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On a diversion
Member
since
13-03-2016
372
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64
Hugs
14-05-2017
09:04
Hi Hazel, Thank you for your reply. I've had 14 now! Your course sounds good and I like the idea of the exercise group. I did join a walking group but most of the walks are too long for me. I have had to learn the hard way that if I overdo it I will suffer. I think people tend to downplay the side effects of herceptin but they're very real. We are the same age, like you I have hot flushes which I assumed was menopause but now I'm thinking it's the treatment. Wasn't expecting periods to return so might just double check and see what the doctor says about it all. Thanks again, OAD
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14-05-2017
12:16
Hi Linda, I agree with Vintage, everyone is different, I find some days I can hardly move due to pain and stiffness in my joints. I decided the best thing for me is to do a short walk (even if it's only 5-10 minutes) everyday as that is good for heart health but I don't always manage to, I think we have to listen to our bodies. Completely different question, has anyone else found their periods have returned? I'm late 40s so assumed they wouldn't but am thinking I may be having period pain too! I'm not on hormone therapy so this is possible I guess. OAD
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02-05-2017
01:35
Hiya, Brilliant news Tanyette! I'm still on herceptin. Another couple of months and my active treatment will be over, at last! Strange to think that most of the May 2016 starters finished active treatment in the autumn! Hope everyone is doing well. x
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02-05-2017
01:32
1 Hug
Hiya Hazel, Hope the heart scan goes well. I had all sort of problems with infected ingrowing toenails during the winter. Also have problems with antibiotics. I think some of us are much more sensitive to all the medications and treatments! Really interesting about the change in car too. I still have the back ache etc and am wondering about this. Totally agree with increasing the exercise slowly and not being hard on ourselves. Take care xx
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02-05-2017
01:26
Hi Tina Hope your meeting with occupational health goes well. As you say your health comes first. Like me you are on herceptin and so you are still having active treatment so give yourself time. Take care, xx
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15-04-2017
11:16
Hi again, Ask as many questions as you need to. I don't come on here very often these days but there is usually someone on here who is able to help out. I was exactly the same, only thought there was one type of breast cancer before etc etc. So 'clear margins'. When someone has a lumpectomy the surgeon aims to ensure that they remove both the tumour and a small (1-2mm) area, a margin, around the tumour to ensure there aren't any cancer cells left. Following surgery this is examined under a microscope. If cancer cells are found in the margin, it means it isn't clear and then the person has to either have another lumpectomy or a mastectomy. Hope this makes sense. X
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15-04-2017
11:07
Hi there, So, so sorry you are going through this ... my hair started falling out at 12 days and I remember it clearly. Yes it is normal for it to feel sore and tender when your hair is falling out. The only thing that relieved it for me was to have it clippered to a number 2 all over. I remember the sense of relief and also it wasn't as distressing as seeing all the hair falling out. All the best to you xx
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15-04-2017
09:18
Hi Tanyette, Hope all went well, have you had your results yet? I'm still having treatment so still living in three week cycles! X
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15-04-2017
09:03
Hi Melia, There's so much to take in isn't there? No, if it is in the sentinel node it doesn't mean it is any others. If you are worried about pain mention it to the nurses, maybe they can give you something to help. OAD xx
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15-04-2017
08:58
Hi, Hi, the ear ones are good. Also take your temperature before using any paracetamol as it can mask a fever. If you develop a fever above 37.5 you need to contact your chemotherapy helpline OAD
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15-04-2017
08:50
Hi Melia, Most hospitals use a radioactive isotope to locate the sentinel node so I expect you are going to have that. They like to check the sentinel node just to be sure. OAD x
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11-04-2017
11:58
Hi Hazel and Aine, Really interesting reading your comments, thank you for sharing. My taste is still affected but I have been told that it's due to the taxotere and might be long term. It never occurs to me that it could be PN. Take care xx
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10-04-2017
11:50
Many congratulations Runningfree. I have ankle and hip/pelvic pain as well as worsening peripheral neuropathy. Seems to take a while for my muscles to get going. Anyone else?
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10-04-2017
11:47
Hi, Please either go to A and E or at least call your chemo helpline and explain this to them. A high temperature (my hospital says 37.5 and above) can be the only symptom of febrile neutropenia which is very serious. Take care xx
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01-04-2017
11:36
Hi Tanyette, How strange, I've just looked on here for the first time in a month or so and saw your message! I had my mammo a few weeks ago, they sent me my results in a letter about a week later. I was worried about the pain too, the radiotherapy has left me sore and I get twinges of pain but it wasn't as bad as I imagined and it doesn't take long. Hope this helps xx
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13-03-2017
11:31
Hi, Well I've lost track of how many I've had now, must be about 11. I am with you Hazel, I expected to feel a lot better by now! It's interesting that the aches and pains are better with the infusions. I don't think infusions are an option for me. I have a lot of headaches and have had a few infections but not in my sinuses. X
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09-02-2017
08:34
Hi, I was very nauseous last time for a couple of days and also throw up a little. I'm about half way through now and don't have any other treatments like tamoxifen xxx
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07-01-2017
02:15
Hiya! Apparently http://www.insurancewith.com are good. The company was set up by someone who'd had problems finding affordable insurance following breast cancer treatment. X
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07-01-2017
07:57
Thank you Tanyette, I reckon we deserve it 😘
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07-01-2017
07:55
1 Hug
Hi, I had been intolerant to wheat and lactose for several years prior to my diagnosis following a serious infection. While on chemo I had a very similar experience to Flopsy (crap) but have since discovered that I can tolerate wheat again so it seems the chemo has sorted out that intolerance. There have to be some positives! X
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