Breast Cancer Now Forum

Hi I'm Sonya. I am 37, 38 on Wednesday. I'm really looking forward to the event this weekend. I wanted to go last year but was in the middle of chemo so couldn't so am really happy to be coming to this one. I'm a bit nervous but am excited to meet everybody. Xx ... View more

Hi ladies. Hope you are all OK? I'm doing much better than a few days ago. I'm still having a few sick feeling moments. But I haven't actually been sick so that's a positive. I went to the look good feel better course today. What a lovely experience. The ladies were so lovely and helpful and went out if their way to help us all. I got a bag full of skincare and make up products which was really kind of them. I really enjoyed it. All in all its been a really good day. As my son had his leavers assembly this morning and he was awarded a special award for working so hard and achieving great results in his SATs. Love Sonya xx Xx ... View more

Mornings are the worst. Wake up with the most awful taste in my mouth. It took me about 3 hours to come round this morning. It was awful. The hubby woke me up to do a job that really he should have done himself. I've told him from tomorrow to just leave me x ... View more

Hi ladies. Thanks for your replies I'm 5 days post 2 EC. I was feeling OK over the weekend but it's like a zombie has taken over. I'm hardly talking. Hardly moving except to eat or to feed the children when required. At least I don't have the sickness of last time with the heart burn xx ... View more

Hi ladies. The last couple of days have been so very hard. I don't feel ill I just don't feel right. I'm tired and weak. That awful nasaly taste at the back of my throat won't go away. The hubby persuaded me to go for a walk and I wore my wig. I have had a bad couple of days coming to terms with the hairy egg look. My own and that isn't against anyone else. The wig makes me feel overdone and perfect. Does anyone understand what I mean? I feel over dressed because it is so shiny and clean and it's hard. I'm wearing a scarf now as it feels better in the house. I feel that my hubby may be a bit cross with me because I found it so hard. He probably isn't but it's hard not to feel that way. We had a meal and I chose something just to keep him happy. It was far too much too soon. Im going to just relax for the rest of the day now. Sorry just wanted to say it out loud without causing an argument. I hope u r all doing OK. Sonya zx ... View more

Hi ladies. Thanks for the advice. I took the lansoprazole and went to bed for a bit. Then I got up and had a brew and a piece of toast. I went to bed again about 3 hours later. Diddnt sleep much due to the steroids I suppose but I've got up this morning feeling OK. I've eaten rice krispies and toast and feeling quite good at the mo. Lollies are out again to keep my fluids up. I'm still on the steroids for 2 days so when they finish I may have to go on the cyclizine. I will see how I feel. Does anyone else hate doing the injections? I hate them but know they are essential for my health and wellbeing. Hope you are all doing OK this morning xx ... View more

Hi ladies. Just back from my 2nd EC, it was over much faster than last time. The ward was running an hour late but once I was upstairs i was called straight away. My Oncologist had changed my pre meds to netupitant and palonosetron which is rather a big capsule which has 3 little tablets in it. I wondered why it felt so heavy and it made a noise as I gave it a shake. I had emend last time. To help this time I have been given dexamethazone for 2 days then I have cyclizine. He has also given me lansoprazole as I had really bad heartburn and sickness last time. I'm feeling very tired now. I've drank loads today and now I keep burping all the time. Does anyone know if I can start the lansoprazole today? Or should I wait till tomorrow. It's only because it feels like I have heartburn again. I had Lancashire hotpot at the hospital before I came home so it could be that? My hair is 90% gone now and my head still has its tender moments but it's not too bad. The nurse said to rub moisturising cream or e45 on it when it feels sore. Love Sonya xx ... View more

Hi ladies. The headscarf has come out today. My hair is just dropping out in clumps. I washed it first thing and loads came out. I was really nervous about wearing it outside but nobody raised an eyebrow at it. I need to get Lucy the wig out next. Sonya xx ... View more

Hi ladies. Emma111 I agree. I am 11 days post first chemo and my hair started to fall out in strands the day after and have since then lost little bits. It's all I think about and am wondering when it is going to go. I'm still not sure whether to start wearing my wig or a headscarf yet. My hair is very fine as it is and I had 10 inches cut off at the start so it's in a very short bob. My head is itchy but not sore. Sue thanks for the link. I will definitely be having a look. Sonya xx ... View more

Hi ladies. Just been reading back on your posts. I'm doing a lot better now all my medication has kicked in. I'm no longer being sick all day and the heartburn has gone. It's just a shame I'm taking so many pills to feel like this. I had a call from my hospital to see if I want to be tested for the BRCA mutation. Does anyone actually know what this means and does it affect my daughter in any way? I know I can pull out at any time but am interested to see if I have the gene. I'm going to St Marys to have some counselling then will have to sign up for it with my hospital. Love to you all xx ... View more

Hi ladies. Ended up seeing my gp today as the sickness and heartburn were causing me to be very ill. She has prescribed more ondansetron for 5 days then cyclizine hydrochloride. For the heartburn she has prescribed lansoprazole. Here's hoping I start to feel better. Xx ... View more

Thanks for the suggestions ladies. I never thought of ice lollies. I have tried infusing water with fruit but it tasted awful. I have had to take a sickness pill today as was sick just before dinner. I can't take any more for 6 hours now so here's hoping it works x ... View more

Hi ladies. I agree that the personal touch made all the difference when I was having my first chemo on Friday last week. I had a nurse with me the same one all day and it was lovely having that personal attention. Obviously I know this will change when I go to DOC in 2 cycles time. The injections every day are OK too. I can do them with ease now. Just choose a different side each time. It hurt yesterday as if it wasn't in the right place so I just lowered it a little and it was fine. They are doing their job as had my bloods checked as was admitted overnight Tuesday as I had a low temperature and bad stomach pains. I was out later in the morning. They said that my levels were really good so to keep doing them. I've been left with terrible heartburn which is really painful. I've taken a bit of gaviscon (but it made me feel quite sick) so it has eased it a little bit. I finally managed to sleep last night so don't feel as bad today as I have been. I've decided to just keep snacking during the day, avoiding big meals as that isn't helping. I'm forcing squash down my throat as I hate it usually but I keep being told to drink lots of water. I'm a real tea freak usually and never drink water. Hope everyone is doing OK today. Good luck to everyone xx ... View more

Hi ladies. Can anyone help with heartburn please? Ended up in hospital overnight with a low temperature and bad stomach pain. They have put it down to constipation and advised me to take senna. I did mention the heartburn but it seemed to have been forgotten with everything else going on. Are rennies any good? X ... View more

Hi ladies Just thought I would pop in and give u an update. First EC was on Friday. Have been absolutely exhausted as really finding it difficult to sleep. Then at 4 this morning I had to ring the hotline as my temperature was down low and I had terrible pain in my stomach which had been going on for a few hours. They advised me to go in. It took them 4 times to cannula me which was absolutely awful at that time of the morning. I was then told that I would see a doctor after my bloods had been tested. Roll on 10 o'clock. Apparently the overnight doctor hadn't been told that I was there so ended up seeing a very nice junior lady doctor who checked me over. By this time the pain had gone so they decided that it was a constipation problem and that I was to take senna at night to help. I'm back at home and have had a couple of hours sleep so feeling a little bit better. My wrist is so painful. I think I'm going to get a really nasty bruise. I have terrible heart burn too. Sorry for the moan. Xx ... View more

Hi ladies. Buster your message was so lovely. Thank you for posting that. Hi Hazel hope you are OK. I'm not feeling too bad this morning but Im not going to push myself as I know things can change very fast. Have a lovely Sunday everyone. Xx ... View more

Hi AngeNut. I did my first injection today and it was really easy to do. It hurt a little bit but once it the full amount had gone in the needle retracted back in to the strange. Good luck xx ... View more

Hi girls. This may sound really silly but my head has been really itchy this afternoon and strands are coming away. I'm only one day in from my first EC. It's far too soon isn't it? My hair is very fine anyway and I am all prepared with Lucy my wig and scarves. I've cut my hair to suit my wig. But it's strange seeing it happen. Any advice xx ... View more

Hi ladies. Had my first EC yesterday and so far all I can say is that I feel strange. Different so to speak. My visit to the hospital lasted most of the day as my anti sickness drugs had not been ordered and we diddnt know we were supposed to collect them from the pharmacy before treatment. The nurse I had was absolutely lovely and kindly went through everything I should expect from the treatment. Whilst waiting for my drugs to arrive she was able to take her dinner break so I think she was quite happy. When I saw the syringes I was quite worried and as she administered them it seemed like it was going in very fast. I felt very woozy and spaced out during the C syringe. She said this was normal. I got a very prickly bottom and my head got really itchy. We diddn't end up leaving till after 3:30. The woozy feeling carried on all last night and I diddnt end up sleeping very well. This morning I have taken all my anti sickness drugs that they have prescribed. I have yet to take my daily injection. I was hoping a district nurse would come and show me how to do it but apparently the nurses on the ward feel it's better that we do it ourselves and only contact the dn if we need help with it. I'm still in my pj's sitting on the sofa. I just feel really lethargic today. Food tastes really salty but I'm managing to eat. My mood is OK. I'm not particularly bad tempered but sometimes it's easier to raise my voice to get the hubby and kids to listen to me. They think I'm moody lol. Well I hope everyone is OK today. Lots of love Sonya xx ... View more

Hi Millasmummy. I was in the same situation a couple of weeks ago. I was told I needed to have a ct scan and bone scan before I went to Christies last week on the 8th. I left it a week on the advice of my bc nurse and had not heard a thing. I rang the hospital a couple of times to find out what was going on, only to be told that my scans had not been booked. I then had to wait longer to get them done. Luckily a nurse was able to get them booked the weekend before I had my first appointment at Christies. The results for my ct scan were clear but I still don't know the results of the bone scan. I'm sure that if there was anything to worry about they would have been in touch. They have a duty of care and would ring you if they needed to see you about anything. Hope this helps. Sonya xx ... View more