Breast Cancer Now Forum

I've now come off Letrozole in favour of Exemestane, but the vaginal dryness etc is still an issue.  The best solution I've found is Replens MD moisturiser (which is hormone free) and Superdrug's own Lubricating Gel.  Some of the others actually stung as they were inserted, which didn't bode well!  Hope that's helpful x ... View more

Hi helen1971, Thank you for your post. I am sorry to see that you experience discomfort in your implant side. I hope my response will help our members to see your post and share their experience and advice. In the meantime, please remember that for any clinical questions, our nurses are here and happy to talk things through. Sending you our best wishes, Zoe ... View more

Hi helen1971, Thanks for posting. Sorry to read you've started to experience discomfort. If you like, you can call our specialist nurses on 0808 800 6000 and they can provide support. Alternatively, you can post your question to the Ask Our Nurses board, where they will get back to you with information. Best wishes,  Saski  ... View more

Hi Helen, I'm 2 years on from chemo and surgery, and 1.5 from radiotherapy. When I finished my treatment, my BCN told me that I would probably experience discomfort and possibly pain for quite some time to come, but that I shouldn't hesitate to get in touch if I was at all worried. And that's exactly what's happened. I've had several instances, where the usual discomfort increased to pain and panic, I've phoned my BCN, and each time (even in lockdown), they've told me to come in. I've seen my surgeon, he's reassured me, and bingo - the pain has subsided. It seems we've all got to learn to live with these ups and downs, but the important things to remember are 1) you're not on your own! There are lots of women on this forum who have posted with similar experiences and I've always found it really helpful to read about these. Just knowing that others have been there, knowing that I'm not overreacting or imagining things - it really helps. 2) if your breast care team aren't very supportive, insist on getting help from them - that's their job!! You could also give the lovely nurses on the forum a ring - they are very supportive and can give some general advice, which may in turn help you to get better support from your BCN. Sorry, bit of a long post! Hope there's something in all this that helps a little.  Take care ❤ ... View more

Hello Helen I am due for masectomy in a few weeks but a close friend of mine had masectomy and reconstruction with implant in 2008. She always felt uncomfortable, that she had lost full movement, that the implants weren't really part of her body. She had it out and went flat a few years ago and now feels much better, even though it was hard psychologically, she preferred to feel well in her body.  Don't know if this is helpful, just so you know other women do struggle for years after reconstruction.  Hugs   ... View more

Campbeltown argyll and bute ... View more

I’ve been on Anastrozole for 4 1/2 years now Claire - I found the Accord manufacturer best for me, there was one that really made my bones ache (possible a bit down too / but that might have been lockdown!) and my oncologist said it can happen with different manufacturers.  On it for a few more years yet, and I’m happy with it 🙂 ... View more

I got some lovely ones from Etsy. They come from Canada but are cheaper than the ones sold in the UK. I have quite a few to go with every outfit!! When I have finished treatment I will make them available but that won’t be for a while yet. https://www.etsy.com/ ... View more