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Rose47
Member
since
10-03-2016
208
Posts
23
Hugs
23-03-2018
01:12
Carolyn I am so sorry for your crappy results. Now hold our hands and let us send you so much love, it's easy to get forget after such a long time stable that the little pests do move and spread and very quickly too. I just wanted to say that I am on Exemestane and after 3 months my onc said it wasn't working. My husband questioned was 3months long enough so the onc agreed to give me 2 more months. Had scan last week, had results 3 hours later and whilst it showed blood clots on my lungs it also showed that the everything, especially liver was shrinking. Please don't be afraid to disagree Carolyn, if I hadn't stood my ground I would be back on chemo by now. X
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23-03-2018
01:02
Hi Carolyn, I am so sorry that you received such a crappy scan result, this bloody disease has no heart does it !! I was on Exemestane from August until December and after a scan the onc said it wasn't working so he was going to change me to cape. My husband questioned whether or not 3 months was long enough for it to be effective and the onc said he would give me 2 more months. I had a scan last week, got called back to the hospital 3 hours later. Everything had either gone or shrunk, especially the liver, so Carolyn please question if 3months is long enough when you go back. Come on lovely lady take our hands and lift yourself up. Xx
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31-01-2018
04:08
2 Hugs
Hi Ladies. Thank you funny face for your message, I am sorry only just replied. Today was last session of Wbr. It. Was Thursday,Friday,mon,tues,wed with this mornings being at 7.30 in the morning so feeling a bit tired. It hasn't been as bad as I feared although the last few days the mask did get tighter but I wonder if that was down to the steroids puffing up my face. At my onc appt yesterday he let me reduce down from 8mg to 4mg for a 5 days and then 2 for a few days and then none thank goodness as they are just awful. Nothing compared to the other brave ladies on here, sending you both much love on your recoveries xxx
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25-01-2018
05:19
Thank you so much ladies xx the mask being made up was not a problem at all and I have always been panicked in confined spaces. The first treatment this morning was about 15 minutes, painless and I feel totally fine this afternoon, even managed a stop off at Sainsburys for a food shop. I just have to hope it blasts those bad bits and I can get off these steroids, I am snarling at everyone. What I have learnt ladies is that mr Google is not our friend ! Xx
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24-01-2018
04:28
Hi ladies. Well no doubt it's def brain mets. Mask made up today and planning ct scan done. Now for 5 days of whole brain radiotherapy. I came home tonight and the four if us just jumped into our bed and snuggled up..xxx
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22-01-2018
05:09
1 Hug
Thank you Carolyn, I will try to find thread and read. I allowed myself to be fooled into daring to believe a tablet a day would keep everything away, there is so much I am now learning by not burying my head. I was the. Biggest whimp at running out of the onc waiting room. Xx
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22-01-2018
04:43
1 Hug
Hi ladies, I have been coming to terms with my scan results received just after Christmas. So here it is, scan showed bone mets healed, liver shrinking, I was on Exemestane and zometa. No signs of headaches etc but new onc had decided to do a head ct as I had never had one and there they were, causing no symptoms. My tumour markers were very low too and they think it has happened very suddenly, they were surprised. So here we go with Wbrt starting this week, I just hope it can work xx
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03-01-2018
05:47
Thanks FF, how are you feeling ? Still resting I hope and without the awful pain xxx
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03-01-2018
05:20
1 Hug
Hi Ladies, thank you so much for all of your good wishes and hand holding. I saw the onc in charge of the chemo ward before I had my scan and she gave me a relaxant and went and spoke to the radiologist to warn them I was nervous. I did it, I managed the whole thing while listening to Ed Sheeran piped through the head phones. Results today too, the lesion on the spine is not the problem they thought but they found some mets up in my neck and at the base of my skull. I have had terrible pain there but stupidly put it down to an old whiplash injury (stupid or wishful). Anyway, it's steroids for me and then an appointment next week to arrange radiotherapy on the area concerned. Is radiotherapy awful ? But most importantly can it kick the uggers into shape ? You have all helped me so much last night and today - big huge hugs and thanks xxxx
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02-01-2018
11:14
Hi Bon, scan is tomorrow at 10.30, I will pull myself together, I need to get this spine met kicked into touch. Thanks ladies so very much xxx
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02-01-2018
08:54
Thank you so much Mojan and Paula, I know on a scale of things to worry about with this cancer rubbish a scan that will help me is quite low down on things to worry about but I am so scared. Also fed up that it's spread ! Life on the hormones was so much easier and normal than the chemo option. I have had tamoxifen and now on Exemestane so I am guessing there are no more hormone options. Xx
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02-01-2018
06:55
quick update .. I have an appt tomorrow morning with onc, They want to give me an mri scan and I am terrified, I am so panicked by confined spaces. Is an mri scan really bad, I just don't know what to expect. Also can they treat mets on the spine ? Xx
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02-01-2018
03:29
Afternoon Ladies, I am hoping someone can offer me some advice etc .... I had a scan on Saturday and this afternoon have received a phone call from ONC to say that need me to go back to the hospital to have another scan as they have found something on my Spine, half way down and they don't want to wait until my ONC appointment next week before starting to treat it. They mentioned steroids .... can anyone shed any light on this from experience ? I have no pain. Thank you for listening, I am feeling very frightened this afternoon and a bit shocked. Maria x
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30-12-2017
08:15
1 Hug
Thank you so much for your kind words, you are all so thoughtful and it means a lot. I had scan today so now it's the waiting game, I hope you all have something nice planned for tomorrow night, whether it be a night out with friends and family or just a quiet evening in, you are all such strong ladies and whilst I don't often post I am so appreciative this forum xx
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29-12-2017
09:38
2 Hugs
Mojan, Your advice is something I am going to re read over and over again, so wise. I have a scan tomorrow so the timing of reading this is perfect. Thank you so much for sharing. much love xx
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29-12-2017
09:17
2 Hugs
Hi SML Just wanted to let you know you are not alone. I was diagnosed in Jan 2016 straight to Stage 4. I have a scan tomorrow and after a lovely Christmas with my beautiful girls and husband I feel totally overwhelmed by the worry of it all and just feel like sitting in a room and crying. Anyway I don't want to drag you down, just keep you company xx
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29-11-2017
03:13
JoelleK, I am so sorry to read that your lovely Mum has passed. Once the shock and pain of all that you have been through with her has subsided I hope you can take comfort in the wonderful memories you must have of her. xx
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29-11-2017
03:10
Hi Carolyn, That is such brilliant news, you must be thrilled :). You had a long wait for the results so you must have been anxious. Last time I had scan results (in August) they mentioned a small deposit on my adrenal gland. I didn't even know where it was and had to google it !! xx
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