now with treatment. There lots of ladies who have lived a long time with bone mets one 20+ years My phylosophy is I am living with Cancer not dying from it. All the best love and (((hugs))) xxx
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27-10-2016
09:03
Dear Moijan Great news Eribuli is working for you and that is the most important thing. It would be great if you could get a break could they work one out for you although I feel when I took a break with cape it caused my progression. I now will be waiting next week to see if this one is working. I cannot plan Christmas away in France until I know what will be happening in the next 2 months. Love and (((hugs))) xxx stresshead I am waiting for your results (((hugs))) xxx
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26-10-2016
08:24
Janette Is the drink milky white I used to have one before the scan and then the contrast injection in the scan. But they stopped doing it they said it was unnecessary and they stopped doing it at both the hospitals I had the scan including a mobile one that helps out at my hospital. But if it was Christies I would certainly trust them. You got us all confused or maybe they have alot left over and want to use it up lol Carolyn enjoy your car maybe you will give driving it a go you never know you may find it easy. Then have car will travel but then if you live so near good shops you don't need the car only to carry home the goods. Love and (((hugs))) to all xxx
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26-10-2016
08:01
Hello friends Tat I do hope you are feeling so much better than last time you posted has the slower infusion helped you? I do hope so life can be so miserable with this disease at times. Do let us know how you are. Carabel did you have the Hickman line fitted. If you did I hope it went ok it will be so much better for you. Luckly my viens are very easy although last week they weren't but I made sure I had plenty of fluid this time. I had a phone call yesterday from the CT Scan secretary who offered me a cancelation for 4 pm Saturday How lucky was that I was shocked because I didn't expect that for another 2 weeks. My cycle 6 was today my bloods were fine again my wbc was 5.2. My hair is getting thinner but still plenty left to get away with it as long as I don't mess with it. Love and (((hugs))) to you all xxx
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