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Anneemay
Member
since
29-01-2016
120
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8
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19-02-2016
03:18
Thanks Bondgirl, my GP does prescribe the water based applicators for me all ready but the oil based lubricant and the new intimate cleanse that Yes sells is not on prescription so I thought that it was worth knowing about the 10% discount voucher. Ann xx
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19-02-2016
02:46
I have just had a Internet chat with Lynda from Yes the company who sells organic lubricants both water and oil based. She was very helpful and gave me some good advice, she also informed me that I would be entitled to 10% discount for life, using a voucher code LV3 because I have cancer. So I am passing this info. on to forum members. I know that water based lubricant can now be prescribed from your GP but I am not sure about the oil based and other products. Ann xxx
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19-02-2016
10:12
Thank you everyone for all your good wishes which I did not acknowledge earlier, I got carried away with the HER2 subject. 😳 Ann xxxxx
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18-02-2016
07:04
Hi Carolyn, I made a point of finding out about HER2 before going to my appointment as I had no idea whether I was positive or negative. I hope you don't mind me rambling a bit but this is what I found out. The HER2 gene makes HER2 protein receptors on breast cells, normally HER2 receptors help control how a healthy breast cell grows, divides and repairs itself. But in about 25% of breast cancers the HER2 gene doesn't work correctly and makes too many copies of itself. All these extra genes tell the breast cells to make too many receptors and this makes the the breast cells divide and grow in an uncontrolled way. HER2 positive breast cancers tend to grow faster, are more likely to spread and come back compared to HER2 negative breast cancers. However HER2 status can change overtime so it is important to be rechecked if breast cancer reoccurs. I hope this helps to explain that I believe that it is good to be HER2 negative and that it is important to confirm your HER2 status as this will impact on the treatment you are offered and receive. Ann xxxxxxx
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18-02-2016
03:50
Thank you it's good to share positive news with people who understand all the anxieties that scans and results bring with them. Spreading a little sunshine hopefully...... 😀 Xx
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18-02-2016
02:05
Yes Carolyn, and I forgot to mention that I asked her about my HER2 status, good news there as it is neg. Double whamee, whoopee.... Ann xx
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18-02-2016
01:28
1 Hug
I just wanted to share with you some good news that I received today from my oncologist at my OPA. My CT scan which I had last week shows that my bone mets. are healing, there is no progression to my vital organs and although the bilateral pleural effusions where obscurring some of the lung details she was confident that the lung mets were also healing. The yippee moment was when she said that chemotherapy was not the way to go at the moment, as my present treatment of Denosumab and Exemestane seem to be working very well for me. If I wasn,t so breathless I would have jumped for joy, I feel like a weight has come off of my shoulders. Now all I have to do is hope they have a bed for me on Sunday in Guys to have my pleural effuions drained and fixed !! Can't wait !! 🙂
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15-02-2016
09:56
That is so reassuring Glo, thank you for that. At the moment I am on Exemestane as I am ER+ but as I mentioned before have never been informed whether I am HER2 + or - so I will discuss this with my oncologist on Thursday. Thank you once again. Ann xx
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14-02-2016
04:09
That's brilliant Glo, my right side has been aspirated 4 times since dx last September each time draining 1- 1/2 litres last time was November '15. CXR done recently shows around the same accumulation. I know it sounds a bit strange but although I am anxious about the procedure generally, I am more worried that it won't work and that I will be still as breathless as I am now. I am therefore looking forward to next weekend!!! with some anticipation and a lot of hope. As far as I know I have not been tested for HER2 status, it has never been mentioned at my original BC dx in 2002 so I may query this when they take the biopsies next week. Ann xx
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14-02-2016
03:14
Thank you Carolyn that's good to hear, it is frustrating not being able to carry out just small tasks without becoming breathless. Ann xxxxx
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14-02-2016
02:04
Hi, hopefully within the next 2- 3 weeks I will have some relief from the increased breathlessness that the mets.in my lungs and pleura are causing. Providing there is a bed for me I will be admitted to Guy's next Sunday 21st for VATS and pleural biopsies with also PleurX drain insertions. They may also carry out pleurodesis on my right side as this seems to be the side with the most fluid in my pleural cavity. Has anyone else has these procedures carried out? I am a little bit anxious about these procedures but at the same time just want to get back some quality of life. I am also seeing my oncologist on Thursday with the results of the CT scan I had last week a base line prior to commencing further chemo, more anxiety but trying to remain positive. Xx Ann Xx
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11-02-2016
04:59
I also have just had a look around the site and I found it interesting and user friendly.
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09-02-2016
03:34
Thank you Kate, do you know whether I can access a Menopause specialist via my GP? I am seeing my oncologist next week so I will discuss my dilemma with her and hopefully a plan of action. xx Ann xx
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09-02-2016
11:35
Hi, I am in a similar predicament regarding Vagifem, I was prescribed it by my GP quite a few years ago after trying other products that I was not able to tolerate and was desperately sore and uncomfortable. My GP did ask my then oncologist advice on the matter and he gave the go ahead as he felt the risk was very small compared to quality of life. I was first dx with BC at 49 ER + and chemo completely stopped my periods. I am now 63 and recently dx with sbc pleura,lung and bones. I have stopped using Vagifem since this dx and the pain and discomfort has returned. Currently using Yes water based lubricant applicators nightly for the past week and although it is a little more comfortable I am constantly aware of the soreness and discomfort. I am seriously now considering whether to go back on Vagifem as it seems that it was the only product that worked for me. I will obviously have to discuss this with my oncologist as I am now also on Exemestane hormone therapy to treat the cancer. If she says that she will not prescribe or advise, I don't know where to go or what to try next, with this very uncomfortable problem. Any advice gratefully received. Xx Ann xx
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06-02-2016
08:44
Sensitive subject I know but I would appreciate any advice on this delicate issue. First a little bit of history I was first dx July 2002 age 49 ER + and chemo stopped my periods. Commenced on Tamoxifen initially then switched to Arimedex due to bad night sweats and was on these until 2008. I was also dx with Osteoporosis in lower spine which my GP thought that the Arimedex was a contributory factor another reason to stop them. Meanwhile the vaginal dryness was a major factor in a lack of enthusiasm in the bedroom to be honest it was very painful and the thought of the pain just turned my libido right off. Thankfully I have a very understanding husband. I discussed this with my GP and over a period of time I tried Sylk and Replens but for various reasons they did not suit me. My GP eventually prescribed Vagifem after consulting my oncologist for their opinion. I was using these pessaries up until I was dx with mets. pleura, lung and bones last year with good effect. Since stopping the pessaries I am now very uncomfortable again and currently using Yes water based applicators. Initially twice weekly but now have increased to every night on GPs advice. I am hoping that these will eventually work as they do not contain hormones but I am seriously considering whether the Vagifem is the only product that will keep me pain free down in my intimate regions. I am also wondering as well if the Exemestane has exacerbated the problem but in it's defence will also help protect me on Vagifem. I will discuss this at my next oncology appointment but meanwhile I wondered if anyone else has had similar problems. Xx Ann xx
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02-02-2016
06:33
Thanks Janette that has really put my mind at rest and I will certainly have a cheeky glass this weekend. As the old saying goes a little of what you fancy does you good. LOL. Hugs Ann xx
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02-02-2016
10:14
Thank you, it most probably was quite a trivial question to ask but like you say perhaps a little drinky wouldn't hurt now and again and I will ask the question though at my next opa. Cheers xx 🍷
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01-02-2016
03:31
I have purchased some probiotics from a reputable UK health/ nutrition online shop as I do suffer with a degree of IBS and food intolerances,as I will be starting some form of chemo not sure whether it will be by infusion or oral until I see my oncologist on the 18th. However I have read on the forum that some people have been advised not to take probiotics to help with the gastric se because of introducing unknown bacteria. Is this general advice or does this vary with different oncology teams? Has anyone had success with taking probiotics during treatments?
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31-01-2016
05:24
Hi everyone I used to enjoy an occasional glass of red wine but have abstained since my dx a few months ago I am on quite a concoction of medication which includes MST, oramorph Exemestane and Amilodopine for BP. I have not asked the question at my OPA oncology but do you know whether it is safe to have an occasional glass. I do not want to put my body under more stress with more chemicals to contend with but I sometimes just fancy a little drinky 🍷 Xx
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