Breast Cancer Now Forum

That's brilliant news that comment has lifted me so much Had fourth Kadcyla two days ago and the mild neuropathy that I had has now kicked in really badly making me quite tearful hate whinging but fingers and toes so painful ... View more

Have got homeopathic remedy for eyes now and they are so much better see cornea consultant 3rd April my wig gets into them as well Also still taking eye drops Hugs ... View more

Hi Mojan I am on Hyco SAN extra six times a day for eyes which has been a lot better for my eyes and also lubicare at night which I smother over eyes Hyco expensive which I bought 23rd December Now been offered on prescription and lubicare Hyco supposed to replicate tear drops Hope that helps Much love Kate x ... View more

Thank you so much for that appreciate your advice where are you on your journey if that is not to ride a question Much love Kate x ... View more

Hello everyone on Kadcyla I have my third one on Jan 3 but I need some help please I have had the fatigue the very dry mouth treatment nothing as severe as previous six months on taxatare but I am really suffering with conjunctivitis had it the third week after the first threstment and I have it again now so so painful cannot open right eye had blood tests done today all normal neutrafils and crp Have been on antibiotic drops virtually since last treatment on 12th December I am very emotional with it and am sure it is due to the infection Please can someone help Much love to all of you on Kadcyla and you are in my thoughts and prayers Kate x ... View more

Hi Lizzy thanks for letting me join the secondary private group Never thought I would be here after being six years Bc free I had my second Kadcyla this week after six months of chemo not working at all Feel as if it it taking me so long to pick up still in pj's since Tuesday would love to know how others are coping or any tips Have tumour on my left lung and in my sternum Best wishes and hugs to all in group x ... View more

Thank you for your posts I have had first kadcyla two days ago no effects so far other than feeling under the weather but dark days don't help it is very comforting to know that you are not alone and am sure when confidence comes back will feel much more upbeat am taking your advice and treading water at the moment sending love big hugs and very positive thinking to all of you xx ... View more

Hi my name is Kate and I never thought six years ago when I was given the all clear from breast cancer agent two years of treatment after surgery I would be posting here so that is how long my last post was I was diagnosed with lung metastitsis in April this year I have had give taxatare which I didn't tolerate at all well even though it was half the dose I had nine years ago hence not having the sixth one my oncologist deemed it too dangerous for me Along with taxatare I have had pentuzamab and herceptin the November 7th was told after full body scan that the last six months hadn't worked my tumour in my left lung had doubled and now it is in my sternum Have been put on high doses of vit d for four weeks and start denosumab 5th December For lung I start kadcyla next Monday I am very encouraged by all your posts and it is so good to hear what really happens We have no secondary breast cancer nurse st Kgh or a psychologist as her funding was cut Sharon was from Macmillan and asked me to write to Chief Exec And say I had been discharged against my will Feel I need to offload but certainly don't want to put family through any more stress has anyone any ideas Everyone thinks I look good and act as if nothing is wrong as after chemo finished I felt back to "normal" And have no physical symptoms but inside I am scared Sorry to offload to all of you and wish you all the very best with your journeys xx ... View more