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Cara0165
Member
since
25-02-2016
80
Posts
21
Hugs
25-04-2020
09:27
Hi all! Has anyone had TC chemo along with perjeta & herceptin? I was originally diagnosed in Feb 2016 and had FEC-T, Herceptin then double mx and then Tamoxifen which I came off after almost 2 years to have a baby. I went back on for 7 months then stopped as didn't realise that my risk of blood clots is high and oncologist said that the risk of taking it was equal to the benefits. Anyway, here I am again 4 years later with exact same type and seems to be along my scar. Due to start my new regime in 2 weeks and very nervous about how my heart will cope a 2nd time round. C x
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08-06-2019
02:31
Hi Babubabu! I was diagnosed 2016 when my daughter was 7 months old er and her2 positive, my newest arrival is now 7 months old 🙂 I had contact with a few ladies who were also pregnant after a diagnosis and spoke to some who were a year or 2 on from having a baby. Whatever you decide I have my fingers crossed it all works out for you x
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06-03-2018
01:23
1 Hug
It's a while since you posted but wanted you to know that just after I was diagnosed I had a mc, went through all my treatments and then fell pregnant again but it ended in emergency surgery to remove baby and fallopian tube. It's been 7 months since my ectopic and I'm now pregnant again and baby is in the right place this time. I hope everything works out well for you x
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27-10-2016
07:59
1 Hug
Hi all, I received my 5th lot of herceptin today and was told my last muga was down to 57% from 67%. I've to get another in 8 weeks time to see if it goes down anymore but the oncologist didn't seem concerned. I read a post a few months back about a woman who was taking supplements to help her heart but can't find it anywhere. Can someone help me or give advice if there's anything I can take? At 28 I don't fancy having a bad heart!
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25-10-2016
02:03
1 Hug
Well last night I finally decided to start my tamoxifen and so far today I feel fine. Here's to the next 10 years!
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27-08-2016
01:38
I have opted for the goldilocks mastectomy and was wondering if anyone else has had this procedure?
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27-08-2016
01:26
Thanks for the replies everyone. I have 5 days to go til my last chemo, hallelujah! Then I'm having a bilateral mastectomy, I should be meeting with my oncologist to discuss tamoxifen before this and I'll ask then how er positive my cancer was. I still don't want to take it 🙁 x
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04-08-2016
12:38
Tanyette, that's terrible and not very professional in my eyes. When is your next lot? Oh.. I eat seafood almost everyday but only because my dad's a fisherman and has his own business so I've easy access to it. I've never been told not to eat a certain food but have been told to avoid swimming in pools/sea I'm not allowed to go to the gym or lose too much weight. Someone else being treated where I am hasn't been told not to do any of that though so it's a little annnoying as it seems there's rules one but not the other. Thanks, I hope you're SEs ease up for you xxx
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03-08-2016
09:57
1 Hug
Hi tanyette, mine didn't show up straight away as well but wasn't a problem going in either 😕 . I would happily go through fec again compared to this! I'm better but very tired and feel like someone is constantly sitting on my chest and am also now on lansoprazole. I've also been getting pains through my incision sites. Did you say your dose has been reduced? Sorry if I've mixed you up, trying to get up to date with everyone's posts. So sorry to hear about your veins sue and oad you seem to be having a terrible time too. The finish line is nearing 😀 Also can I ask why the avoidance of seafood? Xxx
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02-08-2016
08:59
Hi all, don't mind me jumping in on the chat I've been pretty quiet lately. Had my first lot of T almost 2 weeks ago and it has been awful! I have a query about my chemo hand, since the T I've got a red rash where the needle was in and has now started to itch. Should I phone my chemo nurse? I feel like this round I've done nothing but phone her. Bring on the 1st September!
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20-07-2016
11:24
2 Hugs
Has anyone refused tamoxifen and also what's the statistics if you do refuse? Like for some, chemo only gives an extra 2% for example on survival and reoccurrence and they refuse but I haven't been told anything about tamoxifen 😕
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17-07-2016
10:13
Hi everyone, I'm starting my 1st lot of T and herceptin next week and was wanting to know how others have reacted to both? Also I'm really worried about the herceptin causing heart problems, does anyone take anything on the side to keep their heart strong?
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16-06-2016
11:39
This question has been playing on my mind a while now and it even puzzled my chemo nurse so I'm hoping someone might have an answer. I know you either receive neo adjuvant or adjuvant chemo, one being that you are treated before surgery and is used to shrink the tumour and the other is after surgery to destroy any rogue cells BUT I have had 2 ops and am having chemo now and then will have a mastectomy.... so which one am I?
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15-06-2016
04:21
Hi Fiona, I have a friend who was stage 3 her2+ and is healthy 10 years on. Hope that gives you some peace of mind x
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27-05-2016
10:00
Hi vintage! I am her2 and er + also, I don't start herceptin til my 4th cycle... 1 down 5 to go! I met a woman yesterday who has been 9 years clear who was also her2 er + she had herceptin and has 2 years left of tamoxifen and is doing great after Dr's initially said she wouldn't make it. So there is hope!
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24-05-2016
09:02
1 Hug
Hi paprika I noticed you mentioned the east coast, are you near St andrews? Good to hear your 1st chemo went well x
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20-05-2016
08:38
I finally got home at about 6 I think 😕 foggy brain! They gave me a different anti sickness tablet away with me and I feel a lot better so I'm hoping that's the worst part over. Now for some sleep, 16 hours in hospital takes it put of you 😪 talk soon xx
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20-05-2016
07:10
I'll allow myself to get a telling off once since I don't know how to private message you. It's (removed due to Ts and Cs) speak soon ☺ x
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20-05-2016
05:00
Would you like my email? I am having all my treatment in ninewells but last night was admitted to the vic and I'm just getting home now, worst care I've experienced there. But oh well I'm on my way with a different anti sickness tablet x
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