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Hayley9699
Member
since
12-02-2016
24
Posts
12
Hugs
26-02-2016
03:39
1 Hug
Hi NW31, I've gone through 2 cycles of IVF prior to finding out I had BC. I know what you are going though, it's an emotional journey and can be very stressful. I wish you all the very best. I'm a year older than you, got married in July last year whilst doing IVF but unfortunately both cycles didn't work. I may try again once this roller coaster is finished. How did you find the mastectomy? Sounds like my treatment is "backwards". I'm starting off on chemo then having surgery. Xx
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25-02-2016
11:29
Hello everyone, I hope you don't mind me jumping in my on this thread! I start chemo for the first time on Tuesday 2nd March. I've been told I'm going to have FEC-T once every 3 weeks for 18 weeks. I think the doctor said I may change to something else half way through... Sorry I've forgot now, so much to take it!! I'm 32 from Suffolk being treatment at JPH and I'm gonna try the cold cap. Wishing everyone all the best xxx
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25-02-2016
11:17
Hi Jan Thanks for your reply. I didn't realise they done monthly threads what a great idea. I shall check it out now. Xx
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25-02-2016
07:21
Hi everyone, I'm starting chemo on Tuesday 2nd March and been told I will be given FEC-T. I'm having it once every 3 weeks for 18 weeks. I don't know the dosage yet. I was wondering if I could pick your brains and hear how you have all responded to it. I am going to try the cold cap. Thanks in advance Hayley xx
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23-02-2016
03:26
1 Hug
Hello Coxleonie, Sorry for not getting back to you sooner. It's been a bit manic and I have my Mum staying for a few days, trying to take my mind off things. I am so sorry to hear you have also been affected by this horrible nasty cancer. Sounds like we are in a similar situation, athough you are a few weeks ahead of me by the sounds of it. I havent started my chemo yet, I am due to see the consultant tomorow were he is going to discuss my treatment plan and results from both my MRI & CT scan. These two weeks have been terrible, like you said a roller coaster of a ride. I just want things to start moving forward and get on the road to recovery. I think it's great that you got your hair cut into a bob and loving it! I had mine done too last week and wish I had it done sooner, even though I cant blow dry as well as the hairdresser lol. How are you finding chemo? Am I reading that right that you have 126 days of chemo? Sorry this is all new to me. I am dreading it...any tips? I have been out and brought a few things like hot water bottle, slippers, magazines etc. I am going to try the cold cap so planing on taking plently of layer too. Hope to hear from you soon. Big hugs. xx
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20-02-2016
10:34
Hiya Hun, My MRI went okay they done the CT scan whilst I was there too so I don't need to go back Monday which is good! I get the results on Wednesday which is when I find out my treatment plan too. I'm so sorry to hear your feeling low and fed up, your not alone, I've been having a few days like that myself. I hate waiting. I just want it gone now. It's getting to a point where I don't like looking at my boob any more. I know it's easy for me to say but stay strong, we can get through this. I hope you got my email? Xxx
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18-02-2016
09:40
Hello Kiera I am so pleased to hear of your good news. It's great to hear that you are feeling better knowing you have a plan. How did you get on with the Doctors and nurses this time? I hope you had a better experience than last time. I wish I knew more about my nasty cancer - can you confirm what BRCA 1/2 gene is please? I am doing okay thanks, ive had a few days where I have been a little snappy with my husband and feeling low. However my Mum has come up for a few days so I am hoping a bit of retail therapy with help with that. How are your children?? I have been trying to add you as a friend on here but it wont let me for some reason, so will take the risk and post my email address on here...hayleylouise9699@googlemail.com please feel free to email me any time. I have my MRI scan tonight at 5pm so I will keep you posted. Stay strong xx
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16-02-2016
04:30
Yay this is so exciting!! Something to look forward too. Bottyboo...welcome to the forum. 🙂
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16-02-2016
04:24
1 Hug
Hello Lolsbee81, Thank you for your message. It is so sad to read so many of us are in the same boat. I am really worried about the chemo, is it is bad as I am thinking it is? And did you lose much of your hair? Sorry for the questions, please tell me to pipe down if they are to personal. xx
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16-02-2016
04:17
1 Hug
Hello Kiera, I am doing okay thank you, the sun is shining in Suffolk but it is so cold today. I took my dog for a long walk and now on here catching up with you all. Your message had me in tears. Please do not feel that you have messed everything up for your family and you are not alone. I know we are miles apart, but I am here should you wish to talk. I haven't been through any treatment, but like my Mum says it's always good to talk! Relax take a deep breath and take each day as it comes...trust me it works. It sounds like we are exactly the same, I am having my MRI scan on Thursday and CT scan next week. Like you I am finding this part the hardest as I just want this dirty cancer removed. I want to know what plan they have in place to 'fix' me. Anyway enough of me. If you would like to talk privately I could always send you my email address? Please let me now how you get on tonight. Big hugs Hayley xx
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16-02-2016
12:19
Hi Louise, I would love to chat to you. Be great to talk to someone who has been through this horrible journey. Not how I add you as a friend on here, could you add me Xx
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16-02-2016
10:07
Hello everyone, Thank you so much for all your replies. It is reasuring to know that I am not alone out there, I shall be asking lots of questions so I apologies in advance. I had a good day yesterday, I went along to the Big C charity and met all the staff there. The support is overwhelming. There is a group there what meets twice a month and it is aimed at women aged 30-40, the first meeting is on the 3rd March. 🙂 Can someone tell me if you can send personal message on here to other users? If so how?? I am still trying to work my way around the website. I was wondering if I could also pick your brains in terms of hair loss. I am really worried about this, espically as I feel my hair is my best feature. I have been reading up on the cold cap and there is mixed views. Has anyone on here used it before? I don't know what treatment/medication I shall be on yet, but was told by the nurse that they are going to ''throw everything at me.'' I have booked a hair appointment on Thursday at a lovely salon in town (normally i have a mobile hairdresser) so thought I would treat myself and get my hair cut ito a bob or shorter style. I keep changing my mind and feel making any decision at the moment is a challenge in itself. Would you reccommend this or did anyone else do the same? Again sory for so many questions. Big Hugs to you all xxx
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15-02-2016
09:26
3 Hugs
Hello everyone, I'm Hayley, 32 from Sunny Suffolk ( well not so sunny today!) On Tuesday 9th February I went to hospital to get a lump checked out, thinking nothing of it as I thought I had just knocked myself in the gym whilst training. The next minute I am having a scan done to be told the lump was 'suspicious.' As a result of this suspicious lump I had a mammnogram and was told by the nurse they were sigficantly concerned, so they were going to carry out a biopsy on the same day. I can remember the tears were streaming down my face and I wasnt able to talk. Lying there on the end thinking why has this happend to me?? What I thought was going to be a quick check up ended up being a 4 hour appoinment. On the 10th Feb myself and my husband went back to the hospital to be told that I had Grade 2 Breast Cancer and that it had spread to my lymph nodes. I belive the told me the size of the dirty cancer was 3cm x4cm. Thats all I can remember from the appointment, other than the words ''It is treatable.'' Since this time, I have been a mixed bag of emotions. I am orginally from Bristol, so all my family are miles away, however my husband Simon has been fantastic and I have been talking to my family and friends a lot. I have been on this site for a few days now and have been reading other peoples stories and it reasures me to now that I am not alone. Saying that it is not nice that we are all here. As a type this I am looking at my boob sticking my middle finger up at it (lol.) I have a MRI and CT scan next week and meeting with the Oncology clinic on Wednsday 24th Feb. The wait is so difficult, I just want to get the cancer removed. I am worried that I am still in shock as I havent been crying as much as i thought I would. Yesterday I was so busy I seemed to forget it, yet today I was awake at 6:00am thinking ''what should I be doing to prepare.'' Today I am going to visit the Big C which is a cancer charity here in Norfolk. I am really looking forward to talking to people there, however I was wondering if you lovely ladies can help?? Is there anything I should be doing?? I was going to contact Head Strong and arrange an appointment with them prior the treatment starting and I would also like to talk to someone of the same age who has gone through this journey themself. Sorry for so many questions... Thank you for taking the time to read this. Big hugs to you all H xxx
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13-02-2016
05:02
Hi Debbie Thank you so much! I will have a look now. Big hugs to you x
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13-02-2016
04:33
Thank you so so much for your kind words! Love and hugs to you all xx
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13-02-2016
04:26
Hello G Welcome to the thread and thank you for your advice. My hubby says the same. But I am worried I will get odd looks and people will guess what is wrong. I've always had quite low confidence and always worry about what people may think. Did you wear the cold cap during treatment? And if you don't mind me asking how much hair did you lose? Big hugs xx
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13-02-2016
02:05
Hello Kate, Thank you for your reply. I am going to the oncology clinic on 27th Feb and my MRI scan is on the 18th. All my family live in Bristol, so I have my mum coming up this week so spend some time with me. My husband is being fantastic, but you can't beat a good cuddle off your mum hey lol. This morning I have booked myself into the hairdressers and having my long hair cut in a short bob. My friends have mixed views on this. But it's helping me to prepare as I am terrified of losing it. I feel my hair is my best feature. The salon was so understanding I couldn't believe it, I'm not so excited about going. Xx Lots of love Hayley
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13-02-2016
01:58
2 Hugs
Hi Sarah, thank you for your reply. It has made me feel so much better. It's fantastic to hear how well you are doing. (High five) This morning I called a hair salon and spoke to the manager who was very kind and understanding. On Thursday I am going in to have my long hair cut into a short bob. She reassured me telling me that the wings are very good and she had several women come into her salon suffering with BC. I'm not really excited about Thursday Lots of love to you all Hayley
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13-02-2016
09:21
1 Hug
Hi everyone I was diagnosed with grade 2 BC on Tuesday. I'm booked in for a MRI and CT scan within the next two weeks. I'm 32 and numb with fear. I found this site last night and so so pleased I did. I don't like this time of waiting I feel like I'm going crazy.So much is going round my head and my emotions are high and low. It would be lovely to hear from you allxx
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13-02-2016
09:11
Hi thanks for your reply. It's really encouraging to read how well your doing. I am new to this web site and using it from my phone, hence the short messages. Is there any way we can send private messages on here? Or exchange emails? It would be so good to talk to someone. X
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